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July 6, 2011
2 people found this review helpful

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Review from Guidestar
July 6, 2011
2 people found this review helpful

I am the parent of a child with Congenital Diaphragmatic Hernia. While I have not been a member of CHERUBS, I commend this charity's work, honesty, ethic and perseverance to the cause in the face of adversity.

The Great!

I've personally experienced the results of this organization in...

n/a

Ways to make it better...

If I had to make changes to this organization, I would...

n/a

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Another charity.

May 1, 2011
1 person found this review helpful

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Review from Guidestar
May 1, 2011
1 person found this review helpful

I have to say, that although my son is a survivor of CDH (almost 28 years now) I have been blessed to have been able to connect with Dawn Williamson and so many wonderful, caring,m giving people through CHERUBS. Back then, we were given very little details about CDH..we were only told it was life threatening and that my son would spend quite a while in the NICU. After all of these years, I have found out so much information about CDH, I feel more empowered to move forward and teach others about it, make them aware of it and do my best to try to get funds to bring research for CDH, so that, maybe, in my lifetime..it will no longer be a potential death sentence for babies. I am so grateful for this organization and for the people running it, the people who have joined it and for giving me a place to connect and learn. I hope someday to "pay it forward"..to help others the way they have helped me.

The Great!

I've personally experienced the results of this organization in...

I have been given so much information, so that I may go forward, to educate my friends and family and hopefully, when my own child has a baby of his own, that he will know enough about the condition that almost took his life..that he too will become educated and aware.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing..it has been a Godsend for so many

April 30, 2011
7 people found this review helpful

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April 30, 2011
7 people found this review helpful

This organization was formed for one person's ego, Dawn Torrence Williamson, who still calls herself a grieving Mother. She attempted to file suit against Duke Medical Center and their doctors for her son's condition. The name of the organization is based upon her own son and the decorations she chose for his nursery - that is public record with "her story" she has posted out on anything and everything she can.

She has banned members because they asked too many questions - or they left and then she "banned" them. Then she tells all she can use their photos because they signed a contract and threatens to sue them. When if she banned them, she negates the contract - therefore she can't use said photos.

Until she is ousted from the CDH community and this organization the "drama" will continue because she is the source of it. She has filed suit against other organizations and defamed them all over the internet, even encouraging others to attack the volunteers of other organizations.

This organization was ignored from 2000 - 2007, only to come back because another organization was forming. It was never about these families or these children. It was about one person and her ego. She continues to bash others and lie. The materials and website have misinformation all over them and too many state there is nothing but doom and gloom when visiting it.

Research is not taking surveys, especially ones that ask if you ever were struck by lightening. There is no official Board of Directors, the doctors she lists want nothing to do with her organization and do not have on their CVs that they are Board Members.

Where did the $30K go to? Office space? Parades? How is that cost effective? Truly this woman needs to be outed for what she is and uneducated, ignorant, lying drama queen who does nothing but play on the Internet all day.

The Great!

I've personally experienced the results of this organization in...

There are no results, they ride on other's coattails.

Ways to make it better...

If I had to make changes to this organization, I would...

Oust Dawn Torrence Williamson

More feedback...

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

How did you learn about this organization?

It was the first - therefore on the Internet - but first doesn't mean the best nor does it mean well run.

When was your last experience with this nonprofit?

2007

April 30, 2011
1 person found this review helpful

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April 30, 2011
1 person found this review helpful

When I found out that my baby was going to be born with CDH, it seemed that there were no medical professionals that could help me understand what it was. I googled different things and I kept coming to a website and a foundation called Cherubs; they accepted me with love and support, arms wide open. I learned so much and having people who understood how I was feeling made my journey a little bit easier. My son passed away and six years later I still feel so much support and appreciation knowing that Cherubs is helping families and babies with CDH... the research is so important; this foundation is so important!

The Great!

I've personally experienced the results of this organization in...

my journey through grief and acceptance.

