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September 14, 2014
1 person found this review helpful

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September 14, 2014
1 person found this review helpful

I found Coping With Laryngomalacia Inc one night as I layed in my bed with an empty bassinet next to me. My daughter was stuck in the NICU with some condition I could not even pronounce! I read stories and asked questions and then asked more questions, there was always someone to answer, even in the middle of the night. My daughter is 15 months now, if it was not for this page I would have lost my sanity. She still struggles with LM everyday, and I am reassured because I know there is a caregiver out there somewhere who is ready and willing to support me in my time of need and I am ready to do the same for them!! Thank you CWL for helping my daughter and I survive LM.
March 13, 2015
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March 13, 2015
1 person found this review helpful

My son had severe LM, severe GERD, and severe sleep apnea. If it wasn't for Coping With Laryngomalacia , I'm not sure how I would have dealt with these issues. This organization helped me and my son and our family through a difficult time. Once again Thanks to this wonderful organization.
March 11, 2015

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March 11, 2015

I found coping with laryngomalacia while trying to find out what this malacia thing was.. I was feeling lost and hopeless until I found them.. The support and help I got from them was amazing. When my baby was due to have surgery they immediately sent us a wonderful care package, not only for my baby but for me even tho I didn't ask for anything for myself... I would have been lost without Coping with LM!
March 11, 2015
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March 11, 2015
1 person found this review helpful

This site allowed me to acquire a great deal of information in getting my daughter a diagnosis and a plan of action. Plus it is a great support system for parents and caregivers.
March 11, 2015
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March 11, 2015
1 person found this review helpful

Five years ago we received a diagnosis I could barely pronounce. CWL has given me support, advice and friendships. I can't thank them all for what they have done for our family.
March 11, 2015
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March 11, 2015
1 person found this review helpful

As a new mom I was terrified when my son was diagnosed with LM at birth. I found coping with laryngomalacia inc and finally didn't feel alone. My son is almost 2 now and doing great.

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2015

March 10, 2015
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March 10, 2015
1 person found this review helpful

My son was diagnosed with LM at 2.5 weeks old, my husband found this facebook group and shared it with me. My son has also since been diagnosed with TM at 8months old, has a trach since 1.5 months old and a g-tube. The support and commitment from the other parents on this page and from the administration is outstanding. You don't feel alone and feel like you have people that understand what you are going through. It has helped me tremendously in the last year that my son has been going through the roller coaster of diagnoses and OR dates, surgeries, and just life in general. Thank you for all you do Coping with Laryngomalacia!!!!
March 10, 2015
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March 10, 2015
1 person found this review helpful

I am a respiratory therapist with two daughters diagnosed with LM. I am so thankful for the site!
January 15, 2015
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January 15, 2015
1 person found this review helpful

I found this site trying to find information about laryngomalacia as I had heard about and suspected my daughter had it. Prior to her diagnosis, the site was helpful is helping me understand the diagnosis process and what types of questions to ask the doctors. After her diagnosis, it has been a source of support and information. We are very appreciative of the service of this organization, as well as the effort they are making in helping to bring awareness to larnygolamacia!
January 11, 2015
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January 11, 2015
1 person found this review helpful

Wow what a fantastic organisation! I felt so lost with my sons diagnoses and had no one that understood what my partner and I were going through with our son. The night I found the Facebook page I was in tears. I felt like he world had been lifted off my shoulders and to know that there were other parents like me made me feel such relief.
My son is getting surgery this month and we just recieved his care package. The thought of my son going into surgery is dreadful but the little surgical gown, lu the lamb and the beautiful blanket makes the thought so much more positive! Nate loves his lu the lamb and runs around the house saying lu lu. We will be donating to this beautiful organisation so that many more family's like ours can receive a little ray of sunshine at such a dark time in there lives.
Thanks you so much coping with LM
Leah boorn & Michael and Nate Blakey
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