Cherubs - The Association Of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2015 Top-Rated Nonprofit
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EIN 56-1916661
919-610-0129
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Community Reviews

Rating: 5 stars  

I love CHERUBS and would be lost with out them! It's nice to connect with families that understand what you are going through and who can share their experience. I had never heard of CDH until the day my son was born and the NICU doctor told me he was born with this birth defect. I love that they are taking ACTION raising awareness and funds for more research. CHERUBS has made the scariest times of our life much easier with the volunteers support and love! We will be forever grateful!

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Rating: 5 stars  

Our son was diagnosed with CDH in 2001. Our high risk pregnancy specialist told us to go to the CHERUBS website for "anything CDH related. They will have the most up to date and accurate information." CHERUBS was our guiding light from day 1 and still are. We have connected with families on a personal level because of CHERUBS. We have participated in research studies and felt endless support from the charity. Our lives were forever changed for the better because of CHERUBS and it continues! What a blessing! We have a 13 year old survivor of CDH and we are so grateful for all the love, support and guidance we have had through our CDH journey.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

It will be 12 years ago this coming October that we got the devastating diagnosis of CDH in our unborn child. At our first visit with the high risk pregnancy specialist, he gave us all the information about CDH. We were so completely overwhelmed. At the end if our appointment with him, he said, "when you get home, Google 'CHERUBS', as in angels, cherubs". It was a life changing moment for us when we found CHEUBS. We are so grateful for the up to date information we always get from them and for the outpouring of support we have always felt. We knew we were never alone in the struggles we faced with a survivor of this horrible birth defect. Last year we got to meet Dawn and it was honestly one of the most amazing experiences of our lives. CHERUBS cares about their members and everyone that CDH touches. Our lives are truly blessed by being directed to CHERUBS. I have life long friends that I only know because of CHERUBS. I am so very grateful for this charity and all of the people in it that have so deeply effected our lives. Thank you CHERUBS!

If I had to make changes to this organization, I would...

Do nothing at all! It's absolutely magnificent!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Phenomenal organization. Compassionate, educational, supportive, dependable communication. Thank heavens they have been available for us.

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Rating: 5 stars  

The best charity I could have ever come across after my sons diagnosis. They were there before birth, during his life, and after his death. The President, Dawn Williamson and VP, Ashley Berry took the time to meet my son too. I owe them more than I can say!

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Rating: 5 stars  

1 person found this review helpful

When my grandson was born with cdh we were lost. CHERUBS stepped up with information and care that was amazing. It's been 8 years now and we still never feel alone. Their state reps and anyone in the organization is always there to help. We've never felt like we were unwanted or an inconvenience. We've only had wonderful interactions with everyone. Still today we are so impressed with them that we do every thing we can to bring awareness not only to the birth defect but to the organization.

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Rating: 5 stars  

Cherubs is an amazing group that helps families all around the world. You can connect with families who understand your CDH journey and there is always awareness being raised. Cherubs has made the scariest times of my life easier with the volunteers love and support!

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1 previous review
Rating: 5 stars  

1 person found this review helpful

I was devastated 10 years ago by the CDH diagnosis, 12 weeks pregnant and first baby. I wish I had found Cherubs then. Not knowing what to expect and feelings of being so alone in our babies battle was terrible. But last year when my CDH child was struggling with health issues again and no one would listen I joined a life changing group. I didn't no what to expect but was feeling so scared and alone. After my very first post on Cherubs asking for help and support from strangers, I was totally floored by the compassion and love that I felt. Everyone was always willing to send prayers and support, there was lots of questions I had answered. I know my daughter is reassured knowing she is not alone in her battle and I haven't felt hopeless or alone since I have my CDH family. The amazing awareness and research they provide is priceless. Can't wait to make one of the conferences and meet some of the amazing people who have supported my family.

If I had to make changes to this organization, I would...

Change Nothing

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

At my 20 week ultrasound my world was turned upside down. My fist child was diagnosed with a birth defect. This birth defect was Congenital Diaphragmatic Hernia and he was given 50% chance of surviving. I then googled information about CDH and found Cherubs. I signed up their forums and was instantly connected to support system that has helped me through my whole journey, expecting, birth, and grief, when we lost him. They have created a whole connected CDH community that is very supportive. They are very active in all aspects of raising funds for research and support and everything under sun in raising awareness. They help many families not feel alone and fight hard to get progress in helping CDH families and future CDH babies.

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Rating: 5 stars  

1 person found this review helpful

I was born with congenital diaphragmatic hernia jn 1965. For almost 40 years I thought I was the only survivor. Thanks to the internet I found Cherubs, a thriving support group. Not only did I meet fellow cherubs online, but one parent came from Belgium to visit with me in The Netherlands. Cherubs has given me support like no other support group has. Contact with other Cherubs and parents is valuable. They know how I feel, they know what it's like to live with the limitations that CDH brings. And when I needed more information about a possible reherniation, there were people who provided the much needed information. Cherubs provides support and knowledge. I am very thankful that this group exists and try to give back as much as I can.

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Rating: 5 stars  

Our family can not say enough good things about Cherubs! The information, support, and most importantly the hope they provided to is when one of our twins was diagnosed with CDH was one of the main things that helped us get through such a tough time. Our daughter Emily is a 14m old fighter and we our so blessed.

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Rating: 5 stars  

I am a mother to a angel cherub just in 2014. I have lots to thank for helping me keep my sanity, but Cherubs was the first place every doctor referred me to in reference to this birth defect. They offered comfort and answers when things were so confusing. I can't say they do everything right, but for a one woman show with volunteers they do accomplish a lot. Many thanks to being there for me and my family.

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