Arizona Myeloma Network

Rating: 4.88 stars   50 reviews

Address:

20280 N 59TH Ave Ste 115 448 Attn: Barbara B Kavanagh, MSW, President & CEO Glendale AZ 85308 USA

Mission:

Our mission is to promote collaboration, awareness, education and advocacy for improved treatment and quality of life, for multiple myeloma patients, their families and ALL cancer caregivers with special consideration to the underserved.

Results:

True stories - Mission Accomplished Dear Barbara, my husband and I attended one of your conferences a few years ago shortly after my sister in Los Angeles had been diagnosed with multiple myeloma. It was the best thing we could have done. It was very informative and so well organized. We sat with a group of women during lunch whom shared their experiences with multiple myeloma and from them we learned who their doctors were. We passed this information on to my sister; she then made an appointment with one of those doctors (at Mayo) for a consultation. As a result she was more able to make a decision about her treatment. Thanks to you also, she continues to be doing well, feeling well. Just want to let you know we are happy that we attended your conference and wanted to share this with you. Sincerely, Doris March 2016 A new patient, who heard me (Barbara Kavanagh) speak on Fred Taylor's Radio program, never attended a myeloma meeting. He was so excited at the conference to meet other patients and the wonderful faculty. He shared that he had felt very isolated since most people he knew had never heard of myeloma and now felt less anxious and more hopeful. - Larry 2016 Living with Myeloma Conference

Target demographics:

educate cancer patients, their families and ALL cancer Caregivers.

Direct beneficiaries per year:

over 150 cancer caregivers and 300 myeloma patients and their families.

Geographic areas served:

Arizona and all the funds we raise stay in Arizona.

Programs:

Living with Myeloma Conference, Myeloma Scientific Roundtable and multiple Cancer Caregivers Education Programs all year long.

2016 Top-Rated Nonprofit
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More Info

623-466-6246
www.azmyelomanetwork.org

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Reviews for Arizona Myeloma Network

Rating: 5 stars  

My mom has Multiple Myeloma and I am her primary caregiver. The AZ Myeloma Network provides programs, information and access to professional we would not have otherwise.

Thanks so much to this great team of people that make a difference in the lives of those who need it most!

 
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Rating: 5 stars  

2 people found this review helpful

I met Barbara and Jack after I was diagnosed with Multiple Myeloma 6 years ago. They have become like family to me and my family. We have attended the AzMN annual conference for the past 6 years. It is always excellent!!! Outstanding medical professionals present information in a manner that is easy to understand for those of us who are not in the medical field. What a wonderful opportunity it has been to personally meet and visit with doctors from various parts of the country who are top-notch in researching and treating those of us with this incurable form of cancer. I've also attended their excellent Roundtable a few times. Information presented at the Roundtable is of a more technical nature geared more toward medical professionals. It is a fantastic opportunity for medical professionals to earn continuing education units in a very positive environment. The Cancer Caregiver Seminars that AzMN began hosting about 3 years ago have been an amazing source of support for my family members who are my steadfast companions on this journey of cancer survivorship. They have found these seminars to be a great source of strength and a wonderful way to "recharge" themselves in their roles as cancer caregivers. One of the most special aspects of AzMN is the message of hope that is evident at every event. It is very encouraging for me and my family to know we are not alone in this journey with cancer. We now have a wonderful extended family which includes Barbara and Jack along with many wonderful volunteers and others who are also traveling the path of multiple myeloma themselves or with a loved one or friend. Congratulations, Jack, on being a 25-year multiple myeloma survivor! Congratulations, too, to you and Barbara as you celebrate 25 years of marriage! You are both a great source of inspiration to all of us. It is through the efforts of people like you and the collaboration AzMN is fostering among everyone involved in treating multiple myeloma that hopefully in the not-too-distant future, multiple myeloma will become a CURABLE form of cancer. Thank you for all you do to improve the quality of life for so many of us. For anyone considering making a donation, rest assured your contribution is going to a very worthwhile cause. I think you would be hard pressed to find any charity that makes better use of funds in providing a greatly-needed service to many people. When anyone is diagnosed with multiple myeloma, it obviously has a huge impact on family finances. The fact that all AzMN events are provided free of charge to cancer patients along with their family members and friends makes it possible for many people to benefit from these events when they might otherwise not be able to participate. Thank you, thank you, thank you, Barbara and Jack, for founding and energetically continuing this terrific organization!!!!!

