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October 28, 2013

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October 28, 2013

I recently attended the Cancer Caregivers seminar in Scottsdale. What an amazing & helpful seminar. the best of its kind.

Ways to make it better...

If I had to make changes to this organization, I would...

offer more seminars

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 30, 2011

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June 30, 2011

The Arizona Myeloma Network is a quality organization, locally founded by a very determined, resourceful woman who is passionate about getting help and information to Myeloma patients in my state. I myself am a Myeloma patient and help facilitate a Myeloma support group that she joined (her husband has Myeloma) and can tell you first hand that she gets things done for patients in our state like no one else. Her organization networks with all the other organizations that help Myeloma patients and she made it her job to get to know all the Myeloma specialists in our area. Her organization was instrumental in bring some of the best doctors in the field to speak to our support group and in so doing opened up a whole new level of care and information to patients in Arizona. The next best thing the organization did was start a yearly Myeloma conference that is free of charge and brings in top quality Myeloma experts as speakers. It is one of the best places to get information for the newly diagnosed patients as well as seasoned ones. People come from all over the state and it fills a very important function of providing a truly quality program close to home. This is a wonderful service, especially for those who aren’t well enough to travel great distances for help and information. This organization has been life enhancing on many levels for Myeloma patients. Thank you AZMN!

The Great!

I've personally experienced the results of this organization in...

access to information, introduction to doctors that are Myeloma experts and emotional support

Ways to make it better...

If I had to make changes to this organization, I would...

give them more grants so they could provide more programs

June 23, 2011

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June 23, 2011

Arizona Myeloma Network (AzMN) has been a godsend for my husband and I. My husband has multiple myeloma. When he was diagnosed nearly 5 years ago, it was staggering. We started looking online to get information. He found information about AzMN and contacted them. We met with Barbara and heard about Jack's journey and it was very encouraging since he proved there was a chance of continuing to have a good quality of life. We quickly became involved with AzMN when we realized this was an organization that had ties to the top doctors and researchers in the field. We both have learned a tremendous amount and it has been the best source of information on a current basis with the annual Living with Myeloma Conference. We have been very actively involved in the promotion and activities that are a part of AzMN and believe our lives have become more positive with the knowledge we are gaining.

The Great!

I've personally experienced the results of this organization in...

Keeping my computer skills up to date and learning more about myeloma since I am my husband's caregiver. We have had the opportunity to meet the top doctors and researchers in the field and have been able to get answers to the personal questions about the disease.

Ways to make it better...

If I had to make changes to this organization, I would...

Like to see the Caregiver Program take off since caregivers are the ones who need more support to help them understand the disease and know how to make their caregiving less stressful.

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