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August 2, 2013
5 people found this review helpful

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1 previous review
June 20, 2012

My son was diagnosed with CDH at 37 weeks. My wife and I had to scramble to find a new doctor and surgeon with CDH experience. In the end, my son was only in the hospital for 29 days even though he ... more

August 2, 2013
5 people found this review helpful

This is my 2nd term as the Co-chair of the CHERUBS Parent Advisory Board. I am also the Illinois and Wisconsin State rep along with being on a number of other committees. As an extremely active volunteer, I can honestly say that CHERUBS is a team effort. A team that consists of 1 extremely overworked full time employee and countless other volunteers.

I unfortunately didn't get very involved in CHERUBS until after my 1st son came home after graduating from the NICU. He is my first miracle. We found out at 37 weeks that our son would have CDH, so we were sent into such a tailspin that I just couldn't even process all the information in time to reach out to CHERUBS before my son was born. However, once I officially joined. OMG, did I feel welcomed and understood. The family and friendships I gained were invaluable.

Now that my 2nd son (who also has CDH) is due in just over a month, I am overwhelmed once again by the support. I have worked so hard as a volunteer to provide support to others. Considering how devastated my wife and I were to find out we had to ride this roller coaster again, I am glad we don't have to do it alone...again.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

June 20, 2012

My son was diagnosed with CDH at 37 weeks. My wife and I had to scramble to find a new doctor and surgeon with CDH experience. In the end, my son was only in the hospital for 29 days even though he was born without a diaphragm at all. When my son was born the most important service CHERUBS could provide was support. Now that my son is doing so well, I've come to appreciate everything else they do from awareness of this birth defect to raising funds for much needed research.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 1, 2013
1 person found this review helpful

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August 1, 2013
1 person found this review helpful

I first learned about CHERUBS 3 years ago when my grand daughter was diagnosed with CDH. I had never heard of CDH before this. I called and spoke with Dawn and she was awesome at listening to all my concerns and fears. It was nice to have someone to talk to who had already embarked on this horrifying journey. Two days after Maddie was born my daughter received a tote bag of hope in the mail it was great and very generous. I decided to become the Nevada State Representative volunteer in January 2012. CHERUBS website is the most comprehensive site with information on CDH!

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

August 1, 2013
2 people found this review helpful

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1 previous review
May 1, 2011

I lost my first two children to CDH. Unfortunately it wasn't until after our second passed away that I discovered CHERUBS. Since becoming a member of the CHERUBS family I have connected with well ov... more

August 1, 2013
2 people found this review helpful

Hello my name is Josh Hensley and I am a proud volunteer for CHERUBS. My first two children were born with and taken from me by CDH. It wasn't until after our second daughter died that I found CHERUBS. The experience has been truly unbelievable. From instantly connecting to hundreds of people who understood my situation to helping new people affected by this awful defect. Because of CHERUBS I have met people who I now consider some of my greatest friends. I have been able to go to the hospital and support parents of other CDH babies. I have traveled to San Francisco and Boston to learn more about CDH and lend a helping hand to others affected by CDH. I traveled to Washington D.C. and lobbied on Capitol Hill for recognition of our babies.

CHERUBS has over 4400 members worldwide and is in the process of establishing chapters in Europe. With an organization of this size, it is impossible to please everyone and I understand there are probably some who feel they were wronged in some way by CHERUBS. This is regrettable, but rest assured, this is not the case. CHERUBS tries very hard to recognize every member and their children; from birthdays to angelversaries. The work done at CHERUBS is for the benefit of the entire CDH community, not just a select few who work with us. Our work on Capitol Hill does not have CHERUBS in the wording, it is for all CDH victims!

In the past year CHERUBS made $20,000 in donations to CDH Research projects, awarded two $1,000 scholarships, and shipped an immense number of H.O.P.E. (Help Other Parents Expecting) totebags to families of diagnosed or newborn CDH babies to let the family know there is someone who cares! This is only the beginning of what CHERUBS does for the CDH community!

