CARCINOID CANCER AWARENESS NETWORK INC

Rating: 4.99 stars   80 reviews

Issues: Health, Cancer

Location: 2480 Hull Ave North Bellmore NY 11710 USA

Mission: WE'VE CHANGED OUR NAME FROM CCAN TO NCAN TO BETTER REFLECT THE COMMUNITY WE SERVE. We are a non–profit charity whose mission is to intensify awareness of Neuroendocrine Tumors & Carcinoid Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years CCAN has produced over two dozen conferences. Many are available to view on our website. DVD’s & CD ROMS are available. Our toll free phone support line is answered by a patient and caregiver. Call today for your free information packet. We also provide funding for research into Carcinoid Cancer and other Neuroendocrine tumors.  
Results: 2013- Year in Review Patient Conferences Keep Patients Updated on the Most Current Practices CCAN was proud to help with sponsorship of two Conferences. Jan in San Francisco and the other in Lexington, KY. We were able to produce six regional conferences, (NYC, Nashville, TN, Orlando, FL and Los Angeles, CA, Cruise) thanks to the generous sponsorship of Inter Science Institute. We hosted the first ever conference for Lungnoid only in Nashville and a conference on a cruise. Over 650 patients attended these events. In June we participated in a fundraiser in Charlotte, NC. The ‘2nd Annual Smokin’ Butt Fest.’ What a fun event with great food and prizes. CCAN was there to lend a hand at the North American Neuroendocrine Tumor Society's NANETS Regional Symposium in Nashville, TN and at NANETS' National Meeting in Charleston, SC. Worldwide NET Cancer Awareness Day & NET Cancer Awareness Month 5th Annual 'Strides for Stripes Zebra Walk.' On November 2nd over 500 people came to walk in support of NET cancer patients at our 5th Annual 'Strides for Stripes Zebra Walk.' It was an exciting day, with an antique fire truck and the WALK Radio Team on hand with a prize wheel. A special Thanks to the band Undercover who entertained us again this year. Each walker received a tee shirt, bottled water, snack bars, and hand warmers and a raffle ticket for a chance to win a 3 foot tall stuffed zebra. They were fed a delicious lunch of heros, chips and apples. NYS Proclamation 2013 New York State has declared November 'Carcinoid/NET Cancer Awareness Month' each year since 2006. It is challenging to find support for NET Cancer Awareness Initiatives and we want to thank the state of New York and the governors for their tremendous support through the years. Why not get on board and have your state, city or town declare a 'NET Cancer Awareness' time every November! 10th Annual Celebration of Life Gala November 9, 2013 was another wonderful evening- our 10th Annual Celebration of Life Gala. With over 250 people in attendance it was a great success and a lot of fun. People had chances to win AWESOME prizes. For the 2014 National NET Cancer Patient Conference in Charlotte, NC. Conference dates are September 18 - 20. CCAN, Dr. Eugene Woltering will work together to produce another amazing conference for patients and caregivers. You'll get to see 20 experts talk about NETs and have 2-1/2 days to network with others who know what you're going through! Rest assured that our Goal is Making Life Better for NET Cancer Patients. CCAN's board & officers are committed to assisting NET patients & to helping find a cure for carcinoid cancer. We field an experienced team focused on quality and we're proud to give our time as unpaid volunteers, keeping administrative costs low and allowing most of the funding to go into the programs. Visit www.carcinoidawareness.org.
Target demographics: Neuroendocrine Patients and their Families
Geographic areas served: Locally, Nationally, & Globally
Programs: We have a toll free hotline opened 7 days a week 9 am - 9pm EST. The phone is answered by a Patient or Caregiver at all times. We send out free information packets to anyone interested.
2015 Top-Rated Nonprofit
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EIN 20-1544357
866 850 9555
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Community Reviews

Rating: 5 stars  

The free info packet gave me much more detailed and accurate info than my oncologist. It almost certainly saved my life. I am very grateful this organization exists.

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Rating: 5 stars  

1 person found this review helpful

This nonprofit keeps me informed daily on my cancer and treatments. Without them I would be lost of any information about this rare cancer.

