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June 25, 2011

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June 25, 2011

Those near and dear to my heart have suffered and lost their lives to this tragic illness. I believe that with further research and education, many lives would be saved.

The Great!

I've personally experienced the results of this organization in...

Watching those around me learn about the disease to identify and prevent.

Ways to make it better...

If I had to make changes to this organization, I would...

Solicit for government funding.

June 25, 2011

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June 25, 2011

The Colon Cancer Alliance for Research and Education for Lynch Syndrome has amazing volunteers committed to increasing Lynch Syndrome awareness. I'm proud to be affiliated with them.

The Great!

I've personally experienced the results of this organization in...

providing support.

Ways to make it better...

If I had to make changes to this organization, I would...

increase funding.

June 24, 2011

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June 24, 2011

I recently learned that my brother was diagnosed with Lynch Syndrome and reached out to CCARE for information. Both Drs. Sharon and Neil Perlman were extremely knowledgable and also very supportive. I'm very grateful for such a professional and helpful organization.











The Great!

I've personally experienced the results of this organization in...

getting informative and useful information and support.

Ways to make it better...

If I had to make changes to this organization, I would...

give more money so they can continue to do the fantastic work that they do.

June 20, 2011

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June 20, 2011

I became aware of Lynch Syndrome and its' impact on families about two years ago as a friend's family struggled with the loss of a loved one to colon cancer at a young age. Now related family members live with the ominous realization that they too may carry the genetic trait for this syndrome. I support fightlynch.org in its' goal to raise awareness about this genetic disease and to support research for a cure.

The Great!

I've personally experienced the results of this organization in...

their support to educate families about Lynch Syndrome and the high risk of uterine cancer and colon cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

try to publicize the implications of Lynch Syndrome in susceptible populations and encourage genetic testing. Cancer testing must become a lifelong vigil for individuals with this genetic syndrome.

June 18, 2011

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June 18, 2011

My cousin died of Lynch Syndrome when he was 5 months old. His death was especially hard for us because we weren't entirely sure why he was taken from us; at this time we didn't know about Lynch Syndrome. Sixteen years later we finally got our answer, and now we can do something about it! My family is so grateful for C Care, and the chance to fight this syndrome, so that others won't have to suffer what we suffered. Thank you, C Care!

The Great!

I've personally experienced the results of this organization in...

See above.

Ways to make it better...

If I had to make changes to this organization, I would...

Increase funding.

June 16, 2011

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June 16, 2011

Lynch has impacted my very dear friend's life and has brought about loss that she shouldn't have had to experience. This non-profit was established to educate others so that progress can be made through early detection and research.

The Great!

I've personally experienced the results of this organization in...

Listening to presentations

Ways to make it better...

If I had to make changes to this organization, I would...

more publicity and better funding

June 15, 2011

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June 15, 2011

CCARE is a Wonderful non for profit that helped me understand and better educate my self as well as others in Colon Health.

The Great!

I've personally experienced the results of this organization in...

I was able to educate my self and find suport with this group.

Ways to make it better...

If I had to make changes to this organization, I would...

Have even more advertisement.

June 15, 2011

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June 15, 2011

Lynch Syndrome takes far too many lives every year. This organization has undertaken the daunting task of educating the public and the medical community of this inherited syndrome. Through education, people will be able to get the appropriate genetic testing that could help save their life.

The Great!

I've personally experienced the results of this organization in...

I have friends whose family are affected by this syndrome.

Ways to make it better...

If I had to make changes to this organization, I would...

Help them continue their work to get the word out.

June 15, 2011

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June 15, 2011

I am supporting Colon Cancer Alliance for Research and Education for Lynch Syndrome because it will help prevent the tragic loss of lives of too many. By educating the public, people will learn if they need to be tested for Lynch. A family history, exam and some tests can save a life, which might be yours. Please help yourself and others by supporting CCARE,

The Great!

I've personally experienced the results of this organization in...

I personally have friends who have a family history of Lynch.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to get the work out

June 12, 2011

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June 12, 2011

I wanted to help out with this organization because of the devastating effects of Lynch Syndrome that I have seen in the family of a close friend. Hopefully with education of the public and medical professionals, additional screening and genetic testing will lower the incidence and severity of cancers in people at risk.

The Great!

I've personally experienced the results of this organization in...

Increased awareness of Lynch Syndrome in friends and family.

Ways to make it better...

If I had to make changes to this organization, I would...

It is still just getting started.

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