BeatSarcoma

Rating: 4.94 stars   18 reviews

Issues: Health, Cancer

Location: 143 28th St Suite 4 San Francisco CA 94131 USA

Mission: Sarcoma is a form of cancer that arises in the connective tissues. It affects primarily children and young adults. They are hard to diagnose, hard to detect and hard to treat. Biopsy is the only diagnostic tool and surgery often the only curative treatment. Many sarcomas resist current cancer treatments, simply because they are little understood by researchers. - 20% of childhood cancers are sarcomas. They affect also many young adults. Sarcoma destroys so many lives before they have had time to blossom. - Sarcoma gets less than 1% of cancer research funds - this is not enough. Sarcoma research is years behind compared to that for other cancers. This is the situation we would like to change - and reestablish a working cycle between basic research => transational research => clinical research (often funded by the industry). The middle link seems broken for sarcoma.
Programs: In 2008, we are planning on funding the following research program - through a variety of initiatives. We are also developing a Kid's Program and to date have distributed 15 books to children with sarcoma in hospitals. What is the problem One of the biggest questions in sarcoma treatment is accurately diagnosing the type of sarcoma and its aggressiveness. This is important because more specific and accurate pathology translate into better treatment plans. Being able to reliably and consistently diagnose the cancer is the first major step toward a reliable and consistent set of solutions. A team of world-class experts couldn't agree on a single diagnoses nor provide one recommendation based on a clear set of data to our founder. What does the solution look like? It requires establishing a link between the biology of sarcoma cells and their associated patient outcomes. Such a link is called a correlation. With this information, scientists will better understand the biologic factors that help predict patient outcomes. This is what Dr. Amreen Husain and her team would like to do, with your help. Specifically, how is this done? These biologic factors are called histopathologic criteria. Histopathology is the microscopic study of diseased tissue. It reveals the types of cells present in abnormal tissue and permits accurate diagnosis, including a measure of the aggressiveness of the disease. The analysis results in a list of histopathologic criteria. Today, for sarcoma, these criteria are insufficient. It is common for a patient to get as many recommendations as there are physicians that studied their pathology slides. This can be dangerous as the histopathologic criteria assist the clinician in deciding on the best course of action. In order to gain such a deep understanding, scientists need a lot of examples - eg. a lot of sarcoma cell samples with associated clinical information. Using gene and protein microarrays, researchers can study the biology of these cells and see if histopathologic patterns appear for any given clinical outcome. How will this help patients? A large study such as this one really has the potential to have a large impact on the future of sarcoma research and eventually clinical care. 1) It tells us which biologic factors are relevant to the clinical outcome - scientists won't waste time on the ones that aren't. 2) It tells us to what extent each biologic factor can be associated with a given outcome. The factors that most strongly correlate with a bad outcome will make ideal targets for future treatments. The information will also help oncologists make treatment recommendations - the more aggressive the cancer, the more aggressive the treatment. This work has been done for other types of cancer but there are no large and comprehensive tissue banks with clinical information for sarcoma. One of the goals of the project coordinated at Stanford is to expand tissue collection, banking and analysis of all types of sarcoma to help physicians better predict clinical outcomes.
2009 Top-Rated Nonprofit
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

10 people found this review helpful

Through my organization in Africa (Baobab Humanity Initiative), Beatsarcoma has received encouragement, aknowledgement and support from women in Benin for its work. Herve Gigot, an paint-artist from Benin express his support to Beatsarcoma through his last work in progress (18 paintings) inspired by Nathalie Criou and beatSarcoma.

I've personally experienced the results of this organization in...

Every one of the project

What I've enjoyed the most about my experience with this nonprofit is...

The team in charge of the volunteers

The kinds of staff and volunteers that I met were...

The ones I would recommend to any organization looking for efficiency and commitment

If this organization had 10 million bucks, it could...

change the world! Yes!

When was your last experience with this nonprofit?

2009-12-01

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Rating: 5 stars  

9 people found this review helpful

The distance covered by BeatSarcoma since it was founded is astonishing. A small, dedicated, highly professional group of individuals are responsible for this success. The events are creative & fun, and I enjoy them that much more because I know that every dime I give BeatSarcoma is used to make a real difference. Nothing is wasted on the path to beating sarcoma.

I've personally experienced the results of this organization in...

the respect and overwhelmingly positive response they've earned from top professionals working against sarcoma as well as the general public.

What I've enjoyed the most about my experience with this nonprofit is...

the amount of research and thought that goes into each step in their growth, and the way they make their volunteers and donors feel valued.

The kinds of staff and volunteers that I met were...

passionate & professional.

If this organization had 10 million bucks, it could...

skyrocket.

When was your last experience with this nonprofit?