Ways to make it better...

If I had to make changes to this organization, I would...

give them more money to do all that they need and want to do.

April 30, 2011
1 person found this review helpful

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April 30, 2011
1 person found this review helpful

My daughter, Theresa, was diagnosed with CDH @ 24 weeks gestation. CHERUBS' website provided great insight into the condition, and speaking with volunteers, the coordinator, and finally meeting families like ours really helped while we were dealing with the diagnosis, the treatments, and all of the trials and triumphs that are associated with having a survivor of CDH. They do a lot for families like ours all over the WORLD! It is a great organization, and it truly provides support for families of CHERUBS on earth and in heaven!

The Great!

I've personally experienced the results of this organization in...

my daughter's diagnosis and treatment

Ways to make it better...

If I had to make changes to this organization, I would...

like to see it expand even further!!!

April 30, 2011
1 person found this review helpful

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April 30, 2011
1 person found this review helpful

Hi my name is Evelyn in a parent of 3 . My youngest was diagnosed with cdh and unfortunately passed on and earned his wings. I found Cherubs during my time of greiving and found comfort in the words of inspiration that they gave me. I suppprt them always in memory Of my son and all that have earned their wings and those that continue to suffer. Cherubs helps new members and the old ones aswell. They educate us with new findings and updated info. I'm extremely proud of all the members and staff. Cherubs rocks!!!!!!!!

The Great!

I've personally experienced the results of this organization in...

In the support they have given me. Ihave also made so new dear friends.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't . I will keep supporting them 100%.

April 30, 2011
1 person found this review helpful

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April 30, 2011
1 person found this review helpful

CHERUBS is the world's first and largest Congenital Diaphragmatic Hernia (CDH) support group, and research group. It is 100% volunteer driven,100% of the funds go to help families, and promote awareness and research to find a reason why this happens to our children.

I use the term "our",
because until March 1, 2010 I had never heard of CDH either. My partner, Chris, and I were expecting our first child, and how happy we were! That day we were going to see our baby at its 19th week ultrasound and find out if we were having a boy or a girl. We found out we were having a boy, and also that he had CDH. We were told at best he had a 50% chance for survival, sent home with a choice, and no information about CDH or anyplace we could find support. We found CHERUBS through a Google search for CDH, and how lucky we were. Not only did we find a wonderful, loving community that embraced us, but CHERUBS is also headquartered in Raleigh, NC, which is about 90 minutes from our house.

We had the pleasure of meeting Dawn in person at The Great Human Race held March 23, 2010 in Durham, NC. CHERUBS was one of many groups that participated, and we walked - we walked for our son who was at 23 weeks, we walked to remember those children who have been taken by CDH, such as Shane, and for those who fight everyday to live with this condition. In April, we received our HOPE tote bag from CHERUBS, filled with items other families have made or purchased to help expecting CDH families like ourselves prepare for their child's arrival and time in the NICU. In June, we also participated in a "Save the Cherubs" photo shoot of local families, as the expecting family. These photos were used to create awareness campaign posters. These events are just a small example of projects organized and executed by CHERUBS.

Through the weeks after our diagnosis, CHERUBS was with us every step of the way, every appointment we would update the community, and voice our fears and our hopes. The whole CHERUBS community was praying for us the day our son, Oz (Hebrew for strength) was born, July 21, 2010. Within 30 minutes of life, the doctors, who monitored us rigorously to prepare for this moment, knew our Oz wasn't going to be in the 50% who survive. My family called CHERUBS. We had 2 CHERUBS moms there by our side within 2 hours, and to meet our son. They brought him a blanket and teddy bear, they held his tiny hand, and stayed until he was no longer with us 10 hours later. The next day, CHERUBS board of directors came together to form the Oz Kidd-Ward memorial scholarship to assist CDH survivors going to college, what an honor for our family. Several members also attended Oz's funeral July 27, 2010. They has been a shoulder and confidant these weeks after Oz's passing. Without the support of the CHERUBS community, I know making it to this point would have been much, much harder.

