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July 2, 2011

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July 2, 2011

The Brendan B. McGinnis Congenital CMV Foundation is dedicated to the CMV Families, raising awareness and CMV Vaccine Research. We found this foundation on the web when my son was finally diagnosed with cCMV at almost 3 years old. They have connected us with so many families affected by CMV all over the world. Being in the military and having this foundation on our side always will mean that wherever we will be next, we can connect with other families near by and will never feel alone again in this struggle.

The Great!

I've personally experienced the results of this organization in...

getting connected and staying up to date on CMV research and legislation.

Ways to make it better...

If I had to make changes to this organization, I would...

none!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Google

When was your last experience with this nonprofit?

2011

July 2, 2011

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July 2, 2011

The Brendan B McGinnis foundation was a god send to us,found them on face book and untill we connected with them we were SO alone,our granddaughter has CMV and no-one had even heard of it! We were at a loss,we didnt know where to turn or what to exspect and we as grandparents & parents felt HELPLESS to help our sweet lil girl.Thanks to the foundation we have been steered to Doctors,therapests and alot of moral support & advice..THANK THE LORD for these folks,theyre such a god send,cant say enough good things about them.

Photos

The Great!

I've personally experienced the results of this organization in...

contacted Ms.Tracy & she helped us find the right doctors for Ari.Also shared her experiance on the kids not eatting , to watching for differant types of seizures..also where to go for wheelchairs ect..

Ways to make it better...

If I had to make changes to this organization, I would...

DO absolutley nothing !This foundation needs Money & Exsposure,Its ran with love & personal exsperiance and its fantastic!

July 2, 2011

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July 2, 2011

It's a wonderful foundation dedicated to the CMV Families, CMV Awareness, and CMV Vaccine Research. We found this foundation via Facebook when my son was almost 2 years old and up until that point we felt so alone in our stuggles with CMV. They have connected us with lots of CMV families all over the world.

The Great!

I've personally experienced the results of this organization in...

I've learned more about CMV and the affects of CMV through the Foundation than I did through any of the doctors or specialists that my son has seen.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't change a thing. The foundation is wonderful!!!

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

June 29, 2011

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June 29, 2011

well this is a great foundation. I didnt know to much about CMV and thought I was the only one going threw this. Im happy to found this and have learned so much. Thanks you guys are great and awesome. keep up the great work at educating everyone about CMV.
Much Love Alicia.

The Great!

I've personally experienced the results of this organization in...

great

Ways to make it better...

If I had to make changes to this organization, I would...

its perfect the way it is.

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
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  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

Hand out CMV informational pamphlets and make phone calls to local media asking them to air our PSA.