1 person found this review helpful
CARCINOID CANCER AWARENESS NETWORK INC
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July 23, 2012
1 person found this review helpful
This nonprofit organization is run by a wonderful person that is unbelievably committed to the her cause. Maryann Wahmann spends so much time focused upon increasing the awareness of Carcinoid Cancer and goes far beyond what one would expect for any patient that seek education. A truly worthy cause.
More feedback...
How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
June 22, 2011
1 person found this review helpful
CCAN is the result of a truly dedicated team focused on the support of Carcinoid/Neuroendocrine patients and their families.
The Great!
I've personally experienced the results of this organization in...
I've participated in a patient-oriented conference sponsored by CCAN.
Ways to make it better...
If I had to make changes to this organization, I would...
Perhaps the single suggestion one could make would be to ensure that NET physicians are available to discuss specific patient questions as they are raised. I recall reading with some pain the story of a patient who travelled to South America for surgery for a Carcinoid lesion of the heart when 5 prior patients with a similar problem had been managed with targeted nonsurgical therapy by the Mt. Sinai team in NYC. This type of patient could benefit from appropriate physician input at a critical time.
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