11 people found this review helpful
Cherubs The Assoc of Congenital Diaphragmatic Hernia Research
Invite reviews
Invite friends and colleagues to share their experiences with this nonprofit
Featured Review
May 4, 2012
11 people found this review helpful
I was only 10yrs old when I first learned about CDH. My family was super excited about another baby coming into our family. I was hoping for another sister and my brother was hoping for a brother. I knew something was wrong, when the tech ask my dad to take us out of the room. I had no idea what to think. What seemed like a life time, was only a few minutes. My dad came and brought us back. Mom was crying and now the doctor was in there. The first thing they told us, was it was a girl. I was so excited. But I knew there was a long pause and when my parents did that there was something bad coming. All I recall was that the baby would need a lot of work. I told the doctor I would help and do as much as I could. He smiled and just shook his head. During the rest of my mom's pregnancy, I would help her find information on what CDH was. Before my mom was to deliver, I got to tour the NICU. This was not exactly where I was hoping my baby sister would have to come to. But the place was filled with nurses that understood exactly what these special babies needed. My parents told them that they got their information from CHERUBS. The nurses all smiled and said that thet was the best source of information. My mom delivered my sister, Allison Faith, I got to see her hooked to machines, and even though she would fight a good fight, I stood in that NICU, and knew that CDH needed more awareness. From that day since, I decided that I want to be a NICU nurse. I will be a walking talking billboard, for CHERUBS. I plan on even doing a project in school to raise awareness for CDH. CHERUBS helped my family and I plan on paying it forward. Thank you CHERUBS for helping this family.
The Great!
I've personally experienced the results of this organization in...
I have seen this small group move mountains, to raise awareness. I loved to hear all the states that help CHERUBS on April 19.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
How did you find this group?
My mom found about it when she was pregnant.
What, if any, change in your life has this group encouraged?
You can do anything if you put your heart into it. Again, with the many help of volunteers and myself, we will have the world know what CDH is and CHERUBS will be the group that makes that happen.
May 21, 2013
I learned about CHERUBS in 2012, when we found out our unborn son (who is now almost 10 months and kicking CDH booty) had CDH. CHERUBS is amazing and a great support system.
Ways to make it better...
If I had to make changes to this organization, I would...
I wish more people knew about CHERUBS and more money was donated but hey they are doing everything possible to make it happen and are doing amazing things.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
2 people found this review helpful
April 4, 2013
2 people found this review helpful
I'm a co-rep in the uk for cherubs. My son was born in 2001 with left sided CDH. Cherubs helped us a great deal. We never felt alone with our cherubs family x
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
April 4, 2013
1 person found this review helpful
I've been a volunteer Rep for Cherubs for over 12 mths now. My daughter is a CDH "survivor" despite her surviving Cdh she has endured many struggles and continues to do so. The reason I volunteer for this wonderful Unique charity is because they supported us not only during our pregnancy but have continued to support us continuously. They are unique because as many have already said . Once you become a Cherubs member you enter into a family unit. It doesn't matter what depth of support you need or how much you donate every member is equally supported . I know what I have to offer is valued , I know the money I raise is used to help families on their Cdh journey and in research to help so in future there is hope that no other family endure this horrible condition . I'm about to jump out of a plane to raise much needed awareness & funds for Cdh. I've met other members , our siblings have met and are now life long friends too , with other children who understand their journey. There is no other like them . I'm not in the same country as their Head Quarters yet I feel so close to them . Thank you Cherubs & all members for all you do :) united we will conquer
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
May 4, 2012
I am a mummy in the UK. We learnt our daughter had a LCDH at our 20 week scan back in 2009, our world crumbled as we were advised to terminate her. No way! We went home & hit the Internet and found Cherubs. It didnt matter that they were based in the USA. The support we received was from members all over the world. I shared my pregnancy with other mums and dads. We learnt that the outcome could go 50/50 . Nobody gave us false hope but supported me when I had melt downs whatever time of day. Having members all over the world meant 24/7 someone was on line to lift you up when you were in total despair.Our daughter was born March 2010 and did well. Stomach,bowels , intestines & spleen all up .At 5 days old she had a large gortex patch repair. Then open heart surgery at 15 days old to repair a coarctation of her aorta with pa banding. Cherubs members have been my saviour . Which is why I chose to become a volunteer for them here