CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2015 Top-Rated Nonprofit
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EIN 56-1916661
919-610-0129
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

My daughter is a 28 year old survivor and I wish we had ha CHERUBS when she was born. We were alone in our journey. When she had to have surgery several years ago for a vowel obstruction related to her CDH diagnosis, we found CHERUBS. This is not just a charity. This is a family where there is so much information, compassion, love and prayers for all. My daughter and I now volunteer for CHERUBS. I am just so thankful they are there so no family will ever walk this journey alone again.

When was your last experience with this nonprofit?

2015

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1 previous review
Rating: 5 stars  

1 person found this review helpful

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

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Review from Guidestar
1 previous review
Rating: 5 stars  

5 people found this review helpful

When my daughter was born 26 years ago there was no CHERUBS. You only had your family and friends who were very supportive and loving but it would have been so much better if CHERUBS had been around then. I did not find them until several years ago while doing a search on CDH and its affects on adult survivors. Very little is known about the affect on adult survivors or doctors that know much about the affects on them. We have met so many wonderful families and adult survivors. We have learned more from them than any adult doctor has ever been able to share.

My daughter, Casey and I have been involved with CHERUBS ever since. She is became the Texas State Rep for CHERUBS after a family get together in San Antonio a couple of years ago. Casey would not have become involved had CHERUBS not been the wonderful charity it is.

This has happened all because of the hard work and hard hours Dawn has put into CHERUBS and to recruit so many other hard working volunteers to assist her. I am proud to say I know Dawn, many of the wonderful board members and volunteers working together to make CHERUBS one of the Great Nonprofit Charities today!!! Thank you all for your hard work for us all!!! We love you!!!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

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CHERUBS

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Rating: 5 stars  

My son Aaron was born 15 years ago with CDH. Cherubs has been there for us from the beginning. Through our repairs and recovery in recent years and still there through our hard times as well as our praises! We would be lost without them.

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Rating: 5 stars  

I have a 24 year old survivour my daughter Angel I have been involved with CHERUBS from the beginning and this charity does all it can for kids and families that deal with CDH it is a long hard road that is made easier knowing that there are other families that you can connect with

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1 previous review
Rating: 5 stars  

Being the mother of a 22 year-old daughter who was born with CDH I only wish that CHERUBS would have been there when she was born. After talking to Dawn after she had Shane and joining and volunteering with this great support group I wouldnt take anything for the experience realizing that we are not alone in this fight with this horrible defect and even at this stage learning more has helped me become a better mother not only to my daughter but to her older brother as well. I would and do recomined this support group to other.

If I had to make changes to this organization, I would...

change nothing its great

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

1 person found this review helpful

My daughter was born in 1991 before there was a CHERUBS I would have loved this support then but it has been there for me even 21 years down the road. Having a child with CDH is like walking on the moon i never met another CDH parent until CHERUBS. This group does wonders from hearing the words I'M sorry your child has CDH to what do you need forever. Thee fact that half these babies is a shame they get very little funding and never enough help.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Wish I'd found CHERUBS when my son was here! Great people doing an amazing job simply because it needs done and they love doing it! Everyone has one goal; helping CDH families. Wait; make that two goals. We also want to put CDH on the map, like breast cancer and autism. We want the recognition, the awareness, and the research!

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Review from Guidestar
Rating: 5 stars  

2 people found this review helpful

I volunteer for CHERUBS as a Hospital Angel. I am very proud to give back to them as I am eternally grateful for all they have done for me & my family in the last 3-1/2 years!

CHERUBS is more than just a group to me, they are truly like a second family. After my son Jayden died I was so devastated I locked myself away and was on the verge of wanting to end everything, but just when I was at my worst, my mom showed me CHERUBS. Once I saw what they were about and got to know some of the AMAZING people who not only TRULY knew my pain and wanted to help me in my time of need and beyond, I found that because of the support and LOVE of these selfless, caring, open, and understanding people I had truly found a renewed sense of purpose and reason to live!

Now because of finding this WONDERFUL community I now have a passion and drive for life and have met some of the most amazing, wonderful, and close friends I have EVER had that I NEVER would have met would it not have been for CHERUBS! I also now have a new mission and goal in my life to help other families like us and let them know they are not alone, and we will be there for them in ANY way they may want/need just like all the amazing families before me did for my family in this wonderful group.

My biggest hope and goal for this charity is to raise enough money and awareness to put to more research to help us someday find the answers, and in return find an end so no more babies die or suffer... pure and simple.

Thank you for listening and THANK YOU TO CHERUBS FOR ALWAYS BEING THERE AND HELPING TO SAVE MY LIFE WHEN IT COUNTED MOST .

If I had to make changes to this organization, I would...

Find a TON of research money to stop CDH!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

4 people found this review helpful

In 2010 our Daughter, (Angel Cherub) Libby, was diagnosed with CDH at the 20 week scan. We came home and Googled CDH and thankfully found CHERUBS! Over the past 3 years we have received the most amazing support from people that we now regard as Family. We will be forever grateful for all the hard work that CHERUBS members do. We have made some great friends! I have recently decided to Volunteer in the hope to help other families and am really looking forward to working with so many kind and inspirational people xx

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

3 people found this review helpful

Since finding CHERUBS aafter the passing of my son, Liam Anthony Hunt, I have been blessed to connect with a network of incredible people! Members of CHERUBS have reached out to me and my family in a number of ways and have inspired us to find positive ways to give back and reach out to others affected by CDH. This will be my second year as the Vermont State Representative and I hope to continue in this role for many years to come to not only honor the memory of my gorgeous Angel CHERUB, Liam, but to help to many families that are affected by this devastating defect in my home state and nationwide. It is my honor and priviledge to be apart of such an incredible organization!

If I had to make changes to this organization, I would...

None

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

With my CDHer being my first child. I had never heard of CDH until she was officially diagnosed with it. It was great to find a charity that had so much support and love. They treat you like family and after being a part of the charity for the past 9 years they have become family. What a wonderful thing to be a part of!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A little

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

CHERUBS has been a blessing to both me and thousands of other families. If CHERUBS had been around when I was born, my parents would have been able to relate to others going through the same situation as well as get answers to questions that the Dr's could not answer. The amount of support that each volunteer and member gives is overwhelming. I am honored to be a state rep and honored to pay it forward to each new member. CHERUBS also has the most kind hearted CEO. Dawn gives and gives. The love she has for her son carries over to the members of CHERUBS.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

CHERUBS has been such a wonderful organization for not only myself, but my large family. Unlike most families, I was aware of what CDH was, as I lost my oldest brother to it in 1973. However, I did not know to the extent of just how critical this birth defect was. My 18 week ultrasound showed nothing wrong. I didn't find out my son was going to have CDH until 8 days before his birth. I found myself not sleeping and searching for anyone who would talk to me and understand what I was feeling and going through. All I kept seeing online was the negative side to CDH. Then, I came across CHERUBS. I met and had an instant bond to all these families who knew exactly that I was feeling and going through. I remember posting something brief on the FB page explaining that I was due any day and just had barely found out, and the next morning I had several friend requests instantly from members.

CHERUBS has given me support and has given me the opportunity to serve others in the CDH community. I'm very grateful for the service, love, support and friendship I find with CHERUBS. I'm grateful that I can now call myself an official HOSPITAL ANGEL volunteer for CHERUBS and visit other CHERUB (CDH) families in need.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?