Arizona Myeloma Network

Rating: 4.88 stars   50 reviews

Address:

20280 N 59TH Ave Ste 115 448 Attn: Barbara B Kavanagh, MSW, President & CEO Glendale AZ 85308 USA

Mission:

Our mission is to promote collaboration, awareness, education and advocacy for improved treatment and quality of life, for multiple myeloma patients, their families and ALL cancer caregivers with special consideration to the underserved.

Results:

True stories - Mission Accomplished Dear Barbara, my husband and I attended one of your conferences a few years ago shortly after my sister in Los Angeles had been diagnosed with multiple myeloma. It was the best thing we could have done. It was very informative and so well organized. We sat with a group of women during lunch whom shared their experiences with multiple myeloma and from them we learned who their doctors were. We passed this information on to my sister; she then made an appointment with one of those doctors (at Mayo) for a consultation. As a result she was more able to make a decision about her treatment. Thanks to you also, she continues to be doing well, feeling well. Just want to let you know we are happy that we attended your conference and wanted to share this with you. Sincerely, Doris March 2016 A new patient, who heard me (Barbara Kavanagh) speak on Fred Taylor's Radio program, never attended a myeloma meeting. He was so excited at the conference to meet other patients and the wonderful faculty. He shared that he had felt very isolated since most people he knew had never heard of myeloma and now felt less anxious and more hopeful. - Larry 2016 Living with Myeloma Conference

Target demographics:

educate cancer patients, their families and ALL cancer Caregivers.

Direct beneficiaries per year:

over 150 cancer caregivers and 300 myeloma patients and their families.

Geographic areas served:

Arizona and all the funds we raise stay in Arizona.

Programs:

Living with Myeloma Conference, Myeloma Scientific Roundtable and multiple Cancer Caregivers Education Programs all year long.

2016 Top-Rated Nonprofit
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More Info

623-466-6246
www.azmyelomanetwork.org

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Reviews for Arizona Myeloma Network

Rating: 5 stars  

I have volunteered and attended the Multiple Myeloma conference for many years and each year I learn about new advances in this field. Barbara and Jack are dedicated in helping and educating patients with Multiple Myeloma throughout the year .

 
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Rating: 5 stars  

1 person found this review helpful

I have known Jack and Barbara over 8 years. They work endlessly to help patients find doctors and provide top notch conferences so patients will know the latest treatments for Multiple Myeloma. They are the best

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I have been associated with Arizona Myeloma Network for over 8 years. The organization cares about helping patients and educating them on resources available to them. Barbara and Jack work endlessly in providing the best programs and events possible. They are the best.

Kathleen G

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I met Barbara and Jack when I was the Patient Services Manager for another organization. They are truly great people and are always wanting to help or refer people to the right resources no matter what type of Cancer an individual person has. Their programs and events are top notch. Their enthusiasm and hard work are endless and they are always trying to improve on events and programs done in the past.

If I had to make changes to this organization, I would...

Nothing at this time.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 4 stars  

1 person found this review helpful

I met founders Jack and Barbara at a support group for multiple myeloma patients. I was inspired by the mission of Arizona Myeloma Network. Their leadership is always positive and extends not only in the major cities of AZ, but to the Native A,epicanthic reservations as well. I chose to volunteer so that other patients and caregivers like myself can attend conferences for free and bring hope in the battle against myeloma. The positive leadership permeates throughout the organization, and I plan to continue in the work of AZMN.

 
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Rating: 5 stars  

1 person found this review helpful

I volunteered for one of the Caregiver Conferences last year ---- afterward; I was so energized by the commitment and enthusiasm of this phenomenal group !!! I am so greatful to be a part of such a caring team. The Arizona Myeloma Network provides education for the community ( patients and caregivers) - as well as educational support for the Navajo Nation - This organization inspires me to do more for my community on a daily basis. Thank you !!!!

 
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Rating: 5 stars  

1 person found this review helpful

Arizona Myloma Network does wonderful work educating both carers and those with the disease. Increasing awareness of the disease promotes early diagnosis and prompt treatment. The support system and outreach programs all help to spread the word about the disease and provide a better quality of life for the patients.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

1 person found this review helpful

Arizona Myeloma Network is a caring and compassionate advocate for the caregiver and patient of all cancers but myeloma in particular. I have been working with the charity for about 5 months and am so impressed with the enthusiasm and passion that this grass roots non-profit exhibits! I feel a great sense of accomplishment and deep gratitude when I volunteer knowing that lives in my neighborhood are touched by AzMN everyday.

If I had to make changes to this organization, I would...

Get them more volunteers!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

1 person found this review helpful

I was asked by ARIZONA MYELOMA NETWORK to videotape their conference in Window Rock, AZ for the first time. Having spent 21 years in video productions I have filmed dozens of seminars and conferences for various corporate clients and non profit orgs and I can say that this group of people is highly motivated, very professional, and the conference they put on was information packed. While working I personally learned a great deal about Myeloma.

Their motivation to bring this topic and conference to the Navajo Nation is right on the mark and comes from the heart to help people understand and deal with this affliction. A great group of people to be associated with.

I've personally experienced the results of this organization in...

the conference at the Navajo Nation in Window Rock, AZ in June of 2011.

If I had to make changes to this organization, I would...

help them with getting their message to the outside world. The founders and staff are very intelligent, creative, and they know their mission statement. They have the ability to evolve and grow their organization and because they believe in themselves and the purpose of mission, they are attracting the right individuals, sponsors, and people to get things going. They are on the right track.

 
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Rating: 5 stars  

1 person found this review helpful

I first became aware of Arizona Myeloma Network through their nomination for the Hon Kachina Volunteer Award. It was of special interest to me since my father battled multiple myeloma for 10 years and I saw first hand how that illness is often overlooked by many of the larger cancer charities. I was also impressed by how they actively reached out to the caregivers of MM patients by providing conferences and support groups to help them address their needs and concerns. AZMN has done an excellent job of bringing educational conferences to Arizona with top researchers and professional in the MM field. They have also reached out to the Native American tribes in the Southwest teaching their members about cancer awareness and prevention through sponsored conferences in northern Arizona.

I've personally experienced the results of this organization in...

This organization has helped me by increasing my awareness and understanding of multiple myeloma. It has allowed me to learn about the most recent treatments and successes in the field of treating this cancer. I have also benefited from discussions with other MM caregivers who understand where I am coming from.

If I had to make changes to this organization, I would...

If I had to make changes to this organization I would like to see them increase the awareness of their activities through increased marketing and public relations efforts, particularly in the arena of social media.

 
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Rating: 5 stars  

1 person found this review helpful

My mom became active with AZMN after my dad was diagnosed. I have attended events as a participant in the past, and heard my mom recount her experiences as a volunteer. Dad passed about 2 months ago. I am so grateful for the friendship and support he and my mom had through AZMN. I decided to give my time, and have received so much in return.

I've personally experienced the results of this organization in...

... the support offered to my parents since my dad's diagnosis with Multiple Myeloma. They offered not only emotional support, but helped them navigate the confusing path as a cancer patient and caregiver.

If I had to make changes to this organization, I would...

I would offer ongoing facilitator training