Congenital Heart Information Network

Rating: 5 stars   12 reviews

Issues: Health, Cancer

Location: PO Box 3397 Margate City NJ 08402 USA

Mission: The Congenital Heart Information Network, a 501(c)(3) organization created by the mother of a child with complex heart defects, currently publishes the Congenital Heart Disease Information and Resources Web site. Harnessing the power of the Internet as an action-oriented health education and awareness tool, we are one of only a handful of consumer information and support resources for Pediatrics currently available on the Internet that has a commitment to accuracy and reliability, the guidance and assistance of health professionals, and the active participation of our intended audience.
Programs: Parent/Patient Matching Services Online support systems Financial assistance to families/individuals in crisis Funding for local affiliated support groups Printing and distribution of informational materials CHD Awareness Week materials and local activities
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EIN 23-2875927
609-822-1572
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

TCHIN was the first organization that I was introduced to after giving birth to my first son who had a complex congenital heart defect called Hypo-Plastic Left HEart Sysndrome. TCHIN's website had all the information that I needed to help me through my journey and to connect with others in the same position as we were. I don't know what I would have done without TCHIN back then!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

CHIN has been serving the community impeccably for about 15 years and has always been there for me when I needed information based on adult cardiology. I admire their groundbreaking use of patient-professional relationships which has helped many others besides myself !!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

When my son was diagnosed with a severe heart defect, we were devastated. It was not until I found this site which offered support, information, and so much more, that I did not feel alone. As the years went on, my son developed another rare condition because of his Fontan heart surgery called PLE, and when i notified tchin.org that families dealing w/ PLE were dealing w/ unique situations and there really was no support groups, they added a separate PLE support group- When a loved one-especially a child- has a rare medical condition, it is devastating-knowing others are there 24/7 for information, shared experiences, and support helps in ways words cannot even begin to express. This site is a blessing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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