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June 28, 2010

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June 28, 2010

Having a brain injury myself and having run atbi support group at a non-profit org for 10 years, I know the great service that is provided it's participants; this is particularily true for brain injury survivors and their caregivers as they are part of a very low served disability population. Brainstorming4us provides an excellent service by providing very helpful educational materials,a monthly support group,an excellent web sight,positive public awareness, and devoted friendships. Wish I could do more personally, but that is why I am writing and thanking you.

The Great!

I've personally experienced the results of this organization in...

...providing me a way to interact with other braininjury survivors, access to professionals in the field, and a way to stay current with new developments in this field. I really do get alot out of time with the families and the founders.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 27, 2010

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June 27, 2010

I have worked in the field of brain injury rehab for about 20 years. I am very aware of the struggle that families face following the diagnosis of one of their members with brain injury - it can be a devistating and life changing diagnosis. I met the founders of Brainstorming 4 Us a number of years ago and since that time I have come to admire and respect the tireless efforts of the founders and their volunteers towards making the lives better for family and patient following this diagnosis. They have raised awareness, raised money,developed a wonderful support group and have developed notebooks full of valuable information that they provide to hospitals for families. There is such a great need for services particularly for those without adequate insurance and Brainstorming 4 Us helps when families don't know where to turn. The founders have personal knowledge of the devistation of brain injury and through their committment to those also walking that pathway they have made a big difference in many lives. They certainly have touched my life and continue to have my complete admiration for what they do and what they have accomplished. I hope they continue to find support for their efforts.

The Great!

I've personally experienced the results of this organization in...

My work with brain injured individuals as well as in my work with professinals that have benefitted from their "family notebooks" that they provide at no charge. I have been involved with their fund raising and awareness raising campaigns.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 25, 2010

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June 25, 2010

Well, the story of my accdient, which occured when I was just 17 years, 4 months and 4 days old took place on Monday, July 19th, 2004. I was returning home from work, working in a local law firm, the summer before my senior year in high school. I actually missed the entire first semester of my senior year, but was still able to graduate on time with the rest of my class mainly because I had basically graduated by 11th grade. I was on my way to accomplishing everything I wanted, and was headed down the path I wished to be walking down. Then, things took a dramatic turn for the worse when I was T-boned on the driver-side door of my 2002 KIA Rio by a Ford F-150 when I was just a few miles from my house. I was sent spiraling directly into a coma upon impact, staying in this helpless state for approximately 2 1/2 months, and sustained a severe Traumatic Brain Injury (TBI) with shearing and a ventricular bleed. My brain began to swell and bleed and a shunt had to inserted in order to relieve the pressure that was building up. I was lucky, if you can find any "luck" in this horrible incident because an ambulance was in-route to somewhere and the paramedics were able to give me life-saving treatment with the "One Golden Hour Rule" that is applied to all severe injuries. I was also cursed with HO (Heterotopic Ossification) in my left knee and theigh, and still suffer from memory loss, poor balance, and a plethora of other disabilities. However, I have not let that take over my life. I am a fighter and have always done what needs to be done in order for me to succeed. It may take me twice as long, if not longer, to accomplish what I would have done in months in the past, however, I hope that I will be able to accomplish all my goals in the future.

The Great!

I've personally experienced the results of this organization in...

When meeting with other TBI survivors, I don't feel the need to be any different and know I will be accepted just as I am, and not be judged for that.

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What I've enjoyed the most about my experience with this nonprofit is...

Gaining friends I would have never met in my past life.

The kinds of staff and volunteers that I met were...

Nice, friendly, compassionate, and understanding of my situation because most have a friend or family member in the same situation.

If this organization had 10 million bucks, it could...

Help millions of TBI survivors!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 25, 2010

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June 25, 2010

Our son Anthony, had a tramatic brain injury from a motocross accident. He was in a coma when brought in from the track and was unresponsive for over 1 month. We got this briefcase from the hospital that came from Brainstorming4us with alot of info regarding brain injuries. It took me a little while to absorb the info, I was in such shock. I was like the info was written for us, easy to read and understand. My husband and I knew nothing about brain injuries. We were hoping he would just wake up. This information helped us more than the doctors ever could. We had a hard time understanding them. Our son spent 6 months in the hospital and more than a year in rehab. I am happy to announce he just graduated from high school a little less than two years after his accident. We thank Brainstorming 4 us so much!!

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The Great!

I've personally experienced the results of this organization in...

meeting with its founding members, who, like us have experienced tramatic brain injury though a family member. They are compassionate about there work, because like us they knew nothing about these injuries, and the hospitals give you no details.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

When a loved one suffers a traumatic brain injury life as it was once known is instantly changed. At first there is only extreme fear and confusion, it is as though you cannot take in all the information at once, you have entered a stage of your life so filled with grief and fear that you can barely function. Brainstorming4Us was filled with people who understood and more importantly were ready and able to help with compassion and knowledge. There were so many members who reached out with love and real life answers to all of the questions we had regarding medications, therapies etc.. My family entered the world of TBI when my 17 year old son was horribly injured in a car accident and suffered his severe brain injury. The support group Brainstorming4Us has been a blessing to my family and especially to my son. Cathy Santos

The Great!

I've personally experienced the results of this organization in...

I have seen many people come into this support group with so many questions and heartbreak and find the friendship and answers they were looking for.

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What I've enjoyed the most about my experience with this nonprofit is...

I was always made to feel comfortable and accepted. I had no problem finding answers and reassurance within this support group.

The kinds of staff and volunteers that I met were...

kind, caring, easy to talk to and always helpful.

