Coping With Laryngomalacia, Inc

Rating: 4.98 stars   125 reviews

Address:

PO 313 Port Monmouth NJ 07758 USA

Mission:

to provide support, strength and education for families coping with LM, TM and BM. Located in Port Monmouth, New Jersey (USA)...serving families worldwide.

Results:

Thanks to our amazing donors, we have sent close to 500 care packages all through out the USA, Canada, The United Kingdom, South Africa, Australia and The Netherlands!

Target demographics:

families worldwide

Direct beneficiaries per year:

over 1,000 families

Geographic areas served:

Port Monmouth, New Jersey

Programs:

24/7 online support Live online chats Breathe Easy Care Package Program Pint-Sized Powerhouse Grant Program Malacia MeetUps CPR training Breast, bottle & tube feeding support Tracheotomy tube education and support Awareness apparel and merchandise Education resources and more!

2016 Top-Rated Nonprofit
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More Info

www.CopingWithLM.org

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Reviews for Coping With Laryngomalacia, Inc

Rating: 5 stars   Featured Review

1 person found this review helpful

I felt so alone once my son was diagnosed with laryngomalacia. I could barely pronounce it, let alone grasp all of the side effects, medications, surgical routes etc that are associated with this airway defect. Coping with Laryngomalacia Inc answered all of my questions, provided a network base that allowed me to connect with other parents in the same situation, and best of all: gave us hope that he would improve and was a strong pint-sized POWERHOUSE!

 
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Rating: 5 stars  

I have 2 little ones with Laryngomalacia, one of which also has CHD and the journey has been so rough at times. Most new moms watch their babies breathe just because they are nervous that something may happen; however we watch our babies breathe because we know that the simple task of taking each breath is a struggle for them. CWL has been an amazing support through both of my children's medical journey and I am not sure where I would be without this amazing group.

 
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Rating: 5 stars  

2 people found this review helpful

We were diagnosed with laryngomalacia and had surgery scheduled one week later. We found this site. Not only did we find great resources, information, and support; we found d hope. They sent us a care package with a lovely blanket and Lou the lamb. We even got our package prior to our surgery! I can't express my gratitude for this nonprofit organization. We have been beyond blessed.

 
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Rating: 5 stars  

1 person found this review helpful

My son was dianosed at around 6 weeks old with LM. He had his very first surgery at almost 3 months old. Coping with LM has been a real life saver. They are always teaching out to help people that are dealing with LM. Not only is the founder a great woman but the members are awesome as well.

 
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1 previous review
Rating: 5 stars  

Great charity and a great group of people. They helped us understand what as happening to our child. We had the love and support of strangers, that have now become part of the family.

 
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Rating: 5 stars  

2 people found this review helpful

When my daughter was diagnosed with laryngomalacia at 7 weeks old, I felt alone and terrified. this past year has been challenging to say the least--from feeding and weight issues, reflux, numerous dr and specialist appointments and now finding out a week ago she will need to have surgery that we were originally told she would not need to have--however, the support and the community from Coping with LM has been incredibly helpful. We are so worried about her surgery and can't even imagine how her 14 month old mind is going to cope and understand this but our worries have been helped by the special and thoughtful care package that this organization sent her so she can have some comfort during her hospital stay. Coping with LM is a wonderful support network for us and I don't know how we would've managed this past year without their knowledge, resources, and support

 
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Rating: 5 stars  

1 person found this review helpful

I was so thankful to find Coping with LM after my daughter's diagnosis. I learned so much about her condition and knew what to ask her doctors. I am thankful to know we are not alone in dealing with this.

 
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Rating: 5 stars  

1 person found this review helpful

It's been a hard year and couldn't have done it without there support xx

 
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Rating: 5 stars  

1 person found this review helpful

My son was diagnosed at 6 weeks old with Laryngomalacia. After a poor sleep study, he was determined to need a laryngoscopy, broncoscopy, and supraglottaplasty. Within 6 days of getting our sleep study results, we were having surgery. I applied for a care package for my son and it arrived in 4 days, so he was able to take his blanket into surgery with him, and his ENT lived his special socks. My son enjoyed his stuffed lamb and it comforted him throughout the scary ordeal. We are forever grateful to this group for its kindness and support

 
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Rating: 5 stars  

1 person found this review helpful

I don't know what we would have done without CWL.
Our son was diagnosed with laryngomalacia at seven weeks old, and we had no idea what to expect. No one we knew had ever heard of it.
Because of CWL, we learned not only what to expect and how to help our son, but how to advocate for his needs. On their page, we found the support we needed to get through this dark period in our lives. Our son - and our family - is thriving because of CWL.

 
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Rating: 4 stars  

This site and group has provided us with lots of information and guidance since our lo was diagnosed.

 
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