Brain Tumor Foundation for Children, Inc.
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November 9, 2012
Our daughter was suddenly diagnosed with anaplastic ependymoma at 10 months old. Prior to resection she suffered a global brain injury due to hydrocephalus caused by her tumor closing off her third and 4th ventricles. She is now home from the hospital but has a g-tube and feeding pump, trach and suction/humidifier/oxygen condenser, & pulse-ox. The Brain Tumor Foundation for Children's Butterfly Fund is helping us get an emergency power generator so this winter and during other power outages that are common in our area we can keep our daughters equipment up and running and not have to go to the hospital with every outage. We are so grateful to them for this as otherwise we would have great difficulty in paying for one ourselves.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 5, 2012
In 2001 our son was diagnosed with medulla blastoma. BTFC was there to help us with information, presence, and supportive events. After ten years cancer free, David's cancer returned in 2011 - this time he is considered an adult, but BTFC was there because once you are a part of the "family" you are always a part. Once again, support was given in presence and this time financial to help with gas expenditures. Without this help we would have been in a terrible situation (like it wasn't terrible enough). Even though we lost our son this time, BTFC is still supportive in celebrating our "angels" lives. It is a very personal nonprofit that works at getting to know the people they help which, at a time when friends seem to disappear, is probably the greatest support they give.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 5, 2012
In 2006, our daughter Tahjany was diagnosed with a brain tumor and it changed our lives tremendously. The Brain Tumor Foundation for Children were the ones who helped us pull through difficult siutations inside and outside the fight of the cancer. Thanks BTFC for all that you've done for our family. We Love You All! R.I.P. Tahjany, The Duncans.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 4, 2012
BTFC takes personal care of each family they serve. They have been a lifeline to me as a momma of a brain tumor patient. They give us opportunities to do events together as a family. Time together as a family is priceless considering we are usually split up due to doctor visits, hospital stays, and therapies. BTFC also assists us financially when the burdens of brain tumor expenses become overwhelming and impossible. Cannot say enough good things. NOTHING negative. LOVE BTFC!!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 2, 2012
Our daugher, Julia, was 8 when she was diagnosed with a brain tumor. It was a glioblastoma, and very aggressive. At the time, we lived in St. Louis, MO. One her wishes was to go back to New Orleans, where we are from, to be with our family. Not only did the BTF help us with rent, car payments and other expenses, they kept in touch with us every step of the way. Our baby girl has gone to be with our Savior. After she died, they sent us a lovely angel figurine, I will always keep it next to her picture. We still get personal emails from them, and I can't tell you how much it means to me that they will always remember my wonderful girl. This is a very special organization. Cathy W
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 1, 2012
October 2011, my 14 year old son Zachary, had some nausea and problems with his vision. His pediatrician ordered an MRI of his brain just as a precaution. I never expected for them to find anything. To my shock, he was diagnosed with an inoperable tumor on his brain stem. We were sent 140 miles away to Vanderbilt Children's Hospital in Nashville, TN for treatment. After taking a heavy dose of steroids for a week to bring the swelling down, he had a brain biopsy at Vanderbilt. Three weeks later, he started six weeks of radiation. I was told by my employer I was eligible for FMLA. But I only had 2 weeks of vacation left, the rest of the time would be without pay. As a single mother, I had no other income. The social worker at Vanderbilt referred me to the Brain Tumor Foundation. I submitted our expenses to the organization through the social worker. The Brain Tumor Foundation paid our house payment and utilities while we were in Nashville allowing me to focus on taking care of my son. They were truly a godsend. I can only imagine what would have happened to our home without them. We have been truly blessed! The radiation shrunk the tumor by half. Zachary has an MRI every 3 months at Vanderbilt to monitor for change. We are so thankful for the help!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 1, 2012
The Brain Tumor Foundation for Children offered assistance to my family while my son was being treated for a brain stem tumor. During this time, I had taken a leave of absence from my job to care for my son and with BTFC's help we were able to focus our attention where it should be on caring for our son. We are very grateful because they donated gas and grocery gift cards which helped relieve some of the financial stress on my husband and me.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 1, 2012
Going through the devastation of having a child with a brain tumor is hard enough.... This organizations brings relief to the family to deal with financial struggles, family coping and bring happiness to the children and family affected. I don't know how I would've been able to get through this without their support and the support of my hospital's brain tumor team!
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 1, 2012
My son was diagnosed with a golf-ball sized brain tumor on October 31, 2008, when he was just 3 years old. It was the most shocking and devastating event that anyone can ever experience in their lifetime. My mind immediately went blank. I could not think of how I was going to take care of my other children, my husband, or my job. Would I ever be able to return to work? Would I lose my job? What was going to happen to my house? How was I going to pay my bills? The hoildays were coming soon, would my other children spend Thanksgiving in the hospital or get Christmas presents? Those were just a few of the million and one questions that raced through my mind within the first few hours of my son's diagnosis. Fortunately The Brain Tumor Foundation for Children (BTFC) was there to help! Within just DAYS of his diagnosis they were there. Throughout the 4 straight MONTHS that we remained in the hospital they provided meal cards (cafeteria food can be very expensive and really adds up), gift cards, and even Christmas gifts for ALL of my children! BTFC even PAID MY MORTGAGE and CAR NOTE because I had to resign from my job. They are an absolutely AMAZING organization that not only provides financial support, but the emotional support that was so desperately needed!!! My son has been to several hospitals in several different cities and I must say that BTFC has been the absolute best! They are a true blessing from God and I am so grateful for all that they have done, and continue to do. Even though we are 4 years into our fight with cancer the BTFC is still as active and helpful as they were from day 1. Thank you BTFC - you are a gift from God!
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
November 1, 2012
1 person found this review helpful
You don't ever expect to hear the words "YOUR DAUGHTER HAS A MASS ON HER BRAIN." But I heard those exact words on October 31, 2007. Our daughter, Calla, was just 21 months old. Devastated doesn't even begin to describe how I felt. Not to mention scared outta my wits! Our family was introduced to the Brain Tumor Foundation for Children. I didn't want to "belong" to such an organization. Because that meant that, to qualify, my baby girl had a brain tumor. Yikes. Fast-forward five years later: we cannot imagine our journey without the Brain Tumor Foundation for Children. They were "there" for us. Need a shoulder to cry on? Need a listening and caring ear? Need cookies, delivered with a smile, to your inpatient hospital room? Need financial assistance for your car payment? Need just a simple hug? These BTFC peeps have got ya covered! We've had the privilege (?) of working with quite a few non-profit organizations in our daughter's medical-drama-filled life. The Brain Tumor Foundation for Children continues to be our FAVORITE charity. Not only because they do good things....but because they genuinely care. (Oh and pssst-by-the-way, Calla is now cancer-free, thank You, God!)
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When was your last experience with this nonprofit?
2012