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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Children & Youth, Children & Youth Services, Health, Patient & Family Support, Surgical Specialties

Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year: 500-1,000

Geographic areas served: Worldwide

Community Stories

100 Stories from Volunteers, Donors & Supporters

1 Christy12

Client Served

Rating: 5

my daughter is having surgery for right coronal craniosynostosis and since i found out and found cranio care bears they have been amazing!! ive never met two women, people for that matter, that care so much about other people, their children, what their going through, and making them feel that their not alone and that people are there for them, as much as these two ladies that started cranio care bears do!! if it wasnt for them, idk where id be or how id feel. im scared about her upcoming surgery tomorrow but because of them i feel better, not alone, and ive learned so much about what craniosynostosis is and the surgery for it. ive met lots of other parents that are there with me! other then the support they give, cranio care bears sends out these awesome care packages and they are huge full of so much stuff all for free for anyone all over the world that has a child/baby going through surgery!! they truly are amazing!! we love u cranio care bears!! thank u so much!!

1 Joleen G.

Client Served

Rating: 5

When we were told my son had Craniosynostosis the first thing I did was hit the web to find support. One of the first site I came across was Cranio Care Bears. I read through success stories and was so glad to find that there were others that had been though this around for support. When we recieved the care package prior to surgery, I cried. It was so comforting that they knew what we needed! To this day we have my sons prayer chain in hanging in our house to remind us of the love and support we had!! Thanks Cranio Care Bears!!!!!!

2 Samantha J.

Client Served

Rating: 5

Cranio care bears are amazing!! They sent us a care package to Mexico, the package arrived one day before the surgery, all the stuff in the package was perfect, and the prayer chain made us feel so special in every way, Thank you cranio care bears!

2 Chrissie2

Client Served

Rating: 5

We love Cranio Care Bears. We received a care package before our daughter's surgery and it was wonderful. They try to provide some necessities for the hospital stay and some personal, encouraging, and thoughtful items for the child and parent - support and hope in a box. Beautiful.

Client Served

Rating: 5

Cranio Care Bears helped my child and I get through a tough time by making it a little brighter and to know others are out there!

Previous Stories
3

Client Served

Rating: 5

I received my son's care package before his surgery and it helped tremendously during our stay at the hospital. Not only during, but as we were leaving the hospital, they did not have a cap to fit over his head at discharge, but thankfully our care package did!!!

1 Martina S.

Client Served

Rating: 5

Cranio Care Bears is a cranio parent's dream. They are personal, geniune, and super caring. Their care packages are sweet, convenient and helpful, and they offer a TON of support in any way possible. I love that my son and I can also order clothing and other items to bring awareness! CCB is wonderful and I have never had a less than perfect interaction with them!

1

Client Served

Rating: 5

Cranio Care Bears, what a wonderful human initiative! To parents awaiting surgery of their precious children, Cranio Care Bears send packages with carefully selected items that will be needed in the first couple of post-surgery days. Each of the items - hand made baby cap, colorful blanket, baby slippers or lip conditioner and socks for mommy - is a token of care of mothers who have been there, who know from their own experience what are parents whose children are going through a craniosynostosis surgery going through, both physically and mentally. Thank you again for sending my son a simple yet important package as a sign of human care that lacks so much these days...it felt like it was a package send from a dear cousin living far away, and yet knowing what we need and caring for us...You are really great!

1

Client Served

Rating: 5

A few days after my daughter was diagnosed with lambdoid and coronal synostosis I was so lost and fearful. While searching on the web I found Cranio Care Bears and immediately found comfort in knowing that their was a non-profit that truly cares about our little ones. Finding other families stories on their website that were on the healing side of the process of surgical correction provided me with such comfort. A few weeks before my daughters surgery I requested a care package for the hospital. When it came in the mail I was incredibly touched and the products that were provided were just what i needed to take with me while we stayed in the hospital for 5 days. It was one of the toughest days of my families life and definitely for my little Dyllan, but i new that we would get through it because I saw other families through Cranio Care Bears that had beautiful success. They do Gods work and I am eternally grateful. I will never forget looking up at Dyllan's prayer chain and thinking about the people that were behind the prayers. It gave such comfort. I still wear my fuzzy pink socks that were provided. Dyllan wore her Carters sunsuit until just a few weeks ago in California. God bless Cranio Care Bears for all of their love they show to all of our families that face this scary process.

1 Tanya4

Client Served

Rating: 5

My twin boys were both diagnosed with Craniosynostosis. Cranio Care Bears provide much support via a care package but also through messaging, their Facebook group and website. This group is wonderful and and is run with much love and very organization. They assisted us so much in our journey. Thank you!

1 Kimberly22

Client Served

Rating: 5

Cranio Care Bears is an amazing organization. We were so thankful to have found them when my daughter Ellee was having her surgery to repair her cranial synostosis. Another mom told me about them, and even though we were in surgery at that moment, they still sent her a care package and made sure to pray for her and support us through the recovery time. Thank you all so much for what you do! May God continue to bless this ministry!