CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2015 Top-Rated Nonprofit
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EIN 56-1916661
919-610-0129
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Community Reviews

Rating: 5 stars  

2 people found this review helpful

I became a member of cherubs a few months ago, I love the support and love you receive from everyone in this page, reading other families journeys and knowing that your not alone in this difficult road is a true blessing!!

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

I love CHERUBS. My daughter has CDH and when I found out I was pregnant I immediately started the research. I really had to look no farther than CHERUBS. They sent me my tote and in it was all about what I was getting ready to go through what to expect. I am also part of the forums and this organization has become my new found family. Anytime I have had a question or needed advise, or even just someone to talk to CHERUBS has been there. I do not like CDH but I can say that out of a terrible defect I and my daughter Moriah have gained a new family. This family loves, supports but above all understands what I am going through as a parent and what she will go through as a survivor. Moriah will always be fighting CDH but at least with CHERUBS she will not be fighting alone. GO TEAM MORIAH! GO TEAM CDH! GO TEAM CHERUBS!!!!! Thank you all so much for everything. Our love always, Patricia and Moriah

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

My daughter was born with LCDH. I wish I would have found the support then I see now on cherubs. They are amazing! Always bringing awareness and supporting all the family's with positive messages.

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Review from Guidestar
Rating: 5 stars  

2 people found this review helpful

Breath of Hope and Cherubs were both there for me when I was pregnant with our daughter. I tell everyone to go to them and Global CDH for support along with other groups on Facebook. The best way to get through a CDH pregnancy is support! The more the better!

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

2 people found this review helpful

When our first daughter Chloe was diagnosed with CDH in utero at our 20 week scan, we felt lost and alone. We had no idea what CDH was, didn't know a soul who had been affected by CDH. Through the wonders of google search I found Cherubs, and boy am I glad I did.

Dawn, Cherubs founder, has been a huge support for us ever since. She supported us through our pregnancy, delivery, through losing out previous daughter and she has continued to do so ever since. We since established our own foundation which she has supported and so for any body to believe Cherubs is the only charity she supports is rediculous. In my opinion, without Cherubs there would have been no support for us, Cherubs started it all and continues to do an amazing job.

Through Cherubs I have met lots of wonderful people (many I now consider to be good friends) who have been affected by CDH. I love Cherubs, Dawn and Cherubs will always hold a special place in my heart.

If I had to make changes to this organization, I would...

None

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

In 2006 we had a baby boy born undiagnosed with LCDH, I had never heard of it and felt so very alone. My son Jordan passed away after 21 days on ECMO, I found CHERUBS after doing some online searching and it was a life saver. I had another son in 2007 also born with LCDH, Caleb and he too was not meant for this earth, I received so much support even if it was just over the internet. I was so broken after having one, but two? I must be the only one? No, I have found that there are many families that went through the same heartache that my family and I have. I would not have made so many friends, so many "partners in pain" if it was not for CHERUBS. I am saddened by the reviews that state how they feel about Dawn, I have never had any run ins with her and if I did it would not change the way I feel about CHERUBS. It is not called "DAWN" for a reason! CHERUBS is an organization that is made up of families of survivers and non, of researchers, volunteers and just amazing people who want to bring about awareness! So my review on CHERUBS is that if you have ever been through this horrible heartbreak or you know someone who has, or you just want to bring awareness to CDH then this is a wonderful group to be a part of. Please I ask one thing, I have pictures of my sons on CHERUBS and they do wonderful things in my sons memory...if you have a problem with Dawn take it elsewhere, please don't slander this Organization that has done so many wonderful things for CDH families

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Rating: 1 stars  

9 people found this review helpful

My son was born with CDH in 2011. Our hospital gave us information on both CHERUBS and Breath Of Hope. I never once felt like I got support from CHERUBS. When I started a page for my son Dawn started bashing me. I felt it was petty and self serving on her part. My goal at the time had been to spread awareness and give emotional support to other families affected by CDH. After her childish behavior, I with drew from CHERUBS and no longer would post about them or tell my friends and family to donate to them. I felt it better that way. A year later Dawn started bashing me again. She bashed my CDH awareness page and my personal Boutique because of their logos and names. She told everyone on CHERUBS facebook page that I was trying to profit off CHERUBS name. I couldn't believe how childish she was being. She out right attacked me. Dawn condemns all other CDH organizations that are not attacked to CHERUBS. She condemns those who use a cherub as their logo or the word cherub in any form. Never have any of my logo's looked ANYTHING like theirs, I wouldn't want anyone to mistake anything I do as associated with CHERUBS, an "non-profit" with a president who attack you if your not with her. The board of directors needs to monitor their president more. Its public record that she doesn't follow guidelines in following the proper paperwork. Who wants to support a charity where the president pays herself more than she donates to Research or families. Go to Guidestar.org and you can view CHERUBS IRS paperwork for yourself. And in researching I came along this little blog http://deceitfulnessofcherubs.blogspot.com/search/label/Dawn%20Williamson Shame on you Dawn for attacking people. Just because you don't have good intentions doesn't mean you have to try and discredit those who actually try to make a difference.