 
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Rating: 5 stars  

My husband was diagnosed with multiple myeloma three years ago. We were told about the Arizona Myeloma Network by my father-in-law who saw an article about the yearly conference. We have attended the yearly conference three years in a row and each time we learn something new. I have also attended a seminar for care givers and found it to be very helpful. The experts they bring to their conferences and seminars are leaders in this type of cancer. The Arizona Myeloma Network has made a positive difference in our lives.

 
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Rating: 5 stars  

2 people found this review helpful

I can't say enough about the Arizona Myeloma Network! They are always there with information on my illness. One of the most honest organizations I have had the pleasure to be associated with...


God bless Them!

 
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Rating: 5 stars  

1 person found this review helpful

The Arizona Myeloma Network means a great deal to me and my family. They provide a great deal of support to caregivers and valuable resources for patients. The connections that we have made through the Arizona Myeloma Network have made a huge difference in my Mom's battle with Multiple Myeloma. I cannot imagine Arizona Myeloma Network not being a part of my family!!!

 
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Rating: 5 stars  

2 people found this review helpful

At every program I see the direct positive and immediate impact Barbara and her team has on the cancer patient, family and friends that care for them. Attendees come to learn something new that they can put into action now. I compile the program evaluations and it is statements like this that make me proud to support AzMN: "I now understand the difference between my oncologist and the Myeloma specialists here" and "as a cancer caregiver, I learned to care for myself first. It is like the flight safety announcement 'put your own mask on first, before helping others' I get it now!".

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

The 1st time I met Barbara was when I was an "event planner" for a small cancer education non-profit. I asked Barbara to exhibit at our health fair. That was 5 years ago! Arizona Myeloma Network is a small but mighty non-profit. I have witnessed how relevant programming literally saves lives. The people at AzMN not only connect patients to local Myeloma (and other cancer) resources they also educate patients, caregivers and their families on obtaining the best quality of life. Barbara has my support, always.

If I had to make changes to this organization, I would...

Provide financial support to cover routine business and operating expenses for high quality staff necessary to plan, organize and expand valuable educational programming that is always provided FREE to the public.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 4 stars  

2 people found this review helpful

We all know great things happen when leaders do what they say and believe in what they do. I've seen Barbara Kavanagh, founder of AzMN, take families by the hand and introduce them to the top oncology specialists and survivors with like-kind cancers. I witnessed how AzMN saves lives. It isn't just the formal advocacy and educational programs it is the personal touch, interest and care that goes into everything they do. AzMN gathers scientists, oncologists, social & case workers, nurses, patients, families and caregivers together to discuss openly treatment options, side effects and clinical trials. What AzMN does is truly a collaborative effort from all disciplines in an effort to increase the quality of life for patients who have incurable cancers like Myeloma and educate people about cancer prevention and early detection.

If I had to make changes to this organization, I would...

If i had all the resources needed to enhance AzMN offerings that address serious social issues i would 1) build a sustainable business infrastructure for the organization enabling it to grow to the next level 2) expand and increase the frequency of patient educational programming, bring the Living with Myeloma Conference and Technical Roundtable national and continue incubating and mentoring grass-roots cancer awareness programs in rural and underserved populations in AZ.