If this organization had 10 million bucks, it could...

change the way families feel so alone and adrift in a maelstrom of fear after a loved one is hurt.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

My son was in a serious motorcycle accident in August of 2007. He suffered a traumatic brain injury as well as fracturing his C4 and C5 vertebrae. The experience was overwhelming! The gift of the essential items included in the Survival Bags brought more than just a little comfort in a horrific setting, it also made me realize that I was not alone and that there were others that knew exactly what I was dealing with. That knowledge gave me the strength to seek out those that supplied the Survival Bags and ultimately led me to the support group meetings that I attend regularly at Loma Linda University Medical Center. Although my son was admitted to Loma Linda Hospital I had not been informed about the support group. Once my son was home I realized that my entire family needed help with coping with my son's recovery from his TBI. The Survival Bag I received provided me with not only some initial comfort in the hospital, but also a link to a lifetime of assistance. I want to extend my deepest gratitude to the founders of this wonderful organization. Their efforts provide a ray of sunshine into the lives of those in their darkest hours!

The Great!

I've personally experienced the results of this organization in...

the hospital while my son was in a coma as well as numerous times since his discharge.

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What I've enjoyed the most about my experience with this nonprofit is...

the link to future assistance in coping with my son's TBI recovery.

The kinds of staff and volunteers that I met were...

absolutely fantastic and understanding.

If this organization had 10 million bucks, it could...

distribute their Survival Bags to hospitals throughout the country for family members and loved ones of patients with traumatic brain injuries.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

Loma Linda Hospital In August 2005 Arthur Moss husband of Lisa Moss received a Severe Traumatic Brain Injury while riding his motorcycle with a group of friends in Hanksville, Utah. Arthur was flown to the University of Utah Trauma Hospital where Author laid in a deep coma. When Lisa arrived she was given the medical update, assigned a social worker and informed he was in a coma. Feeling helpless she began researching information on the internet with her sister-in-law, Tayna Ison to learn the complications, medications, and long term effects of a traumatic brain injury. Lisa and Tonya soon realized there was little information readily available for families when they were thrown into the unknown world of Traumatic Brain Injury. Within a year Brainstorming 4 Us was born a non-profit agency that provides education, support and brain injury resource bags to Trauma Centers throughout Southern California. Brainstorming 4 Us brain injury resource bags are offered to families at no charge to answer questions pertaining to different types of brain injuries, glossary of terms to help the families understand the medical terms that are being delivered to them during a crisis, diagrams of medical machines, toiletries for the first 24 hours, pad of paper and a pen to write notes or changes in the patient’s recovery. Loma Linda University Medical Center and Children’s Hospital, (LLUMC & CH), began distributing the brain injury bags in 2006 and has placed over 150 bags in the hands of families dealing with a Traumatic Brain Injury. The brain injury resource bags have been an asset for families, friends, patients, nurses and physicians. Allowing the families the opportunity to understand the injury and terminology has made the staff’s job at LLUMC & CH a little easier. One of the Brainstorming bags was taken by a physician of LLUMC to another state when one of his family members received a traumatic brain injury. A testimonial to the impact and power the bags deliver. The vision of Brainstorming 4 Us has proven time and again to be a gift of love hope, support and inspiration. Sincerely, Michael May Adult Trauma Nurse Coordinator Loma Linda University Medical Center and Children’s Hospital

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The Great!

I've personally experienced the results of this organization in...

I have watched this organization offer support, resources, education and funding to families who are struggling with brain injury related issues.

Ways to make it better...

If I had to make changes to this organization, I would...

Funding to support their mission and cause to make a difference with families struggling with a Traumatic Brain Injury, Aneurysm or stroke.

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What I've enjoyed the most about my experience with this nonprofit is...

Brainstorming 4 Us reaches out to help families who have experienced a brain injury. Their goal is to educate, support and help survivors and caregivers experiencing brain injury.

The kinds of staff and volunteers that I met were...

Kind, compassionate and willing to go the extra miles to help when a catastrophic injury occurs.

If this organization had 10 million bucks, it could...

It could serve families throughout the United States and make a difference for survivors, caregivers, friends, public schools and police departments.

Ways to make it better...

I would not change a thing but support their program through our hospital and beyond.

In my opinion, the biggest challenges facing this organization are...

Funding needs to be available to help them reach their goals to have all trauma hospitals in the United States have their Brain Injury Resource Bags available to families for free

One thing I'd also say is that...

They are in this for the right reason. Having a husband and brother who sustained a sever Traumatic Brain Injury these women have dedicated their life to helping others through the difficult steps of brain injury.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

The husband of a dear friend suffered a traumatic brain injury as the result of a motorcycle accident. After years of struggle my dear friend was introduced to Brainstorming4Us. They provided vital information and, more importantly, support for the caregiver. After seeing my friends hopelessness turn to hope, and then to strength, and then to help for others, I was moved to become a supporter and a donor.

The Great!

I've personally experienced the results of this organization in...

I've witnessed the results that this organization provides to the loved ones and caregivers of those suffering from TBI.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

Brainstorming4us is an amazing non profit organization that helps families deal with TBI. Not only is it helping survivors deal with day to day struggles there also providing continuous support to the care givers and family members. once again brainstorming4us is an awsome organization and I reccoment them to anyone who needs support.

The Great!

I've personally experienced the results of this organization in...

The monthly meetings. And the annual walk for thought.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 22, 2010

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June 22, 2010

I'm a TBI survivor for going on 14 years this September, & last fall I was having a VERY hard time going on with life & kept having suicidal thoughts that I just couldn't shake off. I've heard of Brainstorming 4 Us, Inc. through my other group PossAbilities but didn't have the time to go. Well this group Brainstorming 4 Us, Inc. helped me with coping & support to keep going I make time to go to their meetings(1st Saturday of every month normally) & help others with my infamous BIG HUGS :D

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The Great!

I've personally experienced the results of this organization in...

a reason to keep on living :)

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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