This is an amazing group that has given us so much more information than we have ever received from any medical professional. Our ENT is wonderful but we found him after reading the stories of other LM families and deciding that we needed to speak up at the pediatrician's office. We are grateful for the support shown to us through their wonderful facebook page as well as a very kind care package we received before a surgery. This is a nonprofit that truely supports it's cause.
Coping with LM has allowed us to feel normal again. It is great to know that we are not alone at any time of day or night, and we are supported on the Journey we never thought we would be taking. Our daughter Keiley has received both a Chibebe Snuggle Pod and a care package through Coping with LM's great support programs. Keiley lived in her Snuggle pod which assisted her breathing until she started crawling, now she uses it as a bean bag to "Chill". The care package was a great comfort while Keiley was in hospital on a respirator after surgery. Knowing that she had her own blanket and gown, rather than relying on the hospital ones which can be so scratchy from years of use! I can not compliment the work of Stephanie and her family enough for what she does for our Babies, this is in no way enough!
When my daughter was diagnosed with moderate LM I was so scared. Coping With LM helped me realize I am not alone and educated me on what bumps in the road we may encounter and how to be prepared. I don't know what I would do with out this organization!!
My l.o. is 8 months old and was diagnosed with laryngomalacia at 4 months after being misdiagnosed a couple of times. This group has been a fabulous resource to me and I only wish I found it sooner. They are truly helpful and do amazing things.
I am so grateful for this organization! After getting our sons diagnosis at 12 weeks I didn't know where to begin. This organization has educated me and my family and has provided us with a special care package for our sons upcoming sleep study. We are so thankful for y'all!
Coping with laryngomalacia, inc has been very helpful in the past few weeks as we just found out our child has laryngomalacia. The resources have been very helpful to help us learn and understand her defect.
This group was our main resource when our little guy was diagnosed with LM. We were told by all the Drs that we had seen we just had to wait things out and there was nothing we could do. Reading other parents of LM babies' stories helped us find what worked best for us while avoiding a lot of trial and error. So glad this exists!
Your organization helped our little family so much in the beginning of our journey. From the care package before surgery, up to the countless comments and support, all have helped immensely. Our daughter is now 2 and doing better. But we needed help, guidance, and support during such a hard and scary time. Coping with lm was there! Thank you!
Coping with laryngomalacia has been there for us from day one. When i first researched the diagnosis while waiting on a scope in my ents office... the site popped up. I read the letter steph wrote to the new parent and just cried... my perfect little squeaky baby needed surgery... the sqeaks weren't cute, they were life threatening. No one understood, and i felt like my husband and i were all alone. Coping with lm has taught me so much. Whenever I'm worried about my son's health i go to the site, or the Facebook page to find answers. I am not sure how i would have gotten this far without coping with laryngomalacia!
We have found so much support this past year through this organization. Getting a diagnosis was one thing but finding out your son was of the few that would need surgery and have a year from he'll was another. Thank you for all of the support.
We were diagnosed with laryngomalacia and had surgery scheduled one week later. We found this site. Not only did we find great resources, information, and support; we found d hope. They sent us a care package with a lovely blanket and Lou the lamb. We even got our package prior to our surgery! I can't express my gratitude for this nonprofit organization. We have been beyond blessed.
I am so thankful for this non profit. As a mom of a LM and TM baby I look to their support on a regular basis. They are a great resource!