CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION
Our son was born with a complex congenital heart defect in 2008, and we found this organization through Children's Mercy Hospital in Kansas City. This organization provides support meetings every other month, carepackages to inpatients, and an online support system through email. CHD Families also organizes an annual picnic and team for the Kansas City Heart Walk. We have received invaluable support and information from this group, which has helped us be better parents/advocates for our CHD child.
I've personally experienced the results of this organization in...
so many ways. My husband and I have gained a lot of useful information from the support group. We have also connected with other heart families which provides emotional support.
What I've enjoyed the most about my experience with this nonprofit is...
connecting with other heart families.
The kinds of staff and volunteers that I met were...
very supportive because they, too, have loved and/or lost a heart baby.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?