2009-1-01

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Rating: 5 stars  

9 people found this review helpful

They are very committed to making a difference in the fight against Sarcoma. With a small, scrappy, smartly run organization like BeatSarcoma, you can be sure any donations will truly go to supporting the cause, and they are always looking for good volunteers!

I've personally experienced the results of this organization in...

raising money for sarcoma research

If I had to make changes to this organization, I would...

NA

What I've enjoyed the most about my experience with this nonprofit is...

small, committed organization.

The kinds of staff and volunteers that I met were...

smart and interesting

If this organization had 10 million bucks, it could...

Really ramp up Sarcoma research and services

Ways to make it better...

NA

In my opinion, the biggest challenges facing this organization are...

Needs more funding/donations!

One thing I'd also say is that...

NA

When was your last experience with this nonprofit?

2009-4-01

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Rating: 5 stars  

12 people found this review helpful

BeatSarcoma is a great organization not just because it's doing the needed thing--Beating Sarcoma---but because the organizers are wonderful and their spirit is unchallenged.

I've personally experienced the results of this organization in...

helping needy patients with the resources they need to fight Sarcoma.

If I had to make changes to this organization, I would...

recruit more people to assist!

What I've enjoyed the most about my experience with this nonprofit is...

the people involved.

The kinds of staff and volunteers that I met were...

the kind you want to invite over for dinner.

If this organization had 10 million bucks, it could...

do amazing things!

Ways to make it better...

I could donate more of my time!

In my opinion, the biggest challenges facing this organization are...

more funds, more people!

One thing I'd also say is that...

i sincerely recommend you get involved with beating sarcoma.

When was your last experience with this nonprofit?

2008-8-01

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Rating: 5 stars  

9 people found this review helpful

BeatSarcoma's goal makes perfect sense and deserves support and visibility. This not-so-well-know disease is kind of left-behind by the medical research effort and BeatSarcoma is just trying to overturn this situation. Besides research effort, BeatSarcoma tries to alleviate the pain the people affected by sarcoma have to bear. This ambitious goal is well served by an effective leader. She manages to raise interest by successful and fun events. Her great human skills, also enlightened by her own experience as a sarcoma survivor, just work magic: everyone becomes a supporter. All this non-profit needs is to gain visibility, with this it can really hope to beat sarcoma.

I've personally experienced the results of this organization in...

the ambitious events organised to increase awareness and raise funds.

What I've enjoyed the most about my experience with this nonprofit is...

its leader.

If this organization had 10 million bucks, it could...

give hope to people suffering from sarcoma to get rid of sarcoma for good.

When was your last experience with this nonprofit?

2009-1-01

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Rating: 5 stars  

10 people found this review helpful

When you participate in BeatSarcoma events you can't help but want to help, and you can't help but have fun. The organizers make it easy to do both. Last year was the first sailboat regatta, with all proceeds going to research. You should have felt the vibe! The sponsoring yacht club has a winning formula for big regattas, and this event can't help but grow. We were so excited by it that we are going to be a sponsor this year.

I've personally experienced the results of this organization in...

Generating awareness for a less-well-known disease.

If I had to make changes to this organization, I would...

What I've enjoyed the most about my experience with this nonprofit is...

The feeling of being part of something truly helpful.

The kinds of staff and volunteers that I met were...

Very friendly and cheerful, not downcast or pushy.

Ways to make it better...

If I had thought of being a sponsor or donating prizes before last year's event.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

12 people found this review helpful

This non-profit raises money for sarcoma research- which is a very underfunded cancer research area and therefore there isn't much known about it and there aren't many treatments for it. It was started by a passionate, driven, enthusiastic cancer survivor and she is inspirational! All the money raised goes to sarcoma research and the events are fun! So far I've been involved in a 5K fun run and a sailing race. The events are well organized and interesting.

I've personally experienced the results of this organization in...

San Francisco

The kinds of staff and volunteers that I met were...

enthusiastic.

If this organization had 10 million bucks, it could...

provide competitive grants to sarcoma researchers at various cancer research institutions or set up a designated sarcoma research lab.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

14 people found this review helpful

This is a great non-profit. The annual Beat Sarcoma Cup is a top notch sailing regatta with a great trophy and excellent group of skippers who participate each year. The event's proceeds go directly to fighting Sarcoma.

I've personally experienced the results of this organization in...

action, it is great.

If I had to make changes to this organization, I would...

continue doing what is already being done.

What I've enjoyed the most about my experience with this nonprofit is...

the people involved.

The kinds of staff and volunteers that I met were...

fabulous!

If this organization had 10 million bucks, it could...

stop putting on events to raise money... Or it could put on a bunch of other events to raise even more money and hopefully Beat Sarcoma!

Ways to make it better...

Sarcoma was already beaten.

In my opinion, the biggest challenges facing this organization are...

fighting cancer.

One thing I'd also say is that...

the organizers are great!

When was your last experience with this nonprofit?

2009-7-01

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