Cornelia De Lange Syndrome Foundation, Inc.

Rating: 4.98 stars   40 reviews

Issues: Health

Location: 302 West Main Street #100 Avon CT 06001 USA

Mission: Reaching Out, Providing Help and Giving Hope.

Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.
Geographic areas served: United States
Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

2014 Top-Rated Nonprofit
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More Info

EIN 06-1057497
800.753.2357
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Community Reviews

Rating: 5 stars  

The CdLS Foundation has helped my family by bringing families affected by CdLS together, by providing support at any time, and by funding important research for a rare condition that does not get a lot of attention otherwise. They are personable and knowledgeable and encouraging. Thank you!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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