Brain Tumor Foundation for Children, Inc.
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March 22, 2013
You may have seen the documentary on Dr. Stanislaw Burzynski who has great success with children with brain tumors. He practices out of Houston, Texas. His anti neoplastons are amazing medicine. They have a much better success rate than traditional radiation with virtually no side effects.
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Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Likely
When was your last experience with this nonprofit?
2013
1 person found this review helpful
November 26, 2012
1 person found this review helpful
My daughter was diagnosed with a brain tumor at 19 y/o on 29 Jul 12. They do not know how long she's had it. She had two surgeries to remove the tumor and she is currently going through radiation therapy then on to chemotherapy. She has an 11 month old son. Through my social worker the foundation has provided us with $350 in gas cards as we have had to travel back and forth at least once every two weeks for two hours for her doctor appts. Without the foundation we would be hurting as I nor my daughter are currently working; since I have exhausted all of my leave from work being by her side. We also are struggling to get her disability approved so the foundation is truly a God sent organization. They are willing to help with bills, car repairs, etc. if you just ask. We are truly grateful and thankful for God and him providing donors with such caring hearts. I am sure other families are just as grateful.
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How would you describe the help you got from this organization?
Some
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 22, 2012
This past year out daughter was diagnosed with a rare brain tumor. Immediately the foundation reached out to us offering support in a number of ways. It was assuring to know we were not alone in this battle. Our daughter is admist receiving treatment and the foundation has reached out to our family and older daughter.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 20, 2012
December of 2007 i received a call while my child and i were at st jude.The lady i spoke to was so kind sweet and thoughtful was as if a family member had called to offer help.Was a great burden lifted the finacial support was just the begining , they would call and check on us regularley they even sent my other child a gift for the holidays .And when i lost my son they send a gift i keep it in a special place so thankful for all they have done an do each day may god bless the btfc and as long as i walk this earth you'll have my support thank you.
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2008
November 16, 2012
In July 2005 our neighborhood of Decatur, Georgia lost one of our beloved children to pediatric brain cancer. Ian was a bright, vigorous, athletic 15-year old with a passion for skateboarding. After his death, friends and neighbors came together to raise money for the devastated family through a neighborhood festival called SkaterAid. The money we raised that year meant a lot, but the real power of the event was the healing it brought to Ian's family and friends. This year we celebrated our 8th SkaterAid. We continue to donate every dollar to the Brain Tumor Foundation for Children, who uses these funds to pay bills for families struggling with this disease. The people at the BTFC are truly the most caring, wonderful people you could ever hope to meet. SkaterAid is an anuual event, but we are proud to play a part in the work the BTFC does every single day of the year.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
November 16, 2012
Our son, Scott Davis, was diagnosed with a brain tumor at 13months of age. We were given very little hope. Scott is truly our miracle. He is now 32yrs. old and happily married. My late husband, Larry Davis, was one of the founding members of the BTFC. When Scott was diagnosed in 1981, there was no where to go and no one to talk to. The BTFC provided so much support. It enables you to talk to other parents who are walking in your shoes. We parents could share our stories and concerns for our children.They offer so many opportunities for these kids to get together and enjoy fun times together. All 3 of our children always looked forward to the Christmas party sponsored by the BTFC. The BTFC for children continues to be a wonderful outreach for parents and children who are suffering. It helps to know that you are not alone.
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Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
November 15, 2012
I got involved with The Brain Tumor Foundation for Children because they are our corporate charity. I stay involved because of the wonderful work they do and the families they support. They are a very high touch organization. They reach out and provide support to all of the children and families being treated by the hospitals with whom they are affiliated. While not every family needs financial assistance, the organization also provides information, education, and activities for the children and families.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
A lot
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2012
November 14, 2012
My 9 year old daughter Zoe was diagnosed with Glioblastoma Multiforme (GBM) brain tumor and had to have immediate resection surgery at OU Children's Hospital in April 2009. According to protocol she would also need radiation and chemotherapy treatment so in order to be closer to family we decided to relocate and continue her care at Miami Children's Hospital, Florida. For over a year Zoe did very well but the tumor came back and she had to have a second surgery in October 2010. It was then, through the staff at MCH that we learned of BTFC. BTFC stepped in and helped us when we didn't even realize that we needed help! They assisted us in paying several bills and travel expenses, which was well needed since we lived 2 hours away from the hospital and had other children. Their help allowed my husband and I to focus on Zoe's recovery as this time she also needed occupational, physical and speech therapy. When we returned home from the hospital, our mail man delivered huge box to our doorstep. Inside we found all sorts of goodies for not only Zoe but enough to share with her siblings. We were all excited, I only wish you could have seen her dimple filled smile which lit up the room! Since then BTFC kept in touch with us through emails and cards. Sadly Zoe passed away on December 11, 2011 at age 12 due to a third occurrence. Again, BTFC was there to assist us with several of our living expenses and also Zoe's final expenses. This time we focused on our broken hearts and those of our other children. You see, when you no longer have to go back and forth to the hospital for check-ups and treatments, when you no longer have to make appointments and fill prescriptions, when doctors no longer call and your extended family goes home it intensifies the fact that your child is gone. Then one day when our world had stopped, I heard the doorbell ring and looked to see our mailman holding a small box. Inside was a beautiful angel that was sent to our family from BTFC. It made our day, as was a gentle reminder that someone still remembered us, that someone still cared and that there are many other families like ours still fighting for their kids battling brain cancer.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 11, 2012
The Brain Tumor Foundation for Children have been there for use over the last 10 years and we are so thankful for this organization. My son, Blake Carpenter, was diagnosed in January of 2003 with a craniopharyngioma. He has been fighting this brain tumor and the side effects for the last 10 years. Sherry Samuels and Mary Moore along with other volunteers from BTFC have been emotional and financial support for us over the years. There have been times when we needed a hug, smile, listening ear, surprise, or help with gas throughout the years and they have always been here for our family. Also, the BTFC has provided just simple FAMILY FUN for us and so many other families and provided us with an opportunity to meet other families that are also living a roller coaster life. I am thankful for BTFC and so happy to be blessed to be a part of this heartfelt organization!
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 11, 2012
What a wonderful organization! We are so thankful for all the support from initial diagnosis to relapse and eventual death of our son. Mary Moore and her team mean so much to our family! Sincerely, Jacque Porter
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012