Cranio Care Bears

Rating: 5 stars   98 reviews

Issues:

Location: PO Box 464 Mead CO 80542 USA

Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.
Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.
Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.
Direct beneficiaries per year: 500-1,000
Geographic areas served: Worldwide
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EIN 45-1741139
303-652-7795
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

Cranio care bears is fabulous. We have found great comfort from them in our sons diagnosis of metopic cranio, unfortunately here in the UK we don't have many support groups for this little unknown/undiagnosed condition. We have made many new friends and have found much support through you guys. Thank you so much. From the Goss family in the UK.

If I had to make changes to this organization, I would...

Don't change, please stay as you are!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

Genuinely caring people who like to help babies going through surgery for Craniosynostosis and their families. What an awesome organization.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

there are no words to describe just how great this organization has been. They are truly caring and very sensitive to those facing cranio surgery.receiving a care package from this non-profit organization was definitely life changing and got us through one of the most difficult things and our lives.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Cranio Care Bears provides information, support and care packages for infants/children (and their families) going through surgery for Craniosynostosis. It is a common, often undiagnosed, condition and it's important for folks to be able to find support. My son went through this. It's not an easy time for anyone. CCB is there with kind words, support and awesome merchandise (proceeds go to care packages).

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

my daughter was diagnosed with craniosynstosis and i was at a loss where to look for genuine help - my sister found the cranio care bears and requested a care package for us which was amazing and so so thoughtful - particularly the prayer chain. All the items were really well thought out and just made me smile, as well as my older daughter who was convinced the package was for her (she ate the candy) and she enjoyed 'sharing' things with her sister in hospital!
we follow all their posts on facebook and their website and the stories form other parents are really helpful, just knowing other people are going through the same as you is calming

If I had to make changes to this organization, I would...

none

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

2 people found this review helpful

Cranio Care Bears is amazing! Our son's surgery was scheduled so fast (1 week notice), I was scrambling online doing research and found this organization. I reached out to them for a care pakcage and never imagined it would make it in time... but it did!!! It was exactly what I needed to make it though - especially the prayer chain. That lifted us all up and got us through the worst experience of our lives. I can't tell you how much it helped knowing there are complete strangers out there that had gone through this and cared so much about us! They are the BEST!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

The day our doctor told us our 3 month old son had craniosynostosis it felt like my world was crumbling. I couldn't even say the word, let alone understand what it meant for our family! Finding Cranio Care Bears was a true gift - almost immediately we began to understand that we would make it through this. It was going to be difficult, for sure, (and it was!!!) but the testimony of so many others that our beautiful boy would be just fine was lifechanging. The love of total strangers to send us a care package full of thoughtfulness and prayers was a true gift. I loved hanging the prayer ribbon over little Luke's crib in the hospital - so many people remarked on how special it was, and I loved being able to tell them how many people were praying for him - including all the network from CCB! Thank you!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

2 people found this review helpful

Cranio Care Bears provided my them 5 month old daughter a wonderful care package for her cranio surgery. The ladies also provided much needed and greatly appreciated support to me during and after surgery. They are awesome. My daughter is almost 6 months post op and still uses the blankie they provided her in her care pack.

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

2 people found this review helpful

Thank you Cranio Care Bears for your help getting us through our surgery. Cranio Care Bears are an amazing organization, with members that truly care about what they do to help. The gifts that we received helped us understand that the organization knows what they are doing and has been in our shoes. From the stress ball that we held during surgery to the toiletries that we forgot because our mind was somewhere else. The prayer chain that we received still hangs in our daughter’s room. Summer was so helpful helping us understanding next steps. It was wonderful to have her visit us in the hospital. Thank you for everything.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

3 people found this review helpful

When my son had a 7 hour cranial surgery last month, Cranio Care Bears sent us the most wonderful care package. It made such a difference with our hospital stay. There were snacks and toiletries for us parents, and there were little toys and kid toiletries for my son. There was a handmade hat for him and a scarf for me, and a really cool "tough guy" pj set for him. We received a prayer chain with messages on each ribbon link, and all our nurses commented on the wonderful chain. When our family was feeling stressed and miserable, this packaged helped us remember that people from around the country cared about our son and were sending us love and prayers. It gave us strength to make it through a tough time. Thank you, Cranio Care Bears!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

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