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November 15, 2012
5 people found this review helpful

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November 15, 2012
5 people found this review helpful

As a genetics professional, I can atest to the professionalism of this organization. Not only are they a wonderful source of support to patients and families, they are also responsible for encouraging research and excellent clinical care for families. Very few family support groups ever reach this level of excellence.

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Will you volunteer or donate to this organization beyond what is required of advisors?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

November 9, 2012
6 people found this review helpful

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November 9, 2012
6 people found this review helpful

I have been working with the Barth Syndrome Foundation for several years. Not only is it inspirational to see the families working together for support and of course, their common goal, but the dedication of the Management and the Board in all facets of running the organization is outstanding. Everyone works together tirelessly to achieve their mission.

More feedback...

Will you volunteer or donate to this organization beyond what is required of advisors?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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