CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.83 stars   201 reviews

Address:

3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission:

Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.

Results:

CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons

Target demographics:

families of babies born with Congenital Diaphragmatic Hernia

Geographic areas served:

International

Programs:

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2016 Top-Rated Nonprofit
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919-610-0129
http://www.cdhsupport.org

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Reviews for CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 5 stars  

Cherubs is an amazing support group that has helped me connect with many other CDH families. Full of wonderful people who are there to help you through the hard times and share in the joyful moments too!

 
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1 previous review
Rating: 5 stars  

Cherubs is an amazing group that helps families all around the world. You can connect with families who understand your CDH journey and there is always awareness being raised. Cherubs has made the scariest times of my life easier with the volunteers love and support!

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I was devastated 10 years ago by the CDH diagnosis, 12 weeks pregnant and first baby. I wish I had found Cherubs then. Not knowing what to expect and feelings of being so alone in our babies battle was terrible. But last year when my CDH child was struggling with health issues again and no one would listen I joined a life changing group. I didn't no what to expect but was feeling so scared and alone. After my very first post on Cherubs asking for help and support from strangers, I was totally floored by the compassion and love that I felt. Everyone was always willing to send prayers and support, there was lots of questions I had answered. I know my daughter is reassured knowing she is not alone in her battle and I haven't felt hopeless or alone since I have my CDH family. The amazing awareness and research they provide is priceless. Can't wait to make one of the conferences and meet some of the amazing people who have supported my family.

If I had to make changes to this organization, I would...

Change Nothing

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH

 
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Rating: 5 stars  

Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.

 
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Rating: 5 stars  

I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!

 
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Rating: 5 stars  

This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.

 
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Rating: 5 stars  

After losing my son to CDH, CHERUBS had been there in every way possible to love, support and educate me.

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

CHERUBS has served as a source of knowledge, support, kindness and compassion through our CDH with our son, Jacob. I couldn't have asked for anything more than what they were already offering to CDH families. They are wonderful and I am PROUD to say "My son is a CHERUB". They have all become extended famliy to us even though Jacob grew his wings at 33 minutes old.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

Cherubs has given me the opportunity to fulfill a promise to my daughter that I made to her as she was dying in my arms; the promise to continue to fight for her as I knew she couldn't fight anymore. They have paved the way to join a movement of strong brave courageous parents and children that live the unimaginable. I am deeply grateful for this organization and everything they do.

 
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Rating: 5 stars  

1 person found this review helpful

My daughter is a 28 year old survivor and I wish we had ha CHERUBS when she was born. We were alone in our journey. When she had to have surgery several years ago for a vowel obstruction related to her CDH diagnosis, we found CHERUBS. This is not just a charity. This is a family where there is so much information, compassion, love and prayers for all. My daughter and I now volunteer for CHERUBS. I am just so thankful they are there so no family will ever walk this journey alone again.

When was your last experience with this nonprofit?

2015

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

 
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Review from Guidestar
1 previous review
Rating: 5 stars  

5 people found this review helpful

When my daughter was born 26 years ago there was no CHERUBS. You only had your family and friends who were very supportive and loving but it would have been so much better if CHERUBS had been around then. I did not find them until several years ago while doing a search on CDH and its affects on adult survivors. Very little is known about the affect on adult survivors or doctors that know much about the affects on them. We have met so many wonderful families and adult survivors. We have learned more from them than any adult doctor has ever been able to share.

My daughter, Casey and I have been involved with CHERUBS ever since. She is became the Texas State Rep for CHERUBS after a family get together in San Antonio a couple of years ago. Casey would not have become involved had CHERUBS not been the wonderful charity it is.

This has happened all because of the hard work and hard hours Dawn has put into CHERUBS and to recruit so many other hard working volunteers to assist her. I am proud to say I know Dawn, many of the wonderful board members and volunteers working together to make CHERUBS one of the Great Nonprofit Charities today!!! Thank you all for your hard work for us all!!! We love you!!!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

 
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(Nonprofit Staff) wrote:

Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS

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Rating: 5 stars  

My son Aaron was born 15 years ago with CDH. Cherubs has been there for us from the beginning. Through our repairs and recovery in recent years and still there through our hard times as well as our praises! We would be lost without them.

 
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Rating: 5 stars  

I have a 24 year old survivour my daughter Angel I have been involved with CHERUBS from the beginning and this charity does all it can for kids and families that deal with CDH it is a long hard road that is made easier knowing that there are other families that you can connect with

 
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1 previous review
Rating: 5 stars  

Being the mother of a 22 year-old daughter who was born with CDH I only wish that CHERUBS would have been there when she was born. After talking to Dawn after she had Shane and joining and volunteering with this great support group I wouldnt take anything for the experience realizing that we are not alone in this fight with this horrible defect and even at this stage learning more has helped me become a better mother not only to my daughter but to her older brother as well. I would and do recomined this support group to other.

If I had to make changes to this organization, I would...

change nothing its great

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

My daughter was born in 1991 before there was a CHERUBS I would have loved this support then but it has been there for me even 21 years down the road. Having a child with CDH is like walking on the moon i never met another CDH parent until CHERUBS. This group does wonders from hearing the words I'M sorry your child has CDH to what do you need forever. Thee fact that half these babies is a shame they get very little funding and never enough help.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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