Cranio Care Bears offered us a tremendous amount of support at a time when we felt very much alone. Having a child diagnosed with a relatively rare condition is very isolating and it was so nice to have a group pull us in and offer support. The care package they sent for our daughter was a bright spot at a challenging time - it was so nice to have that extra support!
This group is amazing. We found out that our one month old son needed surgery in less than a months notice for something we had never heard of. This group helped educate us, connect us to a community of others who have been through the same thing and to top it all off, sent us the most thoughtful surgery care package that has me crying tears of joy that there are strangers out there willing to help support those in need without any asks back. I am so grateful and they have inspired me to pay it forward. XO
This group helped up get through the most difficult time in our child's life. they went above and beyond what I thought with their website and support package we felt more prepared for our difficult journey. I emailed question about recovery after the fact and was responded to within the day! I love cranio care bears!!
With something so stressful going on with my baby it was extremely comforting to have this care package arrive in time to make me feel prepared, comforted and not alone. These packages are put together by people who have been in my situation, they understand. I can't thank them enough!
A beautiful group who send love, help and care to so many.nothing is worse than laying your baby. Into the arms of a surgeon. They sent my grandson a care package free of charge all the way to Australia, filled with toys clothes, prayers and thing for mum too . I was so impressed I reimbursed them the money for postage and have donated in other ways too. They have a book that I have purchased to help my grandson and his big brother can understand craniosynostosid. They are always available with advice.n
When my daughter was diagnosed with craniosynostosis, I researched everything I could on it. I finally found craniocarebears! Through them I was able to see other people's stories and talk with them about their experiences! The creators of this organization kept in contact via email (without automated replies!) which meant so much more getting to know them on a personal level. Their care package meant so much to my daughter and me. The items were everything we would need at the hospital along with items to make my daughter smile in a not so happy time. Everything about this organization is wonderful and they will always hold a special place in our hearts! They are such great people with big hearts!
Cranio Care Bears is an awesome organization. When my son was diagnosed with cranisynostosis they mailed me a care pack with some many useful things. I felt like I had a great support system thatnks to them.
My daughter was diagnosed with sagittal craniosynostosis at 3 months old. i came across this charity while trying to find some info which is very scarce.As us cranio moms know it is very hard to find information and support and this organization is doing just that, offering valid information to the anxious parents and showing that someone out there genuinely cares and is here to offer support and so much more. I personally know nobody that has gone through what i am with my child so real support is hard to find. These two woman are truly amazing. I am very appreciative!
When our son was diagnosed with sagittal craniosynostosis the day after he was born we were completely overwhelmed and distraught. We found Cranio Care Bears online and that was the beginning of feeling like we were not on this journey alone. Their website had success stories that made us feel supported and loved. Our son received his Cranio Care Bears package 10 days before his surgery and it brought us all to tears with the amount of generosity and caring that went into the package. It had clothes, blankets, toys, snacks for us, chap stick, and many more items. Most amazingly it included hand written ribbons that formed a beautiful prayer chain that we could place on our sons bed as well as advice on what to pack. They really go above and beyond and the love they spread is amazing.
Our son was diagnosed with Craniosynostosis, but we were pretty sure that was what was going on before the diagonisis through our own research. We found Cranio Care Bears and what a great organization it is! The support they give to families during such a stressful and scary time is invaluable. They make it so easy to donate back and when you do it, you know exactly how you are helping others who are in the same boat as you!