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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Children & Youth, Children & Youth Services, Health, Patient & Family Support, Surgical Specialties

Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year: 500-1,000

Geographic areas served: Worldwide

Community Stories

9 Stories from Volunteers, Donors & Supporters

1 Brittany55

General Member of the Public

Rating: 5

We found out that my daughter was going to be born with Craniosynostosis when I was 37 weeks along! Searching for support was on my first mind after finding this out. I came across cranio Care Bears and they have been great! We ordered a care package before her surgery at one month! What we got was astonishing! Anything I needed and it beat the hospitals stuff along with things for my daughter! A sleeper a blanket a few toys :-) we have since bought items to show how proud we are of our baby girl who has sagittal craniosynostosis! This group is amazing and has helped us through a tough time in our lives!

1 Gina83

General Member of the Public

Rating: 5

This is truly an amazing organization. They helped us get through a tough time. Thank you!

1 Diane150

General Member of the Public

Rating: 5

My grandson is afflicted with a rare form of craneosynostosis. I consider myself well educated, but I had never heard of this birth defect. Their information is enlightening and the help parents and caregivers receive is invaluable. This group is supportive and giving. I cannot thank them enough for the encouragement and support they have shown my daughter and her family as they navigate an unknown highway called Craneosynostosis.

1

General Member of the Public

Rating: 5

My baby boy was diagnosed with sagittal and left coronal at birth as he was rather disfigured. The care package for his surgery was wonderful and uplifting, to think a charity in the US can send something to the UK for free is amazing. The items arrived when my friend was here and made her cry!! Thankyou for your support! Xx

1

General Member of the Public

Rating: 5

Cranio Care Bears is a wonderful organization run by people who truly care about each "care bear" they serve. My nephew is a cranio kid and had his surgery several months ago. Cranio Care Bears sent my nephew, brother and sister-in-law some goodies and words of wisdom before his surgery. I know my brother and sister-in-law truly appreciated the support, advice and encouragement they received from this organization. Each child is treated with love and you can feel what an inclusive and warm family this organization creates. I love this organization and will be donating to them each year in my godson's honor. Thank you, Cranio Care Bears!!

1

General Member of the Public

Rating: 5

Cranio Care Bears is by far the top resource moms like myself have for not just support for families with cranio kids but as a place to reach out and share experiences with other families. Before my daughter was diagnosed I had never heard of craniosyntosis. This organization was a life saver to me when I felt the most lost I had ever been in my lifetime. I can not imagine what I would of some without the wealth of information they provided and the love they share for all kids and families going thru this same process.

1 Ednita-Israel L.

General Member of the Public

Rating: 5

Carenio Care Bears is an organization dear to my hear...I thank them everyday being there for me every step of the way when i needed someone the most...my baby was diagnozed with saggital craniosynostosis at 2 months old and underwent surgery at 4 months...when we found out that she was diagnozed with craniosynostosis we had no idea what to expect thanks to cranio care bears and their support we were able to get through the surgery...their care packeges are amazing and brought nothing but warm and secure feelings to our heartsl...even after my baby's surgery cranio care bear was there for me to answer questions and just to make us feel better when i break down....thank you cranio care bears for everything you do and what you stand for.... the most amazing thing in their care packages is deffenatly the prayer chain....you hold a spacial place in my heart....thank you, from the Lopez Family from New Haven, CT

1 Heather120

General Member of the Public

Rating: 5

Genuinely caring people who like to help babies going through surgery for Craniosynostosis and their families. What an awesome organization.

1 Trine L.

General Member of the Public

Rating: 5

My son had his surgery February 14,2012 and I found this group when my son was born in April 2011. These ladies have been so nice caring and supportive. I would not have gotten through this without them. I was very lucky to have Shelby with me this whole entire time we've been on this journey. I hope more people find this group and see how amazing these ladies really are and start donating to this amazing group. - Trine and Skyler