CARCINOID CANCER AWARENESS NETWORK INC

Rating: 4.99 stars   80 reviews

Issues:

Location: 2480 Hull Ave North Bellmore NY 11710 USA

Mission: WE'VE CHANGED OUR NAME FROM CCAN TO NCAN TO BETTER REFLECT THE COMMUNITY WE SERVE. We are a non–profit charity whose mission is to intensify awareness of Neuroendocrine Tumors & Carcinoid Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years CCAN has produced over two dozen conferences. Many are available to view on our website. DVD’s & CD ROMS are available. Our toll free phone support line is answered by a patient and caregiver. Call today for your free information packet. We also provide funding for research into Carcinoid Cancer and other Neuroendocrine tumors.  
Results: 2013- Year in Review Patient Conferences Keep Patients Updated on the Most Current Practices CCAN was proud to help with sponsorship of two Conferences. Jan in San Francisco and the other in Lexington, KY. We were able to produce six regional conferences, (NYC, Nashville, TN, Orlando, FL and Los Angeles, CA, Cruise) thanks to the generous sponsorship of Inter Science Institute. We hosted the first ever conference for Lungnoid only in Nashville and a conference on a cruise. Over 650 patients attended these events. In June we participated in a fundraiser in Charlotte, NC. The ‘2nd Annual Smokin’ Butt Fest.’ What a fun event with great food and prizes. CCAN was there to lend a hand at the North American Neuroendocrine Tumor Society's NANETS Regional Symposium in Nashville, TN and at NANETS' National Meeting in Charleston, SC. Worldwide NET Cancer Awareness Day & NET Cancer Awareness Month 5th Annual 'Strides for Stripes Zebra Walk.' On November 2nd over 500 people came to walk in support of NET cancer patients at our 5th Annual 'Strides for Stripes Zebra Walk.' It was an exciting day, with an antique fire truck and the WALK Radio Team on hand with a prize wheel. A special Thanks to the band Undercover who entertained us again this year. Each walker received a tee shirt, bottled water, snack bars, and hand warmers and a raffle ticket for a chance to win a 3 foot tall stuffed zebra. They were fed a delicious lunch of heros, chips and apples. NYS Proclamation 2013 New York State has declared November 'Carcinoid/NET Cancer Awareness Month' each year since 2006. It is challenging to find support for NET Cancer Awareness Initiatives and we want to thank the state of New York and the governors for their tremendous support through the years. Why not get on board and have your state, city or town declare a 'NET Cancer Awareness' time every November! 10th Annual Celebration of Life Gala November 9, 2013 was another wonderful evening- our 10th Annual Celebration of Life Gala. With over 250 people in attendance it was a great success and a lot of fun. People had chances to win AWESOME prizes. For the 2014 National NET Cancer Patient Conference in Charlotte, NC. Conference dates are September 18 - 20. CCAN, Dr. Eugene Woltering will work together to produce another amazing conference for patients and caregivers. You'll get to see 20 experts talk about NETs and have 2-1/2 days to network with others who know what you're going through! Rest assured that our Goal is Making Life Better for NET Cancer Patients. CCAN's board & officers are committed to assisting NET patients & to helping find a cure for carcinoid cancer. We field an experienced team focused on quality and we're proud to give our time as unpaid volunteers, keeping administrative costs low and allowing most of the funding to go into the programs. Visit www.carcinoidawareness.org.
Target demographics: Neuroendocrine Patients and their Families
Geographic areas served: Locally, Nationally, & Globally
Programs: We have a toll free hotline opened 7 days a week 9 am - 9pm EST. The phone is answered by a Patient or Caregiver at all times. We send out free information packets to anyone interested.
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EIN 20-1544357
866 850 9555
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

Carcinoid Cancer Awareness Network is truly a godsend! My doctor called and told me I had Carcinoid cancer and not much else! I googled it and found this amazing website. It has an easy to navigate layout with pertinent up-to-date information. I was feeling hopeless and confused until I found the information I needed to understand my disease.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

