Coping With Laryngomalacia, Inc

Rating: 4.98 stars   125 reviews

Address:

PO 313 Port Monmouth NJ 07758 USA

Mission:

to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results:

Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics:

families worldwide

Direct beneficiaries per year:

over 1,000 families

Geographic areas served:

Port Monmouth, New Jersey

Programs:

24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

2016 Top-Rated Nonprofit
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More Info

www.CopingWithLM.org

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Reviews for Coping With Laryngomalacia, Inc

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Role: General Member of the Public
Rating: 5 stars  

Invaluable support at a time when we were thrown into the unknowns of a airway defect. Having never even heard of LM, TM, BM, GERD, supra, aortapexy someone was always there to offer support and advice and 16 months in I feel now I may even be able to offer some support to new members starting the journey.
This organisation allows me to do that and they ask nothing in return. Sally

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

When my son was diagnoses around 10 days old I was terrified. The first doctor we saw didn't offer much information, my family has no idea what it was and just commented on his scary my baby sounded. I found this group and finally found the information I needed to help him, found him a specialist, found the support I needed to care for my man! This is a great organization!

 
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Role: General Member of the Public
Rating: 5 stars  

3 people found this review helpful

My son was diagnosed with LM at birth. We first were told that it was a moderate case; however, by week three he started having trouble breathing and eating. We went back to the doctor and were told again not to worry he will grow out of LM and to just "work harder" to feed him. This just didn't feel right - my son was in distress while breathing and would barely eat a couple ounces at a feeding.
I started doing my research and came across this non-profit website and it was a LIFE SAVER for my son. I learned more about LM and also found another ENT Doctor through the website. We eventually made an appointment with this new ENT and he ultimately did surgery on our son. He is now thriving and breathing and eating normally. It is a miracle. Because of this site I was able to get information and act accordingly. It changed our lives and my sons life forever. Forever grateful.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I'm a nurse, so I should "get it," right? Well, a medical background gets all but forgotten when it's *your* baby, let me tell you. Finding this group at the beginning of our journey has been a Godsend.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

I had no idea what was wrong with my baby girl and at a month old she stopped breathing, went blue, limp and foaming out of her mouth. I will never forget that moment. We learned she had Laryngomalacia I was terrified and looked every place I could for support I found Coping for Laryngomalacia after the fact and after her surgery but it's been amazing to talk to moms who have been there or be support for someone new going through what we did. This group has been a life saver and I'm so glad I found it. I'm so glad there's a place you can go to vent or tell something exciting or terrifying but you can because these moms know.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My daughter was diagnosed at birth. We felt so alone and confused until we found Coping with Laryngomalacia Inc. They have helped us so get through some of our most difficult times. I have connected with so many other mommies dealing with LM. The support we've received has been overwhelming!

 
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Rating: 5 stars  

1 person found this review helpful

If I didnt find this company I would be lost. My son was diagnosed at birth. It ended up being in the life threatening category so he needed immediate surgery at the age of two weeks old. He is now my 8 1/2 month big boy

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

CWL has provided me with so much knowledge and support since my little one was diagnosed with LM. They provide parents with the the feedback they need to take care of our precious gifts. They have truly gave me a piece of mind that I would not have had without them.

 
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Role: General Member of the Public
Rating: 4 stars  

I have found this page and fb page so helpful. My son was diagnosed at 8 weeks and is now 8 months. ♡

 
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Role: General Member of the Public
Rating: 5 stars  

I am so blessed to have found this organization! Nobody really understand but all of you on here. We all have different experiences with our little ones but for some reason we all connect and are able to comfort and support and give advice. I am truly thankful for all the help on here.

 
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