Birth Defects & Genetic Diseases,
Children & Youth,
Children & Youth Services,
Patient & Family Support,
Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.
Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.
Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.
Direct beneficiaries per year: 500-1,000
Geographic areas served: Worldwide
Cranio Care Bears was there for me for support and they sent my family a wonderful care package. It was a difficult time and when a mother is told your child will have to have surgery for crainiosynostosis- the world around you stops. After that I went on the web to research what I could to better understand what was about to happen to my little baby girl and how will this impact my family. Cranio Care Bears was teh first web site I came across and then i was forwarded to others. This is the most caring organization and I dont think they will ever know how they helped me.