CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2015 Top-Rated Nonprofit
Write a Review

See How $25 Can Help

See How 3Hrs Can Help

More Info

EIN 56-1916661
919-610-0129
Invite people to share their experience with this nonprofit!

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Community Reviews

Rating: 5 stars  

1 person found this review helpful

over 15 years ago my son was diagnosed with CDH. Back then there was not much available online, but I happened to find CHERUBS... within a couple of weeks I received a packet of information, and those first few years of craziness dealing with a very complex child I had support from all around the country. I have made friends who have been there during the ups and downs these last 15 years, people who KNOW what it is like to deal with such a devastating birth defect that might take your child at any time. He is still with us, despite nearly losing him several times, and I am grateful to know that I am not alone. AND thankfully can share with others that they too are not alone, and perhaps by sharing our stories can also raise awareness for this birth defect, as well as to help other families know what the road ahead might be like so they aren't taken as unaware as those of us in those early days.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

5 people found this review helpful

I watch as Dawn puts in 50 or 60 hours a week at CHERUBS to help CDH families. She takes phone calls at midnight and answers email constantly even when I ask her not to because she cant stand to not help someone for 5 minutes. The office was in our home until last year so I know exactly how much time and love goes into her work. If you were there in DC during the march to see all the people and be on Capital Hill you would understand. I met families and I saw the difference this charity makes. If you ever stepped into the office you would understand. If someone has a complaint because she missed one email out of thousands or they were asked to donate then they need to get a grip. My wife has done more to help CDH families than anyone else in the world has and she deserves admiration and respect. Stop complaining and donate.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

Cherubs has been a God send for me. When I had a son born with congenital diaphragmatic hernia 15 years ago, I found all the information, love and support that I needed from cherubs. I have never known any other charity as loving, dedicated, and as supportive as this charity has been for me. I am so grateful to Dawn for founding this charity, she helps thousands of us everyday. Members from all over the world pull together to provide support for one another. Dawn has worked tirelessly to raise awareness of this devastating birth defect in the most professional and ethical way possible.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

When my daughter's 20 week ultra sound showed my grandaughter had a leftsided CDH, we knew nothing about it or what to expect. Then we found CHERUBS. We learned so much and we were offered care and support from others who had been through it. My grand daughter, Brielle's journey ended 16 days after her birth, but ours continues. We support all the work that CHERUBS has done to create awareness and seek research. We offer support and prayers to other families just starting their journey. Our family, just like so many others, want answers. Without awareness there is no caring, no desire to find a cause. Without a cause there is no cure, no help for these innocent babies. CHERUBS is fighting for research on behalf of all the babies.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I am a volunteer at the cherubs office and have gotten to see first hand all the good they are doing from sending tote bags and packets to being readily available for members via any contact method to answer questions and concerns. I have also had to see the side pf CDH that has givin me a reason to spread awareness...I hate having to send out greiving parent packets and seeing the word non survivor. I thank Cherubs for all the good they do and hope because of the awareness they are raising more research will be done so we all see more survivors!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

I am a mother to a CDH angel. In 2011 just a few days after my son Silas' diagnosis in June at 20 wks I attended the annual conference for CDH which just happen to be in Florida this year (2011). My husband & I were panicked, heart broken, & lost. We showed up the last day & yet got welcomed w/open arms. Its funny because I called the number & spoke to Dawn. They had me on the phone w/Dr Shands right then & there after they heard our story. Since that day I have spoken to MANY Cherubs members. I got cards after the conference, emails, prayers & well-wishes. I have called Dawn hysterical at times & only gotten vm & quickly got a text back or a call to talk me through my episode. I have helped them in many ways such as talking to politicians, get a bill board campaign opportunity for the Cherubs & sent her my pics & video's of our sweet Silas to help raise awareness. Cherubs gave me hope when I needed it & answers too.. Thank you Dawn & Cherubs..

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

When my family went with me to have our ultrasound done on our 4th child, we could tell by the tech's face it was not good. September 2006 we became crushed to learn about CDH. While some thought it was best to just terminate, we seeked out other families that had been in our shoses. We found the CHERUBS online, and found it was full of so much information, that we shared it with our family. It gave us all a better understanding of what we would be facing after delivery. We were better informed by the information that CHERUBS gave us, then some of the information the doctors gave us. Although we fought a great fight, our journey ended 7 hours later after Allison Faith, came into this world. We have not left CHERUBS, we now supply love and support to all families facing the unknown, and to those that will fight and win, and sadly to those that fight and still lose. CHERUBS will be a forever part of my family. Thank you CHERUBS for all that you do!!

I've personally experienced the results of this organization in...