in the UK. They do such fantastic work Raising Awareness of CDH, Research and supporting those who find themselves on this journey. They have helped me Raise Awareness here in the UK. Our daughter recently had her PA band removed but during the open heart surgery suffered brain damage. She is now unable to eat, sit, walk or do any of the things she battle so hard at birth to learn to do. Cherubs continue to support us as we do them. No one forgets you, survivors & non survivors are treated the same . Its a family we feel privilaged to be a part of. 2 years on our support is just as strong. I only hope one day we get to meet Dawn and some of the amazing people who fight every day to have CDH recognised .We will continue to fight here in the UK as many members do all over the world. We cannot thank Cherubs enough for all they have done & continue to do. Cherubs has taught me always nothing is done for anyone individuals ego or showman ship! ITS FOR THE BABIES ! and if everyone thought this way the world of CDH woulld be a much better place. THANKYOU Cherubs xxxxx
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
May 1, 2011
1 person found this review helpful
I am Mother to 13 month old CDH survivor.At our 20 week scan we learnt we were expecting a daughter but that she had Cdh.Very little information was given to us. At home we googled cdh and found Cherubs.Although we are in the uk & have a Cherubs here,nothing & nobody has ever given us more support than Cherubs in the USA and Dawn.Through this wonderful Mothers courage & determination to be heard on behalf of all our babies & in memory of her son Shane we have been able to cope through the last 2 years.I have a wonderful support network across the world.This has inspired myself & family to raise funds & awareness here in the uk. Dawn & the charity she works so hard to maintain with the help of volunteers are a true inspiration to many.From the uk i thank her wholeheartidly for always being there .
The Great!
I've personally experienced the results of this organization in...
the journey of my cdh surviving daughter.
Ways to make it better...
If I had to make changes to this organization, I would...
nothing
April 4, 2013
2 people found this review helpful
2 of my 3 children were born with CDH, Cherubs has been a great place for me to find support, information and just talk with others who have been through what we have. They do amazing things to help educate people on CDH and families affected by it.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
April 30, 2011
1 person found this review helpful
10 yrs ago when the doctors told us our son Claude, would be born with CDH, we were clueless. We found CHERUBS and what a great place for support. 5 1/2 yrs later when Celie was born we found out she had CDH as well. I agian found strength and support with them. CHERUBS does so much for the families that are lost and dont know where to turn. I am thankful everyday I found this group and that it is here for other families as they go through this journey.
The Great!
I've personally experienced the results of this organization in...
The awareness and research they are helping to get for the CDH community
Ways to make it better...
If I had to make changes to this organization, I would...
Change their bank account so there was money to really get the campaigns out there. Most people have never even heard of CDH.
April 4, 2013
1 person found this review helpful
CHERUBS IS NOT JUST A SUPPORT GROUP ~ ONCE A MEMBER YOU BECOME FAMILY ! They are there through the ups and downs of that CDH rollercoaster and always provide support, love and comfort. I dont know where my family would be without them . When my granddaughter was diagnosed at 17 weeks I didnt know where to turn when the doctors were telling my daughter it was best to just abort the pregnancy because the survival rate was not good. They couldnt answer the numerous questions we had so I went to the computer and researched it , there I found my new found "family" , people whom I could tell my fears and ask questions that the doctors couldnt answer , these members were there , and they could respond with HOPE , because they have been on this roller coaster ride themselves and know the journey were were about to take. CHERUBS has members all over the world , so there is always someone to talk to no matter what time of the day it is
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
August 9, 2012
1 person found this review helpful
My Grand-daughter was diagnosed with CDH ( congenital diphragmatic hernia) at 17 weeks gestation , at first she was misdiagnosed and finally they sent my daughter into a hospital in Boston and they realized what it was , not that they gave my daughter much hope , the doctors kept trying to talk her into an abortion stating that the chances of the baby surviving werent good at all , which they are right , babys born with CDH only have a 50% chance of survival . That is the only information that they had for my family so I went to the internet to research and thats where I found CHERUBS ~ families who have been , are going or had gone through exactly what my family now faced ...when you first receive diagnosis you feel all alone ...once you find your way to CHERUBS , you find a new "family" one that gives you much hope and support ....they will ride that CDH rollercoaster with you over and over and be there no matter what , as I said " family" , all over the world ~ I dont know what we would do with out them !
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
May 3, 2012
1 person found this review helpful
My granddaughter wad diagnosed with cdh at 17 weeks gestation ..at first doctors didn't know what the problem was they thought it was CCAM after many tests they finally diagnosed with CDH..not that they had much information to give us other than the survival rate was not good and my daughter should terminate the pregnancy. With no information from the doctors I researched the internet and found CHERUBS ..our salvation ..this is more than just a support group..its a family...a family that has members all over the world who are readily available to give you support when needed from people who know exactly what you are going through. Because they have been there. I am so glad to have found CHERUBS and proudly call them "family"
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
February 25, 2011
1 person found this review helpful
When my granddaughter was diagnosed with CDH the doctors didn't give us much information so I took to the computer and found CHERUBS ~ thank God ! I found a fantastic support system that has been there every step of the way , people who actually know what you are going through because they have been through it themselves . What a surprise it was when one day I came home from the hospital after visiting my granddaughter to find a package from CHERUBS with so much information, and things we would need to use while she was in NICU , like hand sanitizer, camera, even a coloring book for my grandson to help explain to him at his level what was going on with his new sister. THANK YOU CHERUBS FOR ALL YOU DO FOR ALL OF US ALL OVER THE WORLD !! With CHERUBS you get more than support you get a whole other family !
The Great!
I've personally experienced the results of this organization in...
Boston MA
Ways to make it better...
If I had to make changes to this organization, I would...
If I had to make changes to this organization I would give it more money so that they are able to raise much more awareness say like in tv commericals etc so that more people are aware of this disease .
2 people found this review helpful
April 3, 2013
2 people found this review helpful
I have been involved with CHERUBS since my son was born in 2008. I did not know he was going to born with CDH and knew nothing about the birth defect. Too afraid to look for information while my son was in NICU, I learned everything I needed and wanted to know about my son's condition from the experienced parents at CHERUBS. Everyone is so helpful and friendly. CDH can be a lonely place and it's so comforting to know that I have a family to support me at CHERUBS. I have been able to connect with several families in person over the years as well. Amazing!
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
April 3, 2013
2 people found this review helpful
I have been involved with Cherubs for four years and they have become such a family to me. It started off just as a member and felt nothing but support and kindness throughout the charity. Then I started to volunteer to help me work through my grief and support others. The services Cherubs offers are nothing but the best. They make you feel included and loved, no matter what state you live in. Finally I was asked to be a board member. I have never been so honored in my life. I enjoy working with everyone from the top to all our members all over the US an abroad. Cherubs has changed my life for the better.
More feedback...
Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2013
May 3, 2012
2 people found this review helpful
My daughter was born February 2009 since then I have been involved with CHERUBS. My experience has been wonderful. We are like a big family that you can rely on for support. I have held numerous fundraisers in memory of my child and have felt the knowledge and support Dawn and her team offer is amazing!! I can't imagine my life without Cherubs. Great Organization!!
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
April 3, 2013
2 people found this review helpful
CHERUBS has helped me in so many ways. I didn't find them until after my son passed away, but when I did I was able to work through my grief with others in my position.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
May 3, 2012
2 people found this review helpful
This charity has been very helpful to many across the world! I am proud to help those who are going though what I went through.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
April 3, 2013
3 people found this review helpful
I want to give CHERUBS a HUGE shout out for all that they have been doing. Ever since I became a part of this heartfelt charity, I have seen CHERUBS grow by leaps and bounds. CHERUBS is like a FAMILY everyone treats you like you mean something to them, it does not matter HOW CDH has affected you. CHERUBS DOES NOT stand in front of you, or stand behind you, CHERUBS STANDS next you, holding your hand, giving a hug, sending positive thoughts, or praying for you. CHERUBS does not just go away if you lost your child to CDH or if your child is a survivor, they are there for LIFE. I am very excited to be a part of this AWESOME group as CHERUBS raises CDH awareness for the MONTH OF APRIL, but all year long.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
June 20, 2012
CHERUBS, what can I say about them? The group is one that takes the extra step to make sure you are taken care of. My life changed with the announcement of my baby having CDH. If you want the most update information about CDH contact CHERUBS. The entire group from the workers, volunteers, to support groups, and all those that have been touched by CHERUBS, is wonderful. Without any of these people, I would had a nervous breakdown. My loss of a child to CDH is not the only one, I have a group of friends that I found through CHERUBS, that I call my family. Thank you CHERUBS for all that you do, for everyone.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
Filter by reviewer role:
- Volunteer34
- Client Served42
- Expert0
- Public20
- Board Member4
- Donor4
- Advisor0
Support This Nonprofit
Help this nonprofit get more reviews
5 tips for getting reviews