I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.
My daughter was born with LCDH. This organization helped us in many ways before she was born, and when she passed. Thank you all for what you do. Your hard word doesn't go unseen!
When our son was first diagnosed with CDH in 2002 the Cherubs organization provided us with support and education. We are grateful for all that they do to spread the word about CDH. Providing a way to connect families has also been a blessing.
I've not had a personal experience but I have a friend who's had to go through this. It's mentally exhausting and so scary for them. I believe this needs to be better known.
CHERUBS has been a wonderful support for my family after my daughter received her CDH diagnosis. They provide opportunities to connect with other families, provide information and resources and prayers.
This is our sweet baby Christian. He survived 40 days in the NICU at Children's Hospital in Dallas. He is our Angel and there is not a day that goes by that I do not miss him. ❤
A few years ago 3 little boys were beyond excited to welcome a little sister! "Our FIRST sister!" they happily exclaimed to anyone who'd listen. The day finally arrived and they anxiously awaited pictures of their "finally a girl". She was born a robust 8.6 lbs and 21" long, yet, layed on my belly
The silence was suffocating.
I was frozen with terror and could only repeat, "She isn't crying. She isn't crying." Thankfully nurses were able to get her responding. We knew something was off, but the nurse blew off all of our expressed concerns. We went home KNOWING something was wrong. A mere 13 days later we landed in the ER with our first baby girl in desperate trouble. Her oxygen had been at 80% for the first 13 days of her life, we'd found her not breathing several times each night, and she turned purple every time she cried. We heard the words Congenital Diaphragmatic Hernia for the first time in our lives. Words like she's stable at the moment, and emergency surgery were being flung at us faster than we could process.
It was harrowing!!
We were stunned to numbness, yet, wildly terrified all at once. We had no idea the long term implications to such a diagnosis. We were later discharged with NO warnings or long term information regarding a Diaphragmatic Hernia survivor. We muddled along for nearly 2 years with NO idea what was typical versus cause for concern.
We were alone.
It was a terrible way to try and provide what your baby needs. Then, one day, I stumbled across CHERUBS and found an entire community navigating the same path we were on. We were no longer alone. We had hope. We found wisdom. We found support from those who really get it. We found a second home! We're forever grateful for this amazing group of dedicated people.
Review from Guidestar
I became a member of cherubs a few months ago, I love the support and love you receive from everyone in this page, reading other families journeys and knowing that your not alone in this difficult road is a true blessing!!
Review from Guidestar
I love CHERUBS. My daughter has CDH and when I found out I was pregnant I immediately started the research. I really had to look no farther than CHERUBS. They sent me my tote and in it was all about what I was getting ready to go through what to expect. I am also part of the forums and this organization has become my new found family. Anytime I have had a question or needed advise, or even just someone to talk to CHERUBS has been there. I do not like CDH but I can say that out of a terrible defect I and my daughter Moriah have gained a new family. This family loves, supports but above all understands what I am going through as a parent and what she will go through as a survivor. Moriah will always be fighting CDH but at least with CHERUBS she will not be fighting alone. GO TEAM MORIAH! GO TEAM CDH! GO TEAM CHERUBS!!!!! Thank you all so much for everything. Our love always, Patricia and Moriah
Review from Guidestar