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27 Reviews
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June 10, 2014

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June 10, 2014

I was in an auto accident in 2008. based upon my experience, T.B.I. is now "Big Business". B.I.A.M.I. may claim to be a non profit. Take a look at the yearly conference and big parties. HUGE MONEY!!
Those of us afflicted with T.B.I.'s suffer in silence. We are herded like cattle to the
B.I.A.M.I. team of T.B.I "experts" . Our needs are denied and they profit greatly by extending our suffering. Those afflicted with a T.B.I.
need support as our vulnerabilities are used for financial gain by unscrupulous "T.B.I. support thugs". B.I.A.M.I is for big business. We NEED a B.I.A.M.I for support for persons with this affliction!

Ways to make it better...

If I had to make changes to this organization, I would...

Outsource it and start a NEW patient advocacy group. Allow B.I.A.M.I. supporters to compete for our insurance dollars and thereby force their profitability be reflected by the quality of the service's provided. Force them to refocus their profit performance based on how well they meet our needs!

More feedback...

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

October 31, 2011

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October 31, 2011

This organization has help more opportunities to be informed about the issues that Soldiers are facing. The Events really helped me relate and talk to other Soldiers from different conflicts and to enjoy myself at the same time. I love the charters and the pheasant hunts, to me it helped relieve some of my stress and helped me to relax. This is important from being deployed a couple of time to Iraq.

The Great!

I've personally experienced the results of this organization in...

the pheasant hunt

Ways to make it better...

If I had to make changes to this organization, I would...

provide an opportunity for more events and gatherings, this is what we need to talk with each other and help each other through this.

October 19, 2011

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October 19, 2011

The people that work there are outstanding. It is good to see such integrity still exists. I highly recommend donating your time, services, or money to such a worthy cause.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

October 19, 2011

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October 19, 2011

Brain Injury Association of Michigan host many events throughout the year which gives Veterans the opportunity to bond and talk to others who experience similar situations. This experience was not only a boost to my motivation, it really helped with the healing process of those invisible wounds.

The Great!

I've personally experienced the results of this organization in...

I have made almost a 100% recovery from my PTSD without medication.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing, This organization goes out of there way to reach there target audience. By far the best non-profit I have worked with. I can't begin to explain the amount of dedication and care received from individuals within the organization.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Veteran Organizations

When was your last experience with this nonprofit?

2011

February 5, 2011

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February 5, 2011

I suffered a TBI as a result of a motorcycle accident in 1999. I struggled for years. Had I not found BIA and started attending the north Oakland county meetings, my life would not be what it is today. The information provided is extremely helpful. I learned about TTI and started receiving treatment, medication, therapy, and attending group sessions. Thank you BIA!

The Great!

I've personally experienced the results of this organization in...

where to find help when I needed it.

Ways to make it better...

If I had to make changes to this organization, I would...

Have a direct link to DHS, SSI for receiving benefits in a more timely manor with out adding so much stress to me and all the people in my life.

December 19, 2010

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December 19, 2010

I would like to share the many positive things that our done by the Brain Injury Assoc. of Michigan. I have been with the association for 10 years as a caregiver for a survivor plus in leadership for a local chapter. In the ten years that I have dealt with the main office and the national office, I have been very impressed with their committment that each and very one of them put forth. You will never be able to please everyone, especially people who have trouble with TBI's, caregivers and family members that are also going through rough times. There is not an organization in this world that doesn't have overhead costs to run them. I have dealt with several over my life time and can tell you that BIAMI does a marvelous job using their funds. As for all that politicial stuff that others complain about, you don't really understand the importance of making sure the world realizes what a TBI is and the seriousness of needing help for those people. In Michigan, if we lose No-Fault Car Insurance everyone will suffer, so its extremely important that you have someone fighting for it daily. BIAMI needs to be congradulated for lobbying for it, daily.
If it hadn't been for BIAMI, we would not have come this far. We had never heard of traumatic brain injuries and will never be able to thank them enough for all the detailed literature and vast amounts of materials that our made available.
If you feel that enough is not being done, then get involved and help the rest of us, who try daily to make other people lives better.

The Great!

I've personally experienced the results of this organization in...

I personally experienced the results of this organizaiton in my life, when my husband received two different head injuries and we needed help understanding the impact of things that happened and how to go on.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not change the running of this organization. They do a great job and who am I to complain.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

There is nothing that I personally would like changed.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Yes, I realized that there is always others that are worse off then you and you can make a difference, one person at a time.

