Cornelia De Lange Syndrome Foundation, Inc.

Rating: 4.96 stars   51 reviews

Nonprofit Issues:


302 West Main Street #100 Avon CT 06001 USA


Reaching Out, Providing Help and Giving Hope.

Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.

Geographic areas served:

United States


Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

2015 Top-Rated Nonprofit
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Reviews for Cornelia De Lange Syndrome Foundation, Inc.

Role: Client Served
Rating: 5 stars  

The CdLS Foundation has helped my family by bringing families affected by CdLS together, by providing support at any time, and by funding important research for a rare condition that does not get a lot of attention otherwise. They are personable and knowledgeable and encouraging. Thank you!

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