Breath of Hope Inc.
Rating: 4.41 stars 61 61 reviews
PO Box 6627 Charlottesville VA 22906 USA
Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.
Since 2008, we have either directly donated, help direct or encouraged, supported or assisted others to donate over $150,000 to Medical Research to benefit congenital diaphragmatic hernia research. Since 2008, we have had 34 States issue Proclamations or Resolutions and the US Senate to issue a Resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. We have distributed our medically reviewed materials, our expectant parent packages to hundreds of families and hospitals throughout the US and outside the US.
Families, anyone who may have a family in the future, grandparents, aunts, uncles - anyone who could have a relative with CDH.
Direct beneficiaries per year:
Thousands have benefited from the programs and initiatives of Breath of Hope.
Geographic areas served:
Congenital Diaphragmatic Hernia Awareness Day Program Scholarship Program Expectant/New Parent Packages Program New Parent Program Parents of Angels Program Newsletter Program CDH Summit Program Fund Raising Program CDH Awareness Day Program
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Reviews for Breath of Hope Inc.
18 people found this review helpful
My son was born with CDH. I heard about Breath of Hope from the social worker at UCSF. Breath of Hope has many families going through the same thing, and it's nice to know that you aren't alone. It's also great to be able to give advice to new parents who are just coming into this whirl wind of an experience and give them hope and encouragement. This organization also influenced me to go out and get Congenital Diaphragmatic Hernia Awareness day a proclaimed day of awareness in the city I live in.
I've personally experienced the results of this organization in...
I joined this group when my son was diagnosed with Congenital Diaphragmatic Hernia.
How frequently have you been involved with the organization?
About every week
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