Breath of Hope Inc.

Rating: 4.41 stars   61 reviews


PO Box 6627 Charlottesville VA 22906 USA


Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.


Since 2008, we have either directly donated, help direct or encouraged, supported or assisted others to donate over $150,000 to Medical Research to benefit congenital diaphragmatic hernia research. Since 2008, we have had 34 States issue Proclamations or Resolutions and the US Senate to issue a Resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. We have distributed our medically reviewed materials, our expectant parent packages to hundreds of families and hospitals throughout the US and outside the US.

Target demographics:

Families, anyone who may have a family in the future, grandparents, aunts, uncles - anyone who could have a relative with CDH.

Direct beneficiaries per year:

Thousands have benefited from the programs and initiatives of Breath of Hope.

Geographic areas served:

United States


Congenital Diaphragmatic Hernia Awareness Day Program Scholarship Program Expectant/New Parent Packages Program New Parent Program Parents of Angels Program Newsletter Program CDH Summit Program Fund Raising Program CDH Awareness Day Program

2013 Top-Rated Nonprofit
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Reviews for Breath of Hope Inc.

Rating: 5 stars  

Through the work of Team Abel we provide support to families who have or are going to have Babies diagnosed with CDH. We have a lemonaide stand at local Farmer's Markets, and around the globe to raise money so we can help with research and needs of families. Amber is the hardest working mother of 4 with a baby who has CDH, and it is becasue of her that I wanted to be on our board, it is inspiring!

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Rating: 5 stars  

16 people found this review helpful

Our daughter was diagnosed with CDH and later died of CDH. We started Breath of Hope to be a network of families to help support families at the most devastating period of their lives. We wanted to give hope - where there is none. Even if your child does not live, there is hope that one day another family may not have to loose their own child. Breath of Hope was set up to be a public nonprofit organization run by volunteers who could do so in honor or memory of their children. It is a non-stock corporation - which means it is owned by no one person. Our Board of directors votes on all issues and approves the budgets, programs and financial issues. We serve anyone who contacts our organization. If you wish to have services you must contact our organization through our website not through the social media networks we are currently using.

I've personally experienced the results of this organization in...

Breath of Hope has directed funds to support Medical Research. We have had 34 states through the help of our families and friends issue Proclamations for Awareness Day since 2007. We had the US Senate unanimously pass Resolution 204.

If I had to make changes to this organization, I would...

More funding for Programs such as our Expectant/New Parents Materials, Materials for Grieving Parents, our Scholarship Program and to further programs which are needed to help families. We also need more volunteers to help further our cause.

What I've enjoyed the most about my experience with this nonprofit is...

Though helping others there is healing for yourself. Sharing the joy and pride families have for their amazing children.

The kinds of staff and volunteers that I met were...

All our volunteers have contributed amazing things and our families continue to amaze me how they step forward and help one another.

If this organization had 10 million bucks, it could...

Bring congenital diaphragmatic hernia to the forefront so everyone would be aware of it. Further medical research so that the survival rates would improve. Further education for therapeutic studies to improve or avoid many residuals from CDH.

Ways to make it better...

All would realize that Breath of Hope is an organization not run by one individual.

In my opinion, the biggest challenges facing this organization are...

Funding and volunteers - all nonprofits struggle with both needs to further their programs and efforts.

One thing I'd also say is that...

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

I am the parent of a child born with CDH. I've seen this organization grow from just a few parents sharing experiences through a Yahoo group to the wonderful supportive organization it is now. Breath of Hope, Inc. has done a tremendous job of raising awareness of this little known birth defect. BOH is tremendously supportive of families facing this diagnosis and gives them a place to come for information and support. BOH has raised money that has been specifically earmarked for CDH research.

I've personally experienced the results of this organization in...

BOH has been a source of support for me, even though my child is older.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


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