I have been helping raise awareness. I have brought new light to expecting parents who have their first ultra-sound to check for CDH. Seeing parents all over the world come together on April 19, 2012 was such an awesome feeling

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I love this charity so much I volunteer to help others as I was helped. When I first found out of my daughters condition I went to CHERUBS for information whether it was what I wanted to hear or not it was what I needed to hear. The doctors had already given us the grim news of my daughter's condition and what her future could be like as well as worse case scenario. I am a realist. So when I went to CHERUBS I looked for the worse case scenario and found myself crying for all the babies who had grown "wings". I turned off the computer I had seen what I had needed to at the time. Once my daughter made it out of the NICU quicker than what the doctors expected I found myself at home caring for a baby with several lasting effects from CDH. No one in my rural area could give me any "helpful" advice in dealing with my daughter's condition. Let alone understand what I was going through. No one but another CDH parent could help me now. I remembered CHERUBS and the long list of families that are members and volunteers. Someone there had to know how to help me. By talking with the other parents I have helped my daughter have the best life possible with this condition. I go to them first with any concern or triumph. We exchange current and new therapies being used to help our kids. We are all connected and share in the fight against CDH. We gather and discuss improvements made and research being done to find the cause. We know the answer is most likely simple if we could only see it. But we can't and there in lies our dilemma. Do we give up or keep fighting? I choose to "Fight like a CHERUB" I thank God everyday for Dawn Williamson. Without her will to fight I and many other parents would not have the knowledge needed to ease our child's suffering. Thank you Dawn I am proud to wear the ribbon you created so lovingly from the design of Shane's nursery. Keep it up you are doing an awesome job!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

How did this volunteer experience make you feel?

It has been the peace in my heart that I can not be without.

Was this review helpful? 
1 previous review
Rating: 5 stars  

Cherubs is desperately trying to help save our babies lives. With little money for research and having the awareness of Congenital Diaphragmatic Hernia next to nothing we struggle every day doing what we can to get information to expectant families. 50% of the babies don't survive which is why I believe this sad diagnosis is unheard of. I believe that any help offered our charity will be taken with thankful hands. We are so grateful for any support offered to our members.

Sincerely,
Tina DeForge

I've personally experienced the results of this organization in...

My daughter was born with Congenital Diaphragmatic Hernia. Given a 50% chance of living we prayed day and night. CHERUBS gave helpful information and hope to us when we had never heard of her condition.

If I had to make changes to this organization, I would...

If I could personally help more with awareness and research I would.

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

My son Aidan was born on June 6, 2006 with severe LCDH. On June 18, 2006 Aidan earned his angel wings. It took me many years of grief and sorrow until I finally found Cherubs. All I can say is thank God I found them. I have finally, years later begun to heal by helping other families walking the same path I faced alone with my husband. Dawn is not only the head of Cherubs, she is a friend and a support system for so many. I don't know where I would be without the love and support of these amazing people.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 1 stars  

4 people found this review helpful

I was a member of Cherubs and will have NOTHING to do with this organization ever again. It is nothing but drama. If you say something that Dawn doesn't like you get censored and warned like a child. She is very selfish and everything revolves around her. Cherubs is constantly asking for money and donations and yet you never see the money leaving the organization or people being helped. When I first found Cherubs I was desperate for answers. I scoured the website and found nothing but dead ends. I tried emailing numerous times and got NOTHING. It wasn't until I started finding people on Facebook that I was able to get answers. Sadly it was accompanied by drama. Dawn doesn't let Cherubs members do any other kind of fundraisers for groups that aren't Cherubs. She has gotten mad at Moms for starting their own non-profits in memory of their deceased loved ones, raising money for March of Dimes, doing fundraisers to help other CDH families and lots of other fundraisers. If money isn't being raised for Cherubs than it isn't "right." They are also good at bullying and being mean to other organizations that don't help them win money. Ask any Team SF member about the Vivint contest. Nothing but hatred and bullying coming from Cherubs members. I will never support this group and encourage others not to support it also. Once you open your eyes and really realize what goes on you would be appalled.

Would you volunteer for this group again?

No

For the time you spent, how much of an impact did you feel your work or activity had?

None

Did the organization use your time wisely?

Badly

Would you recommend this group to a friend?

No

When was your last experience with this nonprofit?

2012

Was this review helpful? 

We just asked for reviews on CHERUBS Facebook fan page so you must have read our request there. Thank you for being a fan. :) I wish you had signed your real name so we would have an idea who you are and what your issues are so we could respond. Or if you had called, emailed or otherwise contacted myself (Dawn) or any other Board Members to help resolve your issues. Unfortunately, posting anonymously about things that are untrue (as our 17 years as a charity and helping others start their own non-profits reflects and support of 4000+ families has shown) is not constructive. I am sorry that you feel unsupported and that your opinion of our charity is negative based on misinformation you received via Facebook. If you would like to talk about your issues, you can call 919-610-0129 or you can reach any of our Board at abarry@cherubs-cdh.org, thally@cherubs-cdh.org, dsilverman@cherubs-cdh.org, khess@cherubs-cdh.org or myself at dawn.williamson@cdhsupport.org We wish you all the best on your CDH journey and are here if we can help in any way. http://www.cdhsupport.org