**I am NOT a chapter president. Paperwork for becoming a chapter president hasn't even been filed. Officially I am just a general member of BOH and supporter of their work. If Dawn bothered to do her homework she would be able to tell via IRS and the state of CA that there is no CA chapter as of yet. I fully support BOH. They are mature about their workings and don't try and conceal the true fact about their charity. They are there for parents who need them, like me, when no one else is.

If I had to make changes to this organization, I would...

Get a new president and obviously a new board of directors since the current one isn't monitoring their president.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A little

When was your last experience with this nonprofit?

2013

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Dear Chapter President of Breath of Hope,

Thank you for your comments, but we respectfully disagree with the entirety of your review. Please forward any proof of any public or private bashing of you, your charity, your personal business or your name to cpab@cherubs-cdh.org because we are unable to find one ounce of proof of your accusations. As a charity which has invested 18 years in our name and logo, we simply pointed out that any "cherub" items to do with CDH would not be official to our charity unless through our sites. Your company and name were not mentioned. Yet you have repeatedly posted publicly professional and public attacks on our charity and Dawn. Such behavior is not professional and in no way helps the CDH community.

We do appreciate you taking the time to go out of your way to post on our charity's Great NonProfits page.

Our Board members have been notified of your latest public accusations and our lawyer, Lauren Campbell, or our CHERUBS Parent Advisory Board would be happy to speak with you regarding your questions, concerns and other issues. You can reach them at cpab@cherubs-cdh.org

As always, thank you for being professional and working towards a positive, productive CDH Community.

Sincerely, Dawn Williamson, CHERUBS President and Founder

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Rating: 1 stars  

5 people found this review helpful

When I found out my son was going to be born with CDH and I looked it up I also found this organization. I tried to apply for their forums and had to wait nearly a whole month to be accepted. then when I was trying to get cnn to do a story on CDH and use my son they tried to take over the comments for their own thing and never got anywhere. Then Dawn kept saying my mother-n-law was my sons mom after I told her I was his mom 3 times. I didnt really feel support. They also like to attack all other organizations when really they need to realize that its not about their selfish wants ITS ABOUT THE BABIES!!! They kick people out and get mad if people have fundraisers and dont give the money to CHERUBS.

If I had to make changes to this organization, I would...

how they treat people and their mindset all together

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2012

Was this review helpful? 

We are sorry that you had trouble with the forums and yes, you were called by the wrong name but were apologized to and I am sincerely sorry. It was an honest mistake, not one meant to hurt you or make you feel unwelcome. I am human and make mistakes.

We tried to help promote your CNN post and fully supported you in your quest to raise awareness. When you misunderstood our support and got offended, we backed off so to not upset you.

Please question where you hear false rumors and gossip and what others have to gain by telling you such things. Because it is simply not true. There is no attacking from our end... please show us what you mean as that is not how our charity operates. You will not find anything on or off-line that our charity is involved in attacking anyone or anything. We have a record of standing up against those who do. Quite honestly, we don't even have time for such behavior. If you have seen our activities, we are extremely busy doing good for CDH families with a multitude of projects. All of our time is spent providing services for CDH support, research and awareness and that is proven by all the accomplishments that we are steadily achieving. There is just not enough hours in the day for any type of negativity or silliness.

Our charity works with any person and other charity who wants to help CDH families in a positive, productive, non-competitive environment and this has been proven in our work for 18 years, membership in ACDHO and helping several other charities to get started. There can never be enough support or awareness or funding for these children no matter who is doing it.

We wish you all the best in the world. If there is anything we can do for you or if you have any further questions or concerns please do not hesitate CHERUBS Parent Advisory Board at cpab@cherubs-cdh.org

Rating: 5 stars  

5 people found this review helpful

We lost my grandson to congenital diaphragmatic hernia last week. I am on the board of a trust that will be making a donation to your foundation. I am very impressed with your work and professionalism and wish you continued success.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 

Thank you very much for your kind words. If there is anything at all that our charity can do for your family, please do not hesitate to contact me directly.

Dawn Williamson, President & Founder

919-610-0129, dawn.williamson@cdhsupport.org

Rating: 1 stars  

5 people found this review helpful

How come this organization does not transmit to everyone how much its president takes out of the organization in monetary terms. In 2010 she took $4500.00 in wages or COMPENSATION as it is on the IRS form in 2011 she took $35,000 IN COMPENSATION yet when expenses for 2011 are put on its facebook page ther is NO mention of her $35,000 payment to her and in fact the figures quoted on the facebook donnot corespond with the IRS form.Why is that is she ASHAMED she is taking so much out if not she should be

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2012

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Review from Guidestar