ARIZONA MYELOMA NETWORK
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June 30, 2011
The Arizona Myeloma Network (AzMN) is a relatively young non-profit organization that is making a bigger difference in the community every year. Besides addressing the needs of myeloma patients, which is a relatively small segment of cancer patients in general, AzMN provides valuable assistance to caregivers and underserved populations in Arizona, particularly Native Americans. Essentially, AzMN helps those who are often looked over.
The annual Navajo Nation Cancer Awareness and Advocacy Conference at Ft. Defiance has helped this important community by bringing knowledge and care to a population that has not enjoyed the same access to resources found in the greater metropolitan areas of Arizona. There is a genuine sense of compassion shared by physicians, researchers, and caregivers at this growing conference presented by AzMN. As the scope of the Ft. Defiance conference encompasses all cancers, not just myeloma, the needs of patients in this community are more specifically addressed, and as a result, the effectiveness of this conference increases each year.
The flagship event of AzMN is the Annual Living With Myeloma Conference, typically held in the spring each year in Scottsdale, AZ. There is no other event like it in the region. Myeloma patients and caregivers get direct access to leading physicians and researchers from organizations such as Mayo Clinic, TGen, Cancer Treatment Centers of America, Arizona Cancer Center, and MD Anderson. This conference gives hope to those affected by myeloma, providing information on the latest treatments and methods for improving quality of life.
AzMN also presents a 5k “fun”-raising run in the spring, and an excellent, well-organized golf tournament in the fall. Both events have a good-natured feel to them and are enjoyed by people from all walks of life.
Kudos to the Arizona Myeloma Network, and especially Founder and President Barbara Kavanagh for being a tireless champion of the mission of AzMN!
The Great!
I've personally experienced the results of this organization in...
attending all of the events that AzMN presents. There is an unmistakable sense of compassion and connectedness at the conferences and a tremendous amount of fun at the fundraising events. It is readily apparent that the attendees of the conferences leave with a renewed lightness, armed with new knowledge and hope.
Ways to make it better...
If I had to make changes to this organization, I would...
give them more funding to carry on their important mission.
June 30, 2011
AZMN has played a large role in educating Arizonans about myeloma and other forms of cancer. In particular, the organization has been instrumental in helping groups that lack access to medical care treat and understand the various forms of cancer.
The Great!
I've personally experienced the results of this organization in...
By attending the annual Myeloma Conference. The organization has been very successful in providing information about the most recent research and treatment options available for myeloma.
Ways to make it better...
If I had to make changes to this organization, I would...
Try to spread the word about this organization to increase the number of volunteers and improve the funding to further grow its great programs and events.
June 29, 2011
My name is Kurt Riske and I have been serving on the board of the Arizona Myeloma Network for almost five years. I would like to let you know that is has been a pleasure working with Barbara and Jack over these years. Their dedication not only to this organization but helping others is remarkable. They are a couple of the most caring people that I know. They have built an organization into a reputable non-profit that continues to grow year after year. We can not do this without the help of the community and the grants that we recieve. Our race, golf tournament, and conferences are what keeps our orgainization going in the hope that people will learn more about myeloma. This organization works very hard to help others and I am proud to be a part it.
The Great!
I've personally experienced the results of this organization in...
the safisfaction of helping good people. My brother's wifes father passed away from yeloma last year and it is great to know that I am working towards raising money to help support finding a potential cure.
Ways to make it better...
If I had to make changes to this organization, I would...
add more board members.
June 29, 2011
I have volunteered for Arizona Myeloma Network for a few years, but I joined as a board member in 2010. Arizona Myeloma Network provides much needed information to the community it serves, not only for myeloma patients and caregivers, but the community at large. As founder, Barbara Kavanagh discovered, it's hard to find information and help for myeloma patients. She wanted to do something to help others, so they wouldn't have to struggle the way she did. AzMN started out by developing a Living with Myeloma Conference which is now in it's 5th year. The conference brings researchers, patients and doctors together to increase myeloma knowledge. In it's third year, the Race for Hope for all Cancers is an uplifting event that brings hope to myeloma patients and families, but also those with other types of cancer. The Navajo Nation Cancer Awareness Conference brings cancer resources and information to the Navajo people, an underserved segment of the population. AzMN works tirelessly to help others and give back to their community and those with myeloma.
The Great!
I've personally experienced the results of this organization in...
seeing the difference it has made to countless families seeking information and support.
Ways to make it better...
If I had to make changes to this organization, I would...
I think they do an amazing job and with more support, they will continue to provide outstanding services to their community.
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