How did this volunteer experience make you feel?

Special. Each an every time I work with survivors and their families, they bless my heart with their smiles, hugs, and gratitude.

When was your last experience with this nonprofit?

2010

October 23, 2010

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October 23, 2010

I have to agree with what others have written about this organization focusing more on throwing parties, raising money and politics/lobbying. I tried contacting them directly through various means and was ignored almost every time. When they finally did respond their response was completely meaningless and demonstrated they really had no idea about TBI's.

The Great!

I've personally experienced the results of this organization in...

person, by phone and via the Internet.

Ways to make it better...

If I had to make changes to this organization, I would...

Eliminate all the dead weight in the "leadership" and use the funds raised to support research to help those who have TBIs.

More feedback...

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

How did you find this group?

They came to the facility where I worked.

What, if any, change in your life has this group encouraged?

It's encouraged me to seek or perhaps even create a group that would not waste money like they do.

When was your last experience with this nonprofit?

2010

August 24, 2010

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August 24, 2010

I want to publicly express my deepest gratitude to the BIA of Michigan. While I've been fortunate to work on behalf of the association for the past 8 years, it was one month ago - July 17 - when my son sustained a TBI in a jetski collision up north that I came to appreciate the full extent of resources, counsel and ong...oing support it provides. Not gonna blather on about it - our story is but one of literally millions of TBI stories out there across the country. I just want to say "thank you" for everything you've done.

The Great!

I've personally experienced the results of this organization in...

extensive and ongoing support regarding available treatment resources on behalf of my son.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 27, 2010

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June 27, 2010

I have a son who suffered a TBI in the last year. There was some good information posted that was removed for political reasons. This organizations seems only concerned with hosting parties for wounded veterans, raising money and lobbying for money. After hunting for the research I noted that over 50% of their revenue goes to pay for overhead (the vast majority of that being staff costs.) If you have a brain injured friend or family member who did not suffer their injury as a member of the armed services, then this organization is not really going to help you.

The Great!

I've personally experienced the results of this organization in...

my direct and indirect dealings with them.

Ways to make it better...

If I had to make changes to this organization, I would...

move to an all volunteer staff and spend far less time concerned about lobbying and throwing parties and far more time trying to find long term solutions to curing and fixing brain injuries.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

not much. I attended some events and talked with them about bike safety (a bicycle helmet is what saved my son).

The kinds of staff and volunteers that I met were...

a mix of good and bad. The volunteers were mostly quite good, the staff was nice to my face but absolutely not nice when they were not directly face to face.

If this organization had 10 million bucks, it could...

throw one heckuva party. And it likely would.

Ways to make it better...

the organization actually cared more about TBI victims and less about lining their own pockets.

In my opinion, the biggest challenges facing this organization are...

too much overhead and poor long term goals.

One thing I'd also say is that...

they need to be either more honest in their goals or be more honest in following their stated goals.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 26, 2010

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June 26, 2010

After joining and donating, I also became an early member on the Facebook page. After researching and asking questions I realized that the organization did not really have anybody tracking or relating current research. The paltry amount they actually spent on research sent no money in a direction that would actually help resolve current TBI victims. Further questioning, no matter how polite, instead resulted in the typical treatment given to whistleblowers which was immediate censorship once it became clear that they could not address the problems nor make the facts fit what they were stating and promising. From the 2009 annual report, they show overhead costs being over 50% (most of that being personnel costs).

The Great!

I've personally experienced the results of this organization in...

In my direct and indirect dealings with the organization.

Ways to make it better...

If I had to make changes to this organization, I would...

Change the focus of the organization away from lobbying and fundraising and put their efforts into actually supporting research that can be used to repair or remediate TBIs. I'd trim the personnel, including knocking the board down from 16 down to 5.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

helping the members who were looking for answers and what therapies might be best. Of course, that happened despite the nonprofit efforts which seemingly do not care about what their charter claims they care about.

The kinds of staff and volunteers that I met were...

nice, but not really knowledgeable.

If this organization had 10 million bucks, it could...

poor that money into real research. Unfortunately it would use that money to line their pockets, for more fundraising and for more lobbying.

Ways to make it better...

the organization actually cared about helping people recover from traumatic brain injuries.

In my opinion, the biggest challenges facing this organization are...

too much operational overhead and little to no focus on research despite their claims.

One thing I'd also say is that...

When problems are raised, first they try a snow job, but once that is exposed as not being accurate or addressing the problem they resort to silencing their critics instead of actually fixing things.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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