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25 Reviews
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August 10, 2012

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August 10, 2012

My 3 year old son has Arthrogryposis, and this support group has been wonderful for our family. We have attended two conventions where we were able to meet with hundreds of other families with members who also have AMC. This condition is very rare, so it is vitally important to be as educated and supported as possible - and we have learned to much and have so much comfort in knowing we are a part of this support group and are connected to all the other families.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

June 22, 2011

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June 22, 2011

This organization has been my saving grace. Last summer, I became the mother of a child with a mild case of AMC. Through this support group, I have had my hope renewed, and many, many questions answered. This group has shown me that children with AMC can thrive, and become well adjusted adults living close to "normal" lives. It has shown me that people with AMC don't have a disability, they have a "diff-ability". AMC'ers can do just about everything a 'typical' person does... they just may do it differently!

The Great!

I've personally experienced the results of this organization in...

finding treatments for my daughter and becoming well informed regarding her condition.

Ways to make it better...

If I had to make changes to this organization, I would...

none

April 25, 2011

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April 25, 2011

I don't even know where to start! AMCSI owns a major part of my heart! My daughter Bailey was born with AMC August 21st 2008, we were un-aware of any complications before birth so when she was born with AMC my Husband and I were very shocked and scared. Doctors were telling us of the thing's she wouldn't be able to do, the affects, the therapies and doctors she would need to see.. etc. It was a very overwhelming expierence and we were very frightened. We found AMCSI through an internet search when Bailey was a few months old and it was the BEST link I could have ever clicked on in my entire life. They took my family in like their own, offered support and most of all friendship. They made us realize that it was not about what Bailey wouldn't be able to do but about what she WOULD be able to do! They squashed our fears and opened our hearts! I couldn't ask for a better organization to be apart of! I'm so blessed to know many warm-hearted people through this support group and I am thankful everyday for them!

The Great!

I've personally experienced the results of this organization in...

I talk to several people from this group weekly and we have attended 2 of their annual conventions! The Conventions educated us on things we did not know about AMC, new therapies, bracing, surgery, etc and we use the knowledge in Bailey's everyday life.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing!

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