Rating: 4.93 stars   15 reviews

Issues: Health, Cancer

Location: PO Box 46744 Kansas City MO 64188 USA

Mission: The Congenital Heart Defects Families Association is a Midwest not-for-profit 501(c)(3) corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals cards, care packages and comfort items for children undergoing cardiac procedures are the Association’’s main focus. Additionally, the Association functions to raise money and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead.We are the only support system in the midwest area for children with heart defects and their families. 
Geographic areas served: Kansas, Missouri and surrounding areas
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EIN 20-0391453
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Community Reviews

Rating: 5 stars  

11 people found this review helpful

I moved to KC from Chicago when my daughter (now nine) was one year old. She had just had a VSD repair. I felt so alone and like I didn't have anyone who was going through what we were. Later, I found out about CHD. I joined and my daughter and I have taken food to the hospital and walked the heart walk together. She does not like to draw attn. to her condition, so I follow the website. I am so happy for all the parents that have this great resource when they need it most. Every time I look at the website I cry... it takes me right back to the moment of her surgery. Valerie does an incredible job with this website. Any parent, or loved one with a child who has been through this will appreciate this great organization.

I've personally experienced the results of this organization in...

see above...

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?


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Rating: 5 stars  

8 people found this review helpful

Finding out that your child had a heart defect can be very isolating and scary. Being able to connect with other parents who have been there as well as the care packages when your child is having surgery is such a comfort. We live in central Kansas and that type of support isn't available here, but with the KC Groups help, we now have the benefit of support in our area as well as support in the KC When we are there.

I've personally experienced the results of this organization in...

Helps connect with other parents who have been there.

If I had to make changes to this organization, I would...

More time and money to do more of the wonderful things we do for our kids, something we all need.

What I've enjoyed the most about my experience with this nonprofit is...

connecting with other parents.

The kinds of staff and volunteers that I met were...

All wonderful parents who really care about our families.

If this organization had 10 million bucks, it could...

Lead the way to beating CHD's

Ways to make it better...

I had only found them sooner!!! I spent the first 8 months on my own!

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


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