Mission: The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.
Results: In the 2012 fiscal year (7/1/11 – 6/30/12), we provided $360,000 in emergency financial assistance for 300 families in the southeast through our Butterfly Fund. Since being established in 2000, this one program has provided over $1.8 million in assistance for hundreds of families – helping with items that include rent and utilities, car payments and repairs, gasoline, treatment-related travel expenses, and much more. We will continue to “Help Families Cope,” as long as needed through this and other programs that are described on our website.
Target demographics: Families of children aged birth through 21 years in the southeast who have brain and spinal cord tumors.
Geographic areas served: Southeast
Programs: The Brain Tumor Foundation for Children provides a financial assistance program (Butterfly Fund) for the families of children treated for the disease at certain hospitals in eight southeastern states (GA, FL, LA, MS, AL, KY, SC, TN); it provides information and education for families; it provides hands-on support to families (mostly in the state of Georgia); it supports research for a cure.
You may have seen the documentary on Dr. Stanislaw Burzynski who has great success with children with brain tumors. He practices out of Houston, Texas. His anti neoplastons are amazing medicine. They have a much better success rate than traditional radiation with virtually no side effects.
Our son, Scott Davis, was diagnosed with a brain tumor at 13months of age. We were given very little hope. Scott is truly our miracle. He is now 32yrs. old and happily married. My late husband, Larry Davis, was one of the founding members of the BTFC. When Scott was diagnosed in 1981, there was no where to go and no one to talk to. The BTFC provided so much support. It enables you to talk to other parents who are walking in your shoes. We parents could share our stories and concerns for our children.They offer so many opportunities for these kids to get together and enjoy fun times together. All 3 of our children always looked forward to the Christmas party sponsored by the BTFC. The BTFC for children continues to be a wonderful outreach for parents and children who are suffering. It helps to know that you are not alone.
My daughter (Tori) was diagnosed with a brain tumor in Dec. 2005 on her 13th birthday. She will turn 20 on Dec. 7, 2012. We have seen many families go thru this durning many BTFC events. When my daughter was diagnosed in 2005 there were 2 to 5 new patients a month diagnosed with brain tumors. Now there are so many more diagnosed due to the awareness of the symptoms given out to many pediatric doctors. The BTFC has helped us in so many ways from pay bills to having family events to go to with our daughter and share our story with other family going thru the same thing. We have helped with fundraiser and volunteer at BTFC events too. My daughter LOVES this foundation and will stay a volunteer the rest of her life.
When my daughter was diagnosed with a brain tumor, BTFC was the first foundation to reach out and offer support. They supported us throughout her journey and still continue to be a source of emotional support since she died. They are a wonderful foundation.