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Nonprofit Overview

Causes: Health, Voluntary Health Associations & Medical Disciplines

Mission: The Cody Unser First Step Foundation is a global not-for-profit organization dedicated to raising research funds, public awareness and quality of life for those afflicted with all forms of spinal cord-related paralysis. The Foundation will also address the cause, rehabilitation, prevention and cure for Transverse Myelitis, and freely affiliate with other medical, charitable and corporate entities to achieve these goals.

Target demographics: CUFSF’s main focus is to raise awareness for TM and paralysis, to establish Quality of Life programs through scuba diving, and to push scientific research.  With the number of people affected by TM and paralysis rising, the demand for the programs and initiatives set in motion by CUFSF, and the benefits of our future plans for the foundation, will be reaching levels that we would have never imagined.

Geographic areas served: Global

Programs:

***Quality of Life: "Cody's Great Scuba Adventures" and "Operation Deep Down" these programs are designed to use Scuba Diving as a tool for therapeutic and psychological value to promote healing.***

***Awareness initiatives: Awareness is an important priority due to the sense of urgency when faced with an auto-immune disorder. This includes first responder support for auto-immune disorder patients looking for resources and help. As part of this initiative, CUFSF plans to continue developing and maintaining a concrete and user friendly manual and WEB Portal that provides access to disability information. (Visit www.cufsf.org, CUFSF’s Facebook and Twitter). We also use more traditional forms of creating awareness such as hosting and supporting industry related symposiums and conferences.***

***Advocacy initiatives: Advocacy influences the outcomes of public-policy and resource allocation decisions within political, economic, and social systems and institutions. Our goal is to ensure that decisions made by federal and state governments are aligned with the needs of the general public, especially those with spinal cord-related injuries advocacy is imperative.***

***Medical research initiatives: CUFSF intends to maintain existing partnerships within the medical field as well as encourage collaboration with new hospitals and biotech organizations to bring technology and research programs to the forefront. This initiative will develop opportunities for the disabled community to participate in clinical trials, new treatments/remedies, medicinal therapies and activity-based therapies. More importantly, to prevent secondary conditions, we must be a voice promoting proper health and wellness for overall preventative care.***

Community Stories

5 Stories from Volunteers, Donors & Supporters

9

Volunteer

Rating: 5

I met Cody in high school and still to this day look up to her as a role model. She is goal oriented and truly cares about helping others that are paralyzed and affected with TM. I went with her on a couple of trips around the country a few years ago where she spoke to, quite intimidating audiences I must say, about the importance of her organization in giving people with paralysis a chance to grow and learn. She is very well known in the State of New Mexico having spoken to the Governor about her wishes for the Foundation. She has also talked with President Bush as an advocate and a voice for disabled individuals. Wow! Everyone she has spoken to was touched by her story and wanted to help in any way possible. Amazing! She is a truly inspirational woman and has a passion to provide everyone with the opportunities they may be without if it wasn't for her Foundation such as scuba diving!

12

Volunteer

Rating: 5

After seeing the documentary on Cody (CODY: The First Step) I knew I wanted to help this organization flourish! Once you begin volunteering with the Cody Unser First Step Foundation you can't stop! This a wonderful organization to be a part of. The first time I had the pleasure of working with them was during one of their 'Discover Scuba' events. To see the smiles and sense of self each participant was getting back, regardless of their disability, is a feeling that will stay with me forever. This organization, the people involved and the people it serves are simply amazing!

15

Volunteer

Rating: 5

Been there from the beginning and this Foundation is driven by passion, pure love and honor from it's own goal to walk again and all those who share the same life hurdles. They race to win, not to come in second but to win. And winning is finding a cure , a way to be back on there feet again .

9

Volunteer

Rating: 5

This is a remarkable charity whose work touches so many lives in so many ways. Transverse Myelitis is such a mysteriously devastating disease and the Cody Unser First Step Foundation gives hope to people stricken with TM or suffering from any spinal cord injury that there will be a brighter tomorrow.

15

Volunteer

Rating: 5

The Cody Unser First Step Foundation is a role model for other charities when it comes to facilitating quality of life program - Adaptive Scuba Diving for the disabled. They created a dive team, trained two course directors, their programs are for the disabled person and a dive buddy of choice (family member, friend, caregiver), and they provide dive trips. Other adaptive programs focus just on the disabled person and once they're trained they don't have the support system to continue scuba diving. I volunteer weekly for CUFSF and I love the people I work with - they are truly heros for communities they help nationwide!