Celiac Sprue Association USA, Inc.

Rating: 5 stars   7 reviews

Issues:

Location: PO Box 31700 Omaha NE 68131 USA

Mission: CSA is a member-based, non-profit organization dedicated to enchaning the lifestyle of those with celiac disease by developing and disseminating educational materials and gluten-free diet information world wide and to support and publicize related research; to serve as a vehicle for mutual support opportunities; and to work for improved food labeling practices for ingredients that affect those maintaining a gluten-free food plan.
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Community Reviews

Rating: 5 stars  

I do not have celiac disease, but my friends do and I have seen, first hand the impact of this volunteer based organization. I have been in the CSA office when the toll free phone has been ringing off the wall with people needing help, asking questions about their disease. The wonderful, caring staff work very hard to make everyone that contacts them feel important. I have also worked to help with the educational offerings that CSA distributes. They have a great collection of printed material and an extremly popular website. I know many use and trust the CSA Product Listing. Truly, CSA members live the CSA motto-"Celiacs Helping Celiacs!"

I've personally experienced the results of this organization in...

seeing my friends helped and educated by CSA in regard with their celiac disease.

If I had to make changes to this organization, I would...

make them more aggresive in promoting themselves and getting the word out about the many CSA programs.

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Rating: 5 stars  

5 people found this review helpful

This organization for individuals with celiac disease and dermatitis herpetiformis is really a dedicated and caring group to work with and at a very professional level. They have a motto of "Celiacs Helping Celiacs" and they really do just that. I have learned much from their website and the many free materials they distribute. They have a wonderful newsletter and I would reccomend buying their CSA Product Listing. It is the bible for people with celiac disease. Thank you, thank you, thank you CSA.

I've personally experienced the results of this organization in...

They answer every question and have a great toll free number.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

5 people found this review helpful

I found out about this organization in the 1980s. Having been originally diagnosed in the 1940s and again in the 1960s, I was looking for help. CSA was able to help me with my diet and by my attending their national conferences and local support groups, I learned even more about my disease. This experience enabled me to better communicate with my physician and take control of my illness.

I've personally experienced the results of this organization in...

see review.

If I had to make changes to this organization, I would...

enroll more volunteers.

What I've enjoyed the most about my experience with this nonprofit is...

Meeting other celiacs from across the country.

The kinds of staff and volunteers that I met were...

Super!

If this organization had 10 million bucks, it could...

Do wonders and help end this disease.

Ways to make it better...

couldn't have been better.

In my opinion, the biggest challenges facing this organization are...

Membership and fund-raising

One thing I'd also say is that...

When was your last experience with this nonprofit?

2010-8-01

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Review from Guidestar