This is an amazing group that has given us so much more information than we have ever received from any medical professional. Our ENT is wonderful but we found him after reading the stories of other LM families and deciding that we needed to speak up at the pediatrician's office. We are grateful for the support shown to us through their wonderful facebook page as well as a very kind care package we received before a surgery. This is a nonprofit that truely supports it's cause.
My daughter was diagnosed at 4 weeks with severe LM. No Dr's here could tell us or help us. They kept telling us to wait to see the ENT. This website has provided so much insight on everything. This was my main source to educate myself and others on LM. We had 2 supras done and she is now thriving. Our journey of LM is not over but I know I have a group of others to support me and understand me. That right there is the most powerful tool I could ever ask for. Thank you Stephanie and all the Coping with LM inc. team for answering so many questions and giving me support through our toughest battles.