Coping With Laryngomalacia, Inc

Rating: 5 stars   78 reviews

Issues:

Location: PO 313 Port Monmouth NJ 07758 USA

Mission: to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.
Results: Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!
Target demographics: families worldwide
Direct beneficiaries per year: over 1,000 families
Geographic areas served: Port Monmouth, New Jersey
Programs: 24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!
2015 Top-Rated Nonprofit
Write a Review

See How $25 Can Help

Invite people to share their experience with this nonprofit!

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Community Reviews

Rating: 5 stars   Featured Review

1 person found this review helpful

I found Coping With Laryngomalacia Inc one night as I layed in my bed with an empty bassinet next to me. My daughter was stuck in the NICU with some condition I could not even pronounce! I read stories and asked questions and then asked more questions, there was always someone to answer, even in the middle of the night. My daughter is 15 months now, if it was not for this page I would have lost my sanity. She still struggles with LM everyday, and I am reassured because I know there is a caregiver out there somewhere who is ready and willing to support me in my time of need and I am ready to do the same for them!! Thank you CWL for helping my daughter and I survive LM.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My son had severe LM, severe GERD, and severe sleep apnea. If it wasn't for Coping With Laryngomalacia , I'm not sure how I would have dealt with these issues. This organization helped me and my son and our family through a difficult time. Once again Thanks to this wonderful organization.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This site allowed me to acquire a great deal of information in getting my daughter a diagnosis and a plan of action. Plus it is a great support system for parents and caregivers.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Five years ago we received a diagnosis I could barely pronounce. CWL has given me support, advice and friendships. I can't thank them all for what they have done for our family.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My son was diagnosed with LM at 2.5 weeks old, my husband found this facebook group and shared it with me. My son has also since been diagnosed with TM at 8months old, has a trach since 1.5 months old and a g-tube. The support and commitment from the other parents on this page and from the administration is outstanding. You don't feel alone and feel like you have people that understand what you are going through. It has helped me tremendously in the last year that my son has been going through the roller coaster of diagnoses and OR dates, surgeries, and just life in general. Thank you for all you do Coping with Laryngomalacia!!!!

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I was at a loss when my child was diagnosed with lm. I had no clue what to expect and felt completely helpless, afraid and alone. All I could do was cry as I listened and watched my newborn constantly gasping for air! I found this organization one night as I was trying to research what Laryngomalacia was exactly. I found very little information until I found this organization! As I read of other families and the struggles, I realized my child and I were not alone in this fight. This organization gave me the education and strength to keep going forward in this battle. I am beyond thankful, because of this organization I have learned to do exactly as it says and that is to take a deep breath and cope!

Was this review helpful? 
Rating: 5 stars  

This site is amazingly helpful for my wife and I, my daughter was diagnosed with LM at 4 months old and it was nice to have the help and support from others who we're going through the same issues.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My daughter was 12 days old when I first heard LM. I knew something was wrong, but no one believed me. I finally rushed her to St. Chris ER when I realized this baby needed help. As a worried 1st time mother, I searched the internet for hours, days, weeks. Finally. I found Coping with LM. There were other moms who could relate. I vented my concerns & questions quite frequently. The outpouring of support from moms who didn't know each other from Eve, was (and is) nothing short of amazing. We were also part of the formula program. Such generous people. We couldn't be more grateful for this organization. Who else can we turn to at 4am who knows exactly what we are going through? THANK YOU!
Mary Elliott (philadelphia)

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This group has helped me so much navigating through my child's condition! Great people great advice and it deserves recognition!

Was this review helpful?