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76 Reviews
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August 9, 2012
1 person found this review helpful

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August 9, 2012
1 person found this review helpful

My brother in law has Carcinoid Cancer and this year I put on a fundraiser to raise money and awareness. Maryann with the Carcinoid Cancer Awareness Network got me everything I needed to help get the word out. I still keep the brochues in my businesses the the Carolina's. We need more people as dedicated to helping people understand and deal with like they are going through like Maryann with the Carcinoid Cancer Awareness Network.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 9, 2012
1 person found this review helpful

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August 9, 2012
1 person found this review helpful

Cancer support providing information and education for families and patients with carcinoid cancer.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

August 5, 2012
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August 5, 2012
1 person found this review helpful

CCAN truly provides critical life changing and life-saving help for patients with carcinoid cancer. Neural endocrine tumors (NETs) is a relatively unknown cancer and many local physicians dont know much about its treatment. my daughter was diagnosed with carcinoid cancer about 4 years ago, had her right lung removed, and still had residual cancer. CCAN helped us survive this ordeal by linking us with other patients and family members (and even the few doctors who specialize in carcinoid cancer) where we could find information, guidance, experience, and hope. CCAN sponsors conferences that are incredibly valuable to keep patients and their families updated on the current advances in treatment. through CCAN we were able to connect with the right doctor who recommended the right treatment that has resulted in my daughter having "no evidence of disease" now. we have seen many other patients with NETs on CCAN chatpages who have no idea what to do and who are able to get the information they need to save their lives. CCAN is priceless!!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 23, 2012
1 person found this review helpful

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July 23, 2012
1 person found this review helpful

This nonprofit organization is run by a wonderful person that is unbelievably committed to the her cause. Maryann Wahmann spends so much time focused upon increasing the awareness of Carcinoid Cancer and goes far beyond what one would expect for any patient that seek education. A truly worthy cause.

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How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

July 20, 2012
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July 20, 2012
1 person found this review helpful

CCAN is a great organazation that has helped both patients and their families deal with this illeness and the effect it can cause both mentally, physically and emotionally on every memeber of the family, including the patient and the famiy members too. It's nice to have people who can relate and listen and give advice and guide in the right direction. What a wonderful organazation!

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

July 13, 2012
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July 13, 2012
1 person found this review helpful

Up until 3 years ago, I had never heard of Carcinoid Cancer...I have since had the pleasure of becoming close friends of the Wahmann Family, and have had the priveledge of being part of the CCAN experience....Watching Maryann and Bob spend time with Patients, families and doctors, Making people aware of not only the Disease itself, but the treatments available, who to call, what drugs to try has been such a rewarding experience for me to watch from an outside position The World needs to know about this disease, and CCAN is the organization to get it done!

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 23, 2011
1 person found this review helpful

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June 23, 2011
1 person found this review helpful

After being diagnosed a year ago with carcinoid cancer I felt helpless and alone. I spent countless hours researching my disease. During this frantic time I decided a support group would probably serve me well and I went to a meeting in N. Bellmore and met Maryann Wahman. I found the meeting very informative and open to questions from its members. I knew it was where I was supposed to be while on my journey. Maryann is always there when you need her and certainly a fantastic "support" team leader. I thank her from the bottom of my heart.

The Great!

I've personally experienced the results of this organization in...

helping me find the right doctors by going to see Drs. Warner and Zacks. I also receive timely emails and mailings regarding conferences and symposiums.

Ways to make it better...

If I had to make changes to this organization, I would...

Not knowing how other support groups are run, I don't see how they can do anything more than they do. They work very hard at getting information to their members, are very supportive and offer numerous tools for their members to use.

June 22, 2011
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June 22, 2011
1 person found this review helpful

CCAN was there when all the other Carcinoid foundations did not answer the phone on a holiday. Maryann and her husband were a godsend. They spent a hour on the phone with me on Christmas day 2008. I was having a rough day dealing with my recent DX. But they talked to me and calm me down, They told me to call anytime and they would help me with my journey,
I will continue to suport them anyway I can.

The Great!

I've personally experienced the results of this organization in...

They were just so supportive. It nice to talk to a patient and not just someone in an office reading a script. They truy understand what the patient and caregiver is going through. They sent a amzing information packet to my home.

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 21, 2011

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June 21, 2011

CCAN provides the most current education about the diagnosis and treatment of carcinoid/NET cancers for both physicians and patients, consistently providing top notch physicians and educators. They also provide unparalleled support to patient support groups and brought a conference to our region at the request of our local support group.
CCAN is among the top patient advocacy groups in the nation.
I've benefited from them as a patient from attending their conferences and from watching their conferences and webinars on line. They have also provided support to our local patient group. I can't say enough about the good they do in the carcinoid/NET community.

The Great!

I've personally experienced the results of this organization in...

attending conferences, watching conferences and webinars on line, and in seeing their support to local patient groups.

Ways to make it better...

If I had to make changes to this organization, I would...

Increase their funding so they can help more people.

June 21, 2011
1 person found this review helpful

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June 21, 2011
1 person found this review helpful

CCAN is one the the most up to date and extensive soureces of information on neuroendocrine tumors in the USA . These individuals serve as a day to day source of comfort, information and physician referrals for individuals with these rare tumors. In additioin CCAN is the sponsor or co-sponsor of regional and national conferences that are geared to educate those individuals with these rare tumors

The Great!

I've personally experienced the results of this organization in...

I have lectured for these folks on many occasiona and they have helped me put on the National Patient NET conferences

Ways to make it better...

If I had to make changes to this organization, I would...

clone them so tha tthey could do more great work

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