Cornelia de Lange Syndrome Foundation, Inc.

Rating: 4.98 stars   40 reviews

Issues: Health

Location: 302 West Main Street #100 Avon CT 06001 USA

Mission: Reaching Out, Providing Help and Giving Hope.

Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.
Geographic areas served: United States
Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

2014 Top-Rated Nonprofit
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More Info

EIN 06-1057497
800.753.2357
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Community Reviews

Rating: 5 stars  

Thank you so very much for all that you have done to help me get the word out about CdLS. I have never heard of it until my niece Haven Ray was born with it 5 years ago. And now I'm trying to get as many people aware of it as I can. I also do lots of fundraisers to raise money for the foundation, every little bit helps. Im so glad that the foundation was here to help my niece and her family during all of her surgeries and everything she has gone through. They really provide the families with so much information. Thanks again. Denise Ray*

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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