Will you volunteer or donate to this organization beyond what is required of advisors?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 4 stars  

1 person found this review helpful

Az Myeloma Network is a soft spoken yet intensely focused on improving quality of life for those impacted by cancers.
Our successes are seen in the appreciative eyes of cancer patients and their families & caregivers.
We invite physician and cancer care educators into informal conversations providing a safe zone for those facing cancer care challenges at no-charge. The effort is immense. So is the power from knowledge that each participant obtains. With each conference, chat, run/walk and golf outing there is increased awareness of how to live better, feel better and not be so afraid.
The unsung influencers are those persons who experienced positive change to a better life triggered by education and advocacy provided by AzMN.

I've personally experienced the results of this organization in...

It was early Friday morning and conference attendees where arriving. Conversation started quickly. I was impressed by how many cancer patients, survivors and caregivers where there. I was equally impressed by their stories of how AzMN helped them choose how they live. Physicians were also in abundance. Do you realize how much a Physician revenue is lost when they attend a conference? This must be really important to them! That is when I decided that I want to consult & volunteer for AzMN.

If I had to make changes to this organization, I would...

AzMN is blooming and the need is more then great. I am committed to assisting AzMN in re-engineering it's infrastructure to ensure flexibility and sustainability. A strong infrastructure will enable program directors, coordinators and executives to increase quality time on expanding and strenghtening programming.

Will you volunteer or donate to this organization beyond what is required of advisors?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

I approached AzMN to partner and collaborate with another cancer care non-profit I consulted with.

What is this organization's top short-term priority?

AzMN's short term priority is organizational sustainability and program growth to increase community impact.

What is its top priority in the long run?

AzMN's long term priority is community impact through quality living.

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

1 person found this review helpful

I recently attended the Cancer Caregivers seminar in Scottsdale. What an amazing & helpful seminar. the best of its kind.

If I had to make changes to this organization, I would...

offer more seminars

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

1 person found this review helpful

The Arizona Myeloma Network is a quality organization, locally founded by a very determined, resourceful woman who is passionate about getting help and information to Myeloma patients in my state. I myself am a Myeloma patient and help facilitate a Myeloma support group that she joined (her husband has Myeloma) and can tell you first hand that she gets things done for patients in our state like no one else. Her organization networks with all the other organizations that help Myeloma patients and she made it her job to get to know all the Myeloma specialists in our area. Her organization was instrumental in bring some of the best doctors in the field to speak to our support group and in so doing opened up a whole new level of care and information to patients in Arizona. The next best thing the organization did was start a yearly Myeloma conference that is free of charge and brings in top quality Myeloma experts as speakers. It is one of the best places to get information for the newly diagnosed patients as well as seasoned ones. People come from all over the state and it fills a very important function of providing a truly quality program close to home. This is a wonderful service, especially for those who aren’t well enough to travel great distances for help and information. This organization has been life enhancing on many levels for Myeloma patients. Thank you AZMN!

I've personally experienced the results of this organization in...

access to information, introduction to doctors that are Myeloma experts and emotional support

If I had to make changes to this organization, I would...

give them more grants so they could provide more programs

 
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Rating: 4 stars  

1 person found this review helpful

Arizona Myeloma Network (AzMN) has been a godsend for my husband and I. My husband has multiple myeloma. When he was diagnosed nearly 5 years ago, it was staggering. We started looking online to get information. He found information about AzMN and contacted them. We met with Barbara and heard about Jack's journey and it was very encouraging since he proved there was a chance of continuing to have a good quality of life. We quickly became involved with AzMN when we realized this was an organization that had ties to the top doctors and researchers in the field. We both have learned a tremendous amount and it has been the best source of information on a current basis with the annual Living with Myeloma Conference. We have been very actively involved in the promotion and activities that are a part of AzMN and believe our lives have become more positive with the knowledge we are gaining.

I've personally experienced the results of this organization in...

Keeping my computer skills up to date and learning more about myeloma since I am my husband's caregiver. We have had the opportunity to meet the top doctors and researchers in the field and have been able to get answers to the personal questions about the disease.

If I had to make changes to this organization, I would...

Like to see the Caregiver Program take off since caregivers are the ones who need more support to help them understand the disease and know how to make their caregiving less stressful.

 
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