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April 29, 2011
1 person found this review helpful

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April 29, 2011
1 person found this review helpful

My grand daughter was born with CDH. My daughter was having a hard time with her baby's condition and the doctors were telling her that her daughter would probably not survive. CHERUBS made a big difference in her life when she found other families in the group that let her know there was hope for her baby to get better. I appreciate everything the support group has done for them.

The Great!

I've personally experienced the results of this organization in...

watching my daughter interact with CHERUBS.

Ways to make it better...

If I had to make changes to this organization, I would...

.

April 29, 2011
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April 29, 2011
1 person found this review helpful

My daughter Sofia was diagnosed with CDH at 18 weeks into my pregnancy. I spent the first several months scared and confused while my daughter had her first surgeries and struggled to live. I had never heard of CDH and didn't know what to expect.

I was contacted on MySpace by the
founder of CHERUBS during that time. Dawn had found me by searching for people who had listed CDH on their profiles. She had invited me to join the CHERUBS forums and get to know other CDH families.

I gained access through the CHERUBS web site to detailed information about my daughter's condition and to many families who were going through what I was with CDH and the families who had already overcome the long hospital stay that encouraged me daily. They also asked for prayers for my daughter when she had to have her patch re-attatched after she grew too fast.

The founder and members have always been very positive and are always focused on helping the families out by providing totebags with info and goodies for the new parents, prayer chains for the CDH babies and kids who arent doing well or need surgery, or having baby showers to provide the CDH families with several items. The group is also fighting daily to push research on CDH to find the cause and a possible more suitable fix than a patch that won't stretch when the child grows on next to no budget. They are spreading awareness to the public that a virtually unheard of birth defect called CDH will cause 1/2500 babies will be born with their stomach contents out of place, and of whom only 50% will survive.

My daughter did survive, but the son of a friend I'd met through CHERUBS didn't. The founder of the group, Dawn, drove 3 hours one way to be with the family at the hospital to support them as their son struggled to live. Again, she drove 3 hours one way to attend the funeral for their son several days later.

CHERUBS supports many families around the world and without the support group I would be totally lost. The members have become an extended family to me.

I highly recomend this support group to anyone who is dealing with CDH or just wants to know more about CDH.

Photos

The Great!

I've personally experienced the results of this organization in...

the emotional support I have recieved by the members of the group daily during the ups and downs while raising my CDH daughter.

Ways to make it better...

If I had to make changes to this organization, I would...

have more pamphlets on CDH available in doctors offices. I had no idea what CDH was when my daughter was diagnosed with CDH during pregnancy. The information I found online barely explained CDH. At that time I did not know of any support groups for CDH. Unfortunately CHERUBS is doesn't have the funds to do that and would need more donations and grants to spread that kind of awareness.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

The founder searched for people dealing with CDH and invited me to join the support group.

What, if any, change in your life has this group encouraged?

The group has encouraged me to stay positive about my daughter's birth deffect and to educate others about it.

When was your last experience with this nonprofit?

2011

April 29, 2011

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Review from Guidestar
April 29, 2011

CHERUBS mission is solely to help babies born with Congenital Diaphragmatic Hernia and their families through research, awareness and support services. For 16 years we have provided free services to make the journey of CDH a little easier for 1000's of families around the world.

CHERUBS
is a public 501(c)III non-profit organization run by caring parents, grandparents and survivors with a medical advisory committee composed of the leaders of CDH Research. Our members and volunteers have hearts of gold and work as a team putting the big picture of helping all CDH babies first.

We are run as a charity - with the heart of a charity. All donations go to further our services, all of our services and project go to help these babies. We never trademark or copyright, we promote CDH Awareness rather than our own branding, we have never spent a penny in legal fees, we work with other charities and organizations, we support all families and have helped many other CDH charities get started directly and indirectly. Our focus is the always, always the babies and families.

It is this open-hearted outlook and determination that has made us the world's first, largest and most active CDH charity and that has made us successful in helping families.

The Great!

I've personally experienced the results of this organization in...

I am the President and Founder, founding the charity in 1995 when my own CDH child was 2 years old. I was alone in dealing with CDH and didn't want any other parent to go through this without information and support. CHERUBS is named for all children lost to CDH, is not created in honor/memory of any specific child and was created on a foundation of compassion, kindness and sincere desire to help others.

Ways to make it better...

If I had to make changes to this organization, I would...

More volunteers, more funding, more services!

April 29, 2011
1 person found this review helpful

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April 29, 2011
1 person found this review helpful

Cherubs is a great organization for families affected by CDH. I found out that my daughter was going to be born with left CDH when I was only 21 wks pregnant. I did lots of research and found cherubs on the internet. Their website helped me understand what CDH was and how serious CDH can be for babies. I was scared to death but found lots of families through their organization to help support me and give me hope. Cherubs sent me a tote bag with all kinds of information of CDH before I had Natalie. My husband and I called it the gold bag because it had all the information we needed to understand our daughter's health condition. Natalie had a hard first few month of life in the NICU but it now a happy 16 month old baby. Thank you Cherubs for everything you all have done for our family!!!

Photos

The Great!

I've personally experienced the results of this organization in...

Cherubs was always their when I need support or had question about CDH.

Ways to make it better...

If I had to make changes to this organization, I would...

help bring more awareness of CDH.

February 25, 2011
1 person found this review helpful

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Review from Guidestar
February 25, 2011
1 person found this review helpful

CHERUBS truly has become apart of my family. After learning the diagnosis that my daughter would be born with CDH 10 years ago CHERUBS is the first site I found that had so much information and support to offer. Even after her death I continue to be amazed and inspired by so many families working together to support one another with the president of CHERUBS, Dawn, leading the way. Without her tireless efforts so many families would not receive the support they so desperately need.

The Great!

I've personally experienced the results of this organization in...

meeting many families over the years that have been affected by CDH. Receiving support during the worst of times, information and research to read and help make educated decisions.

Ways to make it better...

If I had to make changes to this organization, I would...

Change nothing. I only wish for them to get more funding and the help they deserve to keep running and helping others.

February 15, 2011
1 person found this review helpful

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Review from Guidestar
February 15, 2011
1 person found this review helpful

When our daughter was diagnosed with CDH we had no idea what it really was and how many other babies and families were affected by it. We received a box with gifts information and encouragement from parents who had been through it before. So much is accomplished by this organization with the few people and few resources at its disposal. Knowing that our baby girl is a cherub and that she is in good company and bringing together so many familes is more than I ever thought would happen when we heard about this condition.

The Great!

I've personally experienced the results of this organization in...

The way my stress levels have gone down knowing that other people have been there and know exactly what its like.

Ways to make it better...

If I had to make changes to this organization, I would...

More personalized messages or notes ro families and maybe more staff to be able to make that happen?

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3 hours of volunteer time for this nonprofit will...

Put together 50 informational packets for CDH families. Volunteer