CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2015 Top-Rated Nonprofit
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EIN 56-1916661
919-610-0129
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I love CHERUBS. My daughter has CDH and when I found out I was pregnant I immediately started the research. I really had to look no farther than CHERUBS. They sent me my tote and in it was all about what I was getting ready to go through what to expect. I am also part of the forums and this organization has become my new found family. Anytime I have had a question or needed advise, or even just someone to talk to CHERUBS has been there. I do not like CDH but I can say that out of a terrible defect I and my daughter Moriah have gained a new family. This family loves, supports but above all understands what I am going through as a parent and what she will go through as a survivor. Moriah will always be fighting CDH but at least with CHERUBS she will not be fighting alone. GO TEAM MORIAH! GO TEAM CDH! GO TEAM CHERUBS!!!!! Thank you all so much for everything. Our love always, Patricia and Moriah

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

I was born with CDH in 1976 and until I came across Cherubs several years ago I did not know much about CDH. Cherubs has been the most caring and personable charity I have come across. I am so happy that families affected today have a place to get the knowledge and support my family did not have access to years ago. Cherubs is amazing charity filled with wonderful people.

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Rating: 5 stars  

1 person found this review helpful

Wish I'd found CHERUBS when my son was here! Great people doing an amazing job simply because it needs done and they love doing it! Everyone has one goal; helping CDH families. Wait; make that two goals. We also want to put CDH on the map, like breast cancer and autism. We want the recognition, the awareness, and the research!

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

My daughter was born with LCDH. I wish I would have found the support then I see now on cherubs. They are amazing! Always bringing awareness and supporting all the family's with positive messages.

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

CHERUBS has been at the forefront of spreading CDH awareness since I found them over sixteen years ago when my son was born with R sided CDH. They were the only information available on the web back then and it was so comforting to find a group and forum that I could relate to and knew what I was going through. Dawn has tirelessly and passionately kept up this charity for all these years and has brought awareness and support to countless families.

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Rating: 5 stars  

2 people found this review helpful

After losing our precious grandson, Liam Anthony Hunt after 33 days to right-sided CDH, our family found CHERUBS. What a wonderful, compassionate organization filled with fabulous people who are knowledgeable, know what your going through, and are always always there for you. There are not enough words to describe this organization or express my sincerest gratitude. When my grief even 2 years later gets too much, I know I can always blog on CHERUBS and I know that I will always get responses that comfort me.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  

We found CHERUBS after our precious grandson received his Angel wings due to right-sided CDH. What a compassionate, wonderful group of people who never forget those milestone dates and never fail to check with you during those times. We have learned so very much and now work in earnest to provide donations and support to other CDH families. CHERUBS is VERY deserving of this award. Dawn Torrence Williamson is THE most amazing woman and I am honored to have met her.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

2 people found this review helpful

Our precious grandson was born with undiagnosed right-sided CDH. Our son in-law found CHERUBS after Liam earned his angel wings. CHERUBS & Dawn do amazing things not only for parents of CDH CHERUBS but grandparents as well as other family members. I absolutely applaud Dawn & CHERUBS for all the awareness they provide over the U.S. & U.K. Our family traveled from Vermont to Washington, DC to help raise awareness through the Parade of CHERUBS. Our family donates items for tote bags. Our family has a wonderful group of women who knit infant hats & booties that also gets sent in our CHERUBS memory. My husband & I vowed to donate monies each year on Liam's Angel Anniversary. We cannot say enough good things about CHERUBS. Liam's Mom (our daughter) is CHERUBS Vermont State Representative and has connected with CDH families here as well as working with our House of Representatives.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I volunteer for CHERUBS as a Hospital Angel. I am very proud to give back to them as I am eternally grateful for all they have done for me & my family in the last 3-1/2 years!

CHERUBS is more than just a group to me, they are truly like a second family. After my son Jayden died I was so devastated I locked myself away and was on the verge of wanting to end everything, but just when I was at my worst, my mom showed me CHERUBS. Once I saw what they were about and got to know some of the AMAZING people who not only TRULY knew my pain and wanted to help me in my time of need and beyond, I found that because of the support and LOVE of these selfless, caring, open, and understanding people I had truly found a renewed sense of purpose and reason to live!

Now because of finding this WONDERFUL community I now have a passion and drive for life and have met some of the most amazing, wonderful, and close friends I have EVER had that I NEVER would have met would it not have been for CHERUBS! I also now have a new mission and goal in my life to help other families like us and let them know they are not alone, and we will be there for them in ANY way they may want/need just like all the amazing families before me did for my family in this wonderful group.

My biggest hope and goal for this charity is to raise enough money and awareness to put to more research to help us someday find the answers, and in return find an end so no more babies die or suffer... pure and simple.

Thank you for listening and THANK YOU TO CHERUBS FOR ALWAYS BEING THERE AND HELPING TO SAVE MY LIFE WHEN IT COUNTED MOST .

If I had to make changes to this organization, I would...

Find a TON of research money to stop CDH!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

4 people found this review helpful

This is the most professional and kindest charity I have met on my CDH journey. They are very focused on helping CDH families and being the best charity possible. I am proud to be a part of this charity and watch it grow.

I have known Dawn for many years and I second everything her husband said about her. She is a lady. When people sling mud at her she protects CDH families and doesn't throw it back. She makes it into pies and serves them with a smile. This woman is my hero.

If I had to make changes to this organization, I would...

Change nothing.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS

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Rating: 1 stars  

2 people found this review helpful

I wasn't aware of the huge wages that the president was taking. After looking on guidestar I feel decived that this wasnt previously mentioned on fb. When I donate I want it to go to helping babies not into someones pocket. Taking 1/3 of annual takings is not justifiyable in my mind. I really think this is needs re-thinking.
But at least I Guess they are trying to help.

If I had to make changes to this organization, I would...

Significantly reduce wages.

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Okay

When was your last experience with this nonprofit?

2011

Was this review helpful? 

Thank you for your comment and allowing us to correct misinformation:

One third of our charity income is not spent on employee income. That is a rumor posted on Facebook to try to deter donations to our charity. Our President makes less than a waitress while working 60+ hours a week so it's not a huge salary by any means. Most non-profit executives make 5 times her salary. She works at CHERUBS to help families, not to make a large salary as she gave up a career and took a pay cut to work at our charity. Again, it's just a false rumor with bad motives. We are sorry that you have been exposed to such negativity.

The Guidestar numbers reflect our first 990 return for that year. When we were audited, the auditor fixed an error in which we made to our own disadvantage. The amended 990 is posted on Guidestar, as well as our audit. Anyone seeking the full information and documentation should easily find all our financials on Guidestar. We feel it is important to be an honest, transparent charity that posts everything for our donors to see and that is reflected in our Gold Level, 5 star charity status.

In fact, we are happy to say that for 2013 it is projected that less than 15% will be spent on all overhead (salary, office rent, etc). With 4500+ families to help now, our charity is too large and offers too many services to run out of a home or with no employees. It's simply too big to be run as a small "mom and pop" support group. We did so for 15 years but now we are growing. That is a good thing so that we can help more babies and families.

Please rest assured that the percentages being posted on Facebook are false and a manipulation of the numbers reported on our 990. We would be happy to explain how a 990 is filled out and what the numbers mean and the percentages are, as well as to point out that we have a full Board of Directors, including an accountant (Treasurer) and attorney (Secretary) to help explain this. We also voluntarily pay to undergo an independent audit to be eligible to be listed in the CFC so we are meticulous in our accounting and go above and beyond most charities in being transparent with our funds so that our donors know where money is spent. We are the only CDH charity to voluntarily post all of our financials and to undergo audits.

When you see rumors posted, please question the motives of who is posting them and why they would want you to not donate to our good charity. If you have any questions please know you can always come to us. You can reach our CPAB at cpab@cherubs-cdh.org

Sincerely,
CHERUBS

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Rating: 5 stars  

4 people found this review helpful

In 2010 our Daughter, (Angel Cherub) Libby, was diagnosed with CDH at the 20 week scan. We came home and Googled CDH and thankfully found CHERUBS! Over the past 3 years we have received the most amazing support from people that we now regard as Family. We will be forever grateful for all the hard work that CHERUBS members do. We have made some great friends! I have recently decided to Volunteer in the hope to help other families and am really looking forward to working with so many kind and inspirational people xx

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?