CARCINOID CANCER AWARENESS NETWORK INC

Rating: 4.99 stars   80 reviews

Issues: Health, Cancer

Location: 2480 Hull Ave North Bellmore NY 11710 USA

Mission: WE'VE CHANGED OUR NAME FROM CCAN TO NCAN TO BETTER REFLECT THE COMMUNITY WE SERVE. We are a non–profit charity whose mission is to intensify awareness of Neuroendocrine Tumors & Carcinoid Cancer in the medical community and general public around the world. CCAN also assists patients, caregivers and support groups worldwide by providing access to important & updated information about the disease. Through the years CCAN has produced over two dozen conferences. Many are available to view on our website. DVD’s & CD ROMS are available. Our toll free phone support line is answered by a patient and caregiver. Call today for your free information packet. We also provide funding for research into Carcinoid Cancer and other Neuroendocrine tumors.  
Results: 2013- Year in Review Patient Conferences Keep Patients Updated on the Most Current Practices CCAN was proud to help with sponsorship of two Conferences. Jan in San Francisco and the other in Lexington, KY. We were able to produce six regional conferences, (NYC, Nashville, TN, Orlando, FL and Los Angeles, CA, Cruise) thanks to the generous sponsorship of Inter Science Institute. We hosted the first ever conference for Lungnoid only in Nashville and a conference on a cruise. Over 650 patients attended these events. In June we participated in a fundraiser in Charlotte, NC. The ‘2nd Annual Smokin’ Butt Fest.’ What a fun event with great food and prizes. CCAN was there to lend a hand at the North American Neuroendocrine Tumor Society's NANETS Regional Symposium in Nashville, TN and at NANETS' National Meeting in Charleston, SC. Worldwide NET Cancer Awareness Day & NET Cancer Awareness Month 5th Annual 'Strides for Stripes Zebra Walk.' On November 2nd over 500 people came to walk in support of NET cancer patients at our 5th Annual 'Strides for Stripes Zebra Walk.' It was an exciting day, with an antique fire truck and the WALK Radio Team on hand with a prize wheel. A special Thanks to the band Undercover who entertained us again this year. Each walker received a tee shirt, bottled water, snack bars, and hand warmers and a raffle ticket for a chance to win a 3 foot tall stuffed zebra. They were fed a delicious lunch of heros, chips and apples. NYS Proclamation 2013 New York State has declared November 'Carcinoid/NET Cancer Awareness Month' each year since 2006. It is challenging to find support for NET Cancer Awareness Initiatives and we want to thank the state of New York and the governors for their tremendous support through the years. Why not get on board and have your state, city or town declare a 'NET Cancer Awareness' time every November! 10th Annual Celebration of Life Gala November 9, 2013 was another wonderful evening- our 10th Annual Celebration of Life Gala. With over 250 people in attendance it was a great success and a lot of fun. People had chances to win AWESOME prizes. For the 2014 National NET Cancer Patient Conference in Charlotte, NC. Conference dates are September 18 - 20. CCAN, Dr. Eugene Woltering will work together to produce another amazing conference for patients and caregivers. You'll get to see 20 experts talk about NETs and have 2-1/2 days to network with others who know what you're going through! Rest assured that our Goal is Making Life Better for NET Cancer Patients. CCAN's board & officers are committed to assisting NET patients & to helping find a cure for carcinoid cancer. We field an experienced team focused on quality and we're proud to give our time as unpaid volunteers, keeping administrative costs low and allowing most of the funding to go into the programs. Visit www.carcinoidawareness.org.
Target demographics: Neuroendocrine Patients and their Families
Geographic areas served: Locally, Nationally, & Globally
Programs: We have a toll free hotline opened 7 days a week 9 am - 9pm EST. The phone is answered by a Patient or Caregiver at all times. We send out free information packets to anyone interested.
2015 Top-Rated Nonprofit
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EIN 20-1544357
866 850 9555
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I have seen first hand how this organization has helped so many cancer patients. This is an extremely helpful, knowledgable and caring organization .

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

When I was first diagnosed I had no idea what this type of cancer was and what to expect. From this group the information was complete and the people were guenuine in the caring nd desire to fil me in and answer all my questions. Without them I would have blindly followed care plans made by medical personnel unfamiliar with the disease and would be far worse off than I could ever imagine. It's been almost 2 years since I first sought their advice and they ae still thee when I need them. They are the best!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I proudly support this charity and am pleased to be a volunteer in this organization. They strive to provide much needed information to patients with this disease and also to those treating them. They provide all kinds of assistance to support groups across the country and also sponsor much needed and valuable patient education conferences to help increase awareness and promote understanding of Carcinoid and neuroendocrine cancers.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

For those of us in the Carcinoid Cancer/NET community it has often been difficult to find information and support. However, Carcinoid Cancer Awareness Network (CCAN) and Maryann & Bob Wahmann have made it their priority to provide this to us. They have dedicated their time and much more to bring mini seminars to regions across the United States, they have used their 501c status to receive grants and funds from sponsors for numerous patient/caregiver conferences, and they have made available informational literature to help us educate ourselves & others about this chronic disease. As a support group leader, CCAN has also made available to me numerous promotional items such as Zebra pins, Carcinoid/NET bracelets, and stuffed zebras along with educational brochures. These have been wonderful to have for my support group meetings. CCAN also sponsors numerous fundraisers and awareness (as their name suggests) activites. Education & awareness of Carcinoid/NET is the key and CCAN plays a hyge role in making that happen.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

CCAN has been a great source for information and support in the past. They have always been prompt and thorough in any requests I have made. They are truly working to increase awareness and early detection of this disease!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

We count on them to send the info we need to educate doctors and newly diagnosed patients in our local support groups. (This is a disease called "rare" which is clearly much more prevalent and usually misdiagnosed for decades up to and including death. Educating MDs will save lives and educating patients will change imminent death to a long life with a manageable chronic disease.)

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I'm a carcinoid patient, stag 4, and have been helped by information provided in the mail, and information on a telephone conference with experts speaking about our cancers. I'm very thankful for all the information and help I got from this group.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I woke up from a routine surgery only to find out the doctors found I had Carcinoid Cancer. From there, pretty much all roads lead to "Carcinoid Cancer Awareness Network". I don't know how you could have this cancer and not been helped with knowledge, support and genuine caring hearts. When I was diagnosed, like so many others I didn't know where to go for help. CCAN helped me with information, slowing me down on decisions and taking a step back to breathe. I felt like there was HOPE. That was the first thing I needed to know. Leah

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

i was diagnosed 10/2009 and the local doctors where I live didn't seem to have enough knowledge on Carcinoid Cancer. They gave me approx. 6 months. Maryann at the Carcinoid Cancer Awareness Network sent me the information I needed to understand this disease, educate my local doctor and know that all hope was not lost. Thru the network I found a Carcinoid specialist/team that is helping me.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This organization stepped up with a donation of bracelets, pins and literature to help with our last support group meeting. Everyone was astounded at the volume of information and dedication that MaryAn and her team have for our cause..Carcinoid! We love and charish them!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful?