Brendan B. McGinnis Congenital CMV Foundation

Rating: 5 stars   14 reviews

Issues: Philanthropy

Location: PO Box 1719 Wheat Ridge CO 80034 USA

Mission: The Brendan B. McGinnis Congenital CMV Foundation is a non-profit 501 (c) (3) dedicated to raising public awareness about congenital CMV, to raise donations to support research for a vaccine for CMV, and to affect change in the medical community so that physicians will begin to test women for CMV prior to pregnancy. Ultimately, our mission is to save babies yet to be born from suffering the often devastating consequences of congenital CMV by eradicating this common but potentially life-altering virus.
Results: In the past 6 years we have distributed nearly 27,000 informational pamphlets on CMV. We have held CMV Awareness Walk-n-Rollathons across the country for the past 5 years, raising awareness and donations to support our cause. We have professionally produced a PSA that is currently airing on national television in major cities across America. We present an annual award grant for Innovation in CMV Vaccine Research. We also have held a family gathering conference for the past 3 years for families affected by CMV across the country.
Target demographics: all women of child-bearing age, pregnant women, women considering pregnancy, the medical community, world wide.
Direct beneficiaries per year: This is nearly impossible to determine as our awareness Campaigns are often online ads such as facebook, our website and you tube. Our annual vaccine research award recipient also directly benefited from our scholarship to help further CMV vaccine research efforts.
Geographic areas served: all areas, particularly targeting women of child-bearing age.
Programs: Annual conference/gathering for CMV-affected families, called Making Tracks Together; annual grant award for CMV Vaccine Research; annual CMV Awareness Walk-n-Rollathons across the country, and PSAs which are airing on national television.
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EIN 26-0886244
402-575-1533
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Community Reviews

Rating: 5 stars  

I became involved with the Brendan B. McGinnisCongenital CMV Foundation because I too, have a son who is disabled due to the virus. I have participated for 4 years in the annual Walk-n-Rollathon in the Atlanta area and organized it this past year. My son is 29 years old and there was very little information available at the time of his diagnosis and for many years. The community outreach and educating the public is so important. Tracy is doing a wonderful service for the community by working to make the public aware of CMV and to raise donations to support research for a vaccine.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

The Brenden B McGinnis COngenital CMV Foundation has been crucial in getting information out to the public, both the general public and professionals too about exactly WHAT this condition is and what it means to both the kids who have CCMV and their families. They have both also promoted, and helped fight for necessary research to develop a vaccine against cCMV. Both Tracy McGinnis and Chris Cady have children disabled by this virus so they know first had what the families who are affected by this virus are going through. They have offered both emotional and educational support to myself as my daughter who is now 7 was born with cCMV. Until finding this foundation, i felt alone in our fight unsure if the direction we were heading in was "normal" or if there was things going on with my child that i was unaware of, or what I should be looking for. My pediatrician has never knowingly treated a cCMV child, so we were both kind of "winging it". Now, with the support and network of this foundation, i know things that other parents have experienced with their children, what other doctors are saying and doing, and I feel that my child is on the right track towards the best future she can possibly have. My thanks to both Tracy Mcginnis and Chris Cady to take such an experience in their lives and share the inforation, experiences, and friendship with others so we dont all feel so alone in our battle to win the fight against congenital CMV infection.

I've personally experienced the results of this organization in...

networking to meet other families, both online and in person and obtaining information about my childs condition

If I had to make changes to this organization, I would...

none

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Rating: 5 stars  

MY YOUNGEST BABY BOY WAS DIAGNOSED AT THE AGE OF 4 MONTHS WITH MICROCEPHALY DUE TO CMV , HE IS NOW 13 YRS =) Brendan B. McGinnis Congenital CMV FOUNDATION IS ABSOLUTELY AWESOME AND SO HELPFUL ! THANK YOU

I've personally experienced the results of this organization in...

All the incredible information and facts about CMV, make it a little easier to deal

If I had to make changes to this organization, I would...

No changes needed

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

FACEBOOK FRIEND

When was your last experience with this nonprofit?

2011

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Rating: 5 stars  

1 person found this review helpful

I know about the Brandan B. McGinnis cCMV foundation because my son Owynn was born with and died from cCMV. My son was 14 months old when he died. While he was alive and even now I work with this wonderful charity.

I've personally experienced the results of this organization in...

I have been to the Making tracks together family event for the past two years.

If I had to make changes to this organization, I would...

say none

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Rating: 5 stars  

My child was born with CM. I had no clue what it was or how to deal with the issues that would arise. The Brendan McGinnis congenital cmv foundational helped my family through some very rough times. I am in LOVE with This foundation. Lets spread awareness.

I've personally experienced the results of this organization in...

a way that is unexplainable if you have never been in this position before.

If I had to make changes to this organization, I would...

be on the board, so I could be with the BEST foundation ever :)

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