I am beyond proud to call myself a member of CHERUBS and will continue to volunteer with them in any and every way I can. At the end of the day, I know there are people suffering with CDH and its many complications. I will not engage in slander or take the time to be negative toward individuals or other CDH groups, we should all be working for a common goal. I will help and support these people in any way I can and continue to fight for the CDH community!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

May 1, 2011
1 person found this review helpful

I lost my first two children to CDH. Unfortunately it wasn't until after our second passed away that I discovered CHERUBS. Since becoming a member of the CHERUBS family I have connected with well over 100 other CDH families. We have shared our laughs, joys, sorrows, fears, and hopes with each other. CHERUBS and its volunteers continually go out of their way to organize fundraisers and other events to raise money for CDH research and to increase CDH awareness altogether. I praise Dawn Williamson for her vision in founding CHERUBS and her continued passion to fight for our babies. Until recently the phrase "CDH Awareness" was copyrighted! Unbelievable. How could another organization who claims to care about critically ill children copyright such a vague statement! CDH and awareness of it belongs to those who have experienced it, not an organization attempting to monopolize grieving parents! CHERUBS also holds an annual conference for CDH families, but unlike other organizations who hold similar events, CHERUBS does NOT charge a fee to attend the conference. Simply pay to get there and cover the cost of the hotel room (which CHERUBS works with the hotel to get a discounted rate). The CHERUBS conference includes doctors and research specialists who are well versed in CDH. CHERUBS is not dedicated solely to research. CHERUBS sponsors awareness events as well to simply tell people about CDH. Awareness campaigns have costs associated with them as do almost any activity. Using funds on these activities is as worth while as any cause. CHERUBS volunteers spend countless hours sending birthday and anniversary reminders to CDH families. They put together CHERUBS Totebags with care packages for CDH families. CHERUBS has hospital kits designed to help educate local hospitals about CDH and make even the medical community aware of a relatively common birth defect. I have met several doctors who were unfamiliar with CDH, so projects such as this are essential. I have found the information contained on CHERUBS website and in their brochures accurate and informative. Having dealt with CDH twice and one of the best respiratory doctors in the country (he patented the oscillating vent) I know a thing or two about CDH. Through CHERUBS website forums and social media networking CHERUBS members are quick to pass along prayer requests for CDH babies and families who are having a difficult time. Also, the members are quick to give a listening ear or offer advice and share experiences with families who are new to having a child afflicted with CDH. All in all Dawn and her loyal army of volunteers do nothing but strive to help CDH babies and their families. Personally, I could not be more greatful to the CHERUBS organization!

The Great!

I've personally experienced the results of this organization in...

Everyday life! Once you have had a child with CDH, your life is never the same. No one truly understands what it takes to fight CDH, except for those who have experienced it. Raising awareness and helping research projects is the best weapon we have against a birth defect with a 50% mortality rate!

Ways to make it better...

If I had to make changes to this organization, I would...

NOT CHANGE A THING!!!

August 1, 2013
2 people found this review helpful

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1 previous review
May 1, 2011

We found CHERUBS 11 years ago when we were expecting our 1st baby. At our 18 week ultrasound we were told our baby girl had CDH. We had never heard of this before. Our OB at the time told us to go ... more

August 1, 2013
2 people found this review helpful

Hello my name is Freedom Green and I’m a proud volunteer of CHERUBS. I have been doing so for 10 years. I serve on CHERUBS Parent Advisory Board - ( CPAB ) anyone can reach out to us by sending an e-mail to cpab@cherubs-cdh.org and we are happy to answer everyone’s questions, On-Call for Grieving Families, Facebook Admin. I also raise funds and CDH awareness through running marathons in Maryland for CHERUBS that goes towards the CDH Research fund. I’ve been able to attend 2 CHERUBS marches in DC to celebrate April 19th – Congenital Diaphragmatic Hernia Awareness month and happy to assist members old and new whenever I can. I love working with our large group of volunteer’s who are all ready and willing to help out members in timely manor. Looking forward to another exciting year in 2013 and watching CHERUBS grow to do bigger and better things.

More feedback...

Would you volunteer for this group again?

Definitely

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

May 1, 2011
1 person found this review helpful

We found CHERUBS 11 years ago when we were expecting our 1st baby. At our 18 week ultrasound we were told our baby girl had CDH. We had never heard of this before. Our OB at the time told us to go see a high risk OB to get more answers as their office didn't know to much about CDH either. We went right home hit the internet and found CHERUBS. I can't say enough great things about this group of people who I have been connected with. Wow!!!! Dawn gives it her all & then some for so many people. I feel like as a group of CDH parents I have seen so many wonderful things happen to help spread the word about CDH. I'm proud to be able to volunteer for CHERUBS and look forward to doing what I can to help raise awarness & help other families who are just finding out for the 1st time about CDH. We lost our daughter, but my family will do all we can to help CHERUBS. Thank you Dawn for connecting us ALL over the internet. I look forward to the day their is more research $$$$ given to hospitals to help find the cause/cure.

The Great!

I've personally experienced the results of this organization in...

From the support of other families who have delt with CDH

Ways to make it better...

If I had to make changes to this organization, I would...

That someday I get the chance to meet more of the members.

August 1, 2013
2 people found this review helpful

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2 previous reviews - show all
April 3, 2013

I have been involved with Cherubs for four years and they have become such a family to me. It started off just as a member and felt nothing but support and kindness throughout the charity. Then I star... more

August 1, 2013
2 people found this review helpful

Hello My name is Melissa Larrison and I am the fundraising coordinator as well as being on the CHERUBS Parent Advisory Board. We try our very best to support all parents and family members who come our way needing support. I found CHERUBS in 2008 and they have become my family. Anytime I'm down or needing a friend someone is there to help you. We are run by a multitude of wonderful volunteers not one person. Together, with all the groups in the ACDHO, are helping to fund CDH research. I personally lobbied in Washington D.C. for more funding for CDH research and we have come a long way, but there is still lots left to do. Lets all work together for this common goal.

Ways to make it better...

If I had to make changes to this organization, I would...

have more volunteers.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

April 3, 2013
2 people found this review helpful

I have been involved with Cherubs for four years and they have become such a family to me. It started off just as a member and felt nothing but support and kindness throughout the charity. Then I started to volunteer to help me work through my grief and support others. The services Cherubs offers are nothing but the best. They make you feel included and loved, no matter what state you live in. Finally I was asked to be a board member. I have never been so honored in my life. I enjoy working with everyone from the top to all our members all over the US an abroad. Cherubs has changed my life for the better.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

May 3, 2012
2 people found this review helpful

My daughter was born February 2009 since then I have been involved with CHERUBS. My experience has been wonderful. We are like a big family that you can rely on for support. I have held numerous fundraisers in memory of my child and have felt the knowledge and support Dawn and her team offer is amazing!! I can't imagine my life without Cherubs. Great Organization!!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 1, 2013
2 people found this review helpful

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2 previous reviews - show all
August 9, 2012

I am the State Rep for Louisiana. I started volunteering with Cherubs early this year (2012) because I believe in the mission we are on, raising awareness and advocating for research for infants born ... more

August 1, 2013
2 people found this review helpful

I am the Louisiana state rep. When my son was born 10 years ago Cherubs was the only place to go for support. It was Dawn and a loving group of people that helped us through the worst. The same people whp rejoiced with us. We are blessed to be a part of the wonderful organization.
As far as
donations go if you are looking for a thank you then you are giving for the wrong purpose. I don't give for acknowledgement fir a good deed I give to help the charity I love._I've always recieved a thank you by the way.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

August 9, 2012
1 person found this review helpful

I am the State Rep for Louisiana. I started volunteering with Cherubs early this year (2012) because I believe in the mission we are on, raising awareness and advocating for research for infants born with CDH and supporting the families that are struck with this devastating condition. My son was born with CDH in 2002 and the only place to turn to at the time was Cherubs. I was welcomed with so much love and support from them that I wanted to be a part. Whenever I have a CDH related question they are the first place I turn to. Whenever we find a new challenge Cherubs is who I have turned to. In joy and fear I have always been able to turn to the fantastic people at Cherubs.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

April 29, 2011
1 person found this review helpful

My son Adam was born with right sided CDH. I have been a member for almost 9 years now and have always recieved support and loving kindness from Cherubs and Dawn. I don't know how I would hae survived the first two years of our journey with out them.

The Great!

I've personally experienced the results of this organization in...

They were there in the beginning when we found out that we were starting an uphill journey through all of it. If I needed to call in the middle of the night someone was there for me.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't!

August 1, 2013
2 people found this review helpful

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August 1, 2013
2 people found this review helpful

I found out about CDH and CHERUBS about 7 years ago. In those 7 years, I have seen this charity grow from a small informational group, to an international charity. CHERUBS is a charity without borders and they continue to grow, raising awareness one step at a time. I finally decided to become a volunteer when I saw that I could personally make a difference and do something that I enjoy, helping in anyway shape or form. CHERUBS is more than a charity it is an extended family.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing should be changed about CHERUBS. :)

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

August 1, 2013
2 people found this review helpful

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August 1, 2013
2 people found this review helpful

My daughter, Tanina, was born in 1995 with CDH. She was given a 5% chance of life with multiple issues. At this time, I turned to books or research. I could find nothing on CDH. Nothing is scary.... not knowing what you are dealing with is worse than the CDH itself. Finally, Jay Wilson, Tanina's surgeon, mentioned that a group was starting up to better understand and advocate for families who have dealt with this birth defect. I became a life long member of CHERUBS. They have worked with thousands of families and worked with conferences and medical staff...all in the name of find out what CDH is. While we still may not have an answer, wwe have a core base of people dedicated to finding an answer, helping those afflicted and giving hope to all. Tanina graduated from St. Paul's School in Concord, NH. She is a softball pitcher and plays a concert flute as well as sings as the head of her section in the choir. She will attend Lafayette College this fall as a neuroscience major. Well done, my child. Thank you for your support, CHERUBS!

Ways to make it better...

If I had to make changes to this organization, I would...

Find more money to support them. They do so much for so many...

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

August 1, 2013
2 people found this review helpful

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August 1, 2013
2 people found this review helpful

My daughter was born with CDH 13 years ago. We are blessed to have a survivor! CHERUBS has always been a great support. Our local rep is always ready with a word of encouragement and we've even met with her a few times. My daughter did a service project for CHERUBS and went to meet Dawn. There has been nothing but help and gratitude from CHERUBS! I am so glad that I found this wonderful non-profit, and volunteers. We have met many wonderful families through CHERUBS. Thank you CHERUBS for all that you do!!!

Ways to make it better...

If I had to make changes to this organization, I would...

Do nothing! You're doing a fabulous job!!

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

August 1, 2013
2 people found this review helpful

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August 1, 2013
2 people found this review helpful

When our first daughter Chloe was diagnosed with CDH in utero at our 20 week scan, we felt lost and alone. We had no idea what CDH was, didn't know a soul who had been affected by CDH. Through the wonders of google search I found Cherubs, and boy am I glad I did.

Dawn, Cherubs founder, has
been a huge support for us ever since. She supported us through our pregnancy, delivery, through losing out previous daughter and she has continued to do so ever since. We since established our own foundation which she has supported and so for any body to believe Cherubs is the only charity she supports is rediculous. In my opinion, without Cherubs there would have been no support for us, Cherubs started it all and continues to do an amazing job.

Through Cherubs I have met lots of wonderful people (many I now consider to be good friends) who have been affected by CDH. I love Cherubs, Dawn and Cherubs will always hold a special place in my heart.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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3 hours of volunteer time for this nonprofit will...

Put together 50 informational packets for CDH families. Volunteer