Coping With Laryngomalacia, Inc
Rating: 4.97 stars 115 115 reviews
PO 313 Port Monmouth NJ 07758 USA
to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.
Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!
Direct beneficiaries per year:
over 1,000 families
Geographic areas served:
Port Monmouth, New Jersey
24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!
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Reviews for Coping With Laryngomalacia, Inc
1 person found this review helpful
I felt so alone once my son was diagnosed with laryngomalacia. I could barely pronounce it, let alone grasp all of the side effects, medications, surgical routes etc that are associated with this airway defect. Coping with Laryngomalacia Inc answered all of my questions, provided a network base that allowed me to connect with other parents in the same situation, and best of all: gave us hope that he would improve and was a strong pint-sized POWERHOUSE!
I don't know what we would have done without CWL.
Our son was diagnosed with laryngomalacia at seven weeks old, and we had no idea what to expect. No one we knew had ever heard of it.
Because of CWL, we learned not only what to expect and how to help our son, but how to advocate for his needs. On their page, we found the support we needed to get through this dark period in our lives. Our son - and our family - is thriving because of CWL.
This site and group has provided us with lots of information and guidance since our lo was diagnosed.
They were amazing to my Superman when he went through his surgery not only did I have all kinds of encouraging words they sent us a wonderful care package I still have the card they sent Hunter and the card they sent me in our package! Hunter loves his Lu the Lamb to this day he still cuddles him! :)
I found the Coping With Laryngomalacia organization one night after my son was diagnosed. The organization has been so helpful as well as the Facebook group. I am so thankful to have found a place where other moms are going through the same thing and can help me and give advice!
So grateful for the support of this organization.
Thankful for coping with LM! When my newborn was diagnosed I remember feeling alone,confused and exhausted. Since coming across with this program I've been able to connect with other parents, find useful tips and give my experience with other families.
Thank you so much for always being there for the rough and best times.
I love this foundation. The founder is an amazing woman and i feel like i have a great amount of support since i have found Coping with LM. They are there when i don't want to do next, they have a great advice.
Thank you for all you guys have done.
The day I brought my baby boy home I knew something wasn't right about his breathing. When they told me my baby needed surgery my heart shattered. I could barley even pronounce the air way defect. I looked for answers and not only did I find them answers I was looking for but I also found comfort. Comfort in knowing I'm not alone. I had a support system! A group that actually knew what I was going through. I cried like a baby when I received my care package. All this darkness that surrounded my family and we got this piece of light. A little reminder that it will be okay! We will get through this and my baby will breathe easy when this is over with. Thank you for everything!!!!
There aren't many resources out there for laryngomalacia. This was my go to group when my son was first diagnosed. They have been so helpful through the diagnoses, treatment, surgery, and recovery.