Every week, every day more babies are brought to our attention who have just been diagnosed, who are fighting, and who have heartbreakingly passed, and CHERUBS is there for each family to provide support.

The Great!

I've personally experienced the results of this organization in...

The people I have met since becoming involved with CHERUBS have changed my life forever. These are impassioned parents, looking for answers as to why this condition strikes our children. CHERUBS has given me an outlet to work through, to try and help other families who have found themselves on this journey.

Ways to make it better...

If I had to make changes to this organization, I would...

none at this time

April 30, 2011
1 person found this review helpful

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April 30, 2011
1 person found this review helpful

I am currently 34 weeks pregnant with a baby diagnosed at 20 weeks with CDH (Congenital Diaphragmatic Hernia). We were told our baby had little chance of survival (50% or less). He is our first pregnancy/child. We were devastated, lost, felt helpless, and worse, knew no one that had been through the same thing.

We came across Cherubs one day - we joined right away. We were sent a care package in the mail a few weeks later, filled with thoughtful items for our imminent, long journey in the NICU. We have now been able to talk to many families to give us hope and comfort. Now, I am only a few weeks away from delivery and we have confidence that we have the support we need to get through the hardship we have ahead, thanks to Cherubs.

The Great!

I've personally experienced the results of this organization in...

I personally received a thoughtful care package through this organization and have received much needed emotional support.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes - this organization makes a difference in people's lives.

April 29, 2011
1 person found this review helpful

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April 29, 2011
1 person found this review helpful

My son was born December 17, 2004. We found out two days before his birth that he had a condition known as a Congenital Diaphragmatic Hernia or (CDH). He was only given a fifty percent chance of survival, and that was only in the event thathe was able to take his first breath after birth. We were fortunate to be transferred to UNC Childrens Hospital and the staff tried to assist us with our son and this condition.

Once Brandon was born, we scoured the internet for any information that we could find. The only information out there at that time were case studies and this site that we found called Cherubs. They gave us vital information and was the only venue we could find that gave us a glimmer of hope. Since Brandons birth they have reached out to us and many families who have be devestated by this horrible birth defect.

I cannot say enough good things about all the great work that Dawn and all the volunteers do for these babies and families. They have devoted their life to ANYONE world wide who has a child, or family member born with this. Not only do they offer hope and emotional support to those families, but they reach out to those who have lost a child to this condition. They fight to to give these babies a voice, and they are driven to find a cause so that no other baby might be born with this.

I cannot speak strongly enough about how my family feels about Dawn and CHERUBS. Thank you just doesn't say enough for all that they did and do for so many families including ours.

The Great!

I've personally experienced the results of this organization in...

I have personally experienced the results of this organization after the birth of our son Brandon. They provided us with a wealth of much needed information on CDH, and they also have given my family the gift of friendship and emotional support through many of their vast support services.

Ways to make it better...

If I had to make changes to this organization, I would...

There are no changes I would make to this organization. The only thing we could hope for is that the good things they have done would grow to even larger level. So much research needs to be done so that no baby in the future might have to experiece this. This is one of the many aspects that this organization tackles on a daily basis. Most people such as myself do not even know what a Congential Diaphragmatic Hernia is until it happens to someone they know or to their baby.

April 29, 2011
1 person found this review helpful

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April 29, 2011
1 person found this review helpful

My grand daughter was born with CDH. My daughter was having a hard time with her baby's condition and the doctors were telling her that her daughter would probably not survive. CHERUBS made a big difference in her life when she found other families in the group that let her know there was hope for her baby to get better. I appreciate everything the support group has done for them.

The Great!

I've personally experienced the results of this organization in...

watching my daughter interact with CHERUBS.

Ways to make it better...

If I had to make changes to this organization, I would...

.

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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
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3 hours of volunteer time for this nonprofit will...

Put together 50 informational packets for CDH families. Volunteer