This charity has done a remarkable job of ensuring that conferences take place regularly - - both international and regional - - on the rare neuroendocrine cancers, including carcinoid. CCAN has also stepped in to help new local support groups get started and have the resources to continue - and to help publicize these rare cancers by marketing relevant pins (with zebra emblems) and other materials contributing to publicity and public education. I speak from experience as a family member of someone with carcinoid disease who has also tried to further education and publicity.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

My brother in law has Carcinoid Cancer and this year I put on a fundraiser to raise money and awareness. Maryann with the Carcinoid Cancer Awareness Network got me everything I needed to help get the word out. I still keep the brochues in my businesses the the Carolina's. We need more people as dedicated to helping people understand and deal with like they are going through like Maryann with the Carcinoid Cancer Awareness Network.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

Cancer support providing information and education for families and patients with carcinoid cancer.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

CCAN truly provides critical life changing and life-saving help for patients with carcinoid cancer. Neural endocrine tumors (NETs) is a relatively unknown cancer and many local physicians dont know much about its treatment. my daughter was diagnosed with carcinoid cancer about 4 years ago, had her right lung removed, and still had residual cancer. CCAN helped us survive this ordeal by linking us with other patients and family members (and even the few doctors who specialize in carcinoid cancer) where we could find information, guidance, experience, and hope. CCAN sponsors conferences that are incredibly valuable to keep patients and their families updated on the current advances in treatment. through CCAN we were able to connect with the right doctor who recommended the right treatment that has resulted in my daughter having "no evidence of disease" now. we have seen many other patients with NETs on CCAN chatpages who have no idea what to do and who are able to get the information they need to save their lives. CCAN is priceless!!!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

This nonprofit organization is run by a wonderful person that is unbelievably committed to the her cause. Maryann Wahmann spends so much time focused upon increasing the awareness of Carcinoid Cancer and goes far beyond what one would expect for any patient that seek education. A truly worthy cause.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

CCAN is a great organazation that has helped both patients and their families deal with this illeness and the effect it can cause both mentally, physically and emotionally on every memeber of the family, including the patient and the famiy members too. It's nice to have people who can relate and listen and give advice and guide in the right direction. What a wonderful organazation!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

Up until 3 years ago, I had never heard of Carcinoid Cancer...I have since had the pleasure of becoming close friends of the Wahmann Family, and have had the priveledge of being part of the CCAN experience....Watching Maryann and Bob spend time with Patients, families and doctors, Making people aware of not only the Disease itself, but the treatments available, who to call, what drugs to try has been such a rewarding experience for me to watch from an outside position The World needs to know about this disease, and CCAN is the organization to get it done!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

After being diagnosed a year ago with carcinoid cancer I felt helpless and alone. I spent countless hours researching my disease. During this frantic time I decided a support group would probably serve me well and I went to a meeting in N. Bellmore and met Maryann Wahman. I found the meeting very informative and open to questions from its members. I knew it was where I was supposed to be while on my journey. Maryann is always there when you need her and certainly a fantastic "support" team leader. I thank her from the bottom of my heart.

I've personally experienced the results of this organization in...

helping me find the right doctors by going to see Drs. Warner and Zacks. I also receive timely emails and mailings regarding conferences and symposiums.

If I had to make changes to this organization, I would...

Not knowing how other support groups are run, I don't see how they can do anything more than they do. They work very hard at getting information to their members, are very supportive and offer numerous tools for their members to use.

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Rating: 5 stars  

1 person found this review helpful

CCAN was there when all the other Carcinoid foundations did not answer the phone on a holiday. Maryann and her husband were a godsend. They spent a hour on the phone with me on Christmas day 2008. I was having a rough day dealing with my recent DX. But they talked to me and calm me down, They told me to call anytime and they would help me with my journey,
I will continue to suport them anyway I can.

I've personally experienced the results of this organization in...

They were just so supportive. It nice to talk to a patient and not just someone in an office reading a script. They truy understand what the patient and caregiver is going through. They sent a amzing information packet to my home.

If I had to make changes to this organization, I would...

none

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