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Rating: 5 stars  

2 people found this review helpful

This group is one of a kind. The dedication of this couple to helping educate cancer patients about this cancer is unparalleled. This is the premier group to contact if a patient wants to know about carcinoid and neuroendocrine cancers. They keep up to date and have helped so many patients through their hotline, website, and conferences. Their fundraising efforts are many and have led to involvement by the foremost medical efforts in the field.

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1 previous review
Rating: 5 stars  

1 person found this review helpful

This is an amazing grass-roots organization that educates the public and carcinoid cancer patients. It is run by a couple in Long Island who started with nothing. The wife is a carcinoid patient who answers her phone night and day, runs conferences (the last one was in NOLA and had more than 450 registrants), fund-raising walks and galas and has come up with a large amount of money for research and support.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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1 previous review
Rating: 5 stars  

2 people found this review helpful

I have seen this organization grow larger for the last 8 years. The education program is phenomenal, involving the key professionals in the area of carcinoid cancer and neuroendocrine tumors appearing at every function. This group represents international and national patients. The fundraisers are conducted in a professional manner and more and more people have been educated and helped by the money raised by this vibrant, undying, and unrelenting organization run by a woman with carcinoid cancer and her husband and other family members. The founder has appeared on radio programs, television programs, and has been a keynote speaker at many of the professional conferences. She is articulate, caring, and always available to those who have a need or desire to know about these diseases which have been virtually ignored, until recently, thanks to her work and the works of others.

I've personally experienced the results of this organization in...

I have attended events, read the brochures, seen patients who have been helped by this organization, met doctors foremost in the field, attended an annual gala, listened to Ms. Wahmann's radio appearances, explored the web site.

If I had to make changes to this organization, I would...

No changes. This is a very professional, efficiently run outreach and education program.

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Rating: 5 stars  

1 person found this review helpful

MaryAnn has done wonders to increase the knowledge both of patients, caretakers and the medical profession in general of Nets, the proper treatment,etc. she tirelessly organizes conferences, talks to anyone who calls her and is an inspiration to Carcinoid patients because of the way she has handled her own battles with the disease

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Rating: 5 stars  

1 person found this review helpful

I was diagnosed with Carcinoid Cancer 2013. I had my surgery December 6 2013 to remove the prime location that it started at. I was lost on what step to take next. I went to three doctors that gave me different answers. I'm so thankful I found Maryann who also lives in Long Island and attended one of her meetings at Long Island Jewish Hospital. She gave me all the information I needed and led me on the right path on choosing my next step. Maryann has kept in touch with me since I spoke to her. She has given me more information than the doctors have! I'm no longer scared and feel safe that i can ask Maryann any question and know she will have an answer. I love the Zebra bracelets :)

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Rating: 5 stars  

1 person found this review helpful

I have seen first hand how this organization has helped so many cancer patients. This is an extremely helpful, knowledgable and caring organization .

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I proudly support this charity and am pleased to be a volunteer in this organization. They strive to provide much needed information to patients with this disease and also to those treating them. They provide all kinds of assistance to support groups across the country and also sponsor much needed and valuable patient education conferences to help increase awareness and promote understanding of Carcinoid and neuroendocrine cancers.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

We count on them to send the info we need to educate doctors and newly diagnosed patients in our local support groups. (This is a disease called "rare" which is clearly much more prevalent and usually misdiagnosed for decades up to and including death. Educating MDs will save lives and educating patients will change imminent death to a long life with a manageable chronic disease.)

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My brother in law has Carcinoid Cancer and this year I put on a fundraiser to raise money and awareness. Maryann with the Carcinoid Cancer Awareness Network got me everything I needed to help get the word out. I still keep the brochues in my businesses the the Carolina's. We need more people as dedicated to helping people understand and deal with like they are going through like Maryann with the Carcinoid Cancer Awareness Network.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Up until 3 years ago, I had never heard of Carcinoid Cancer...I have since had the pleasure of becoming close friends of the Wahmann Family, and have had the priveledge of being part of the CCAN experience....Watching Maryann and Bob spend time with Patients, families and doctors, Making people aware of not only the Disease itself, but the treatments available, who to call, what drugs to try has been such a rewarding experience for me to watch from an outside position The World needs to know about this disease, and CCAN is the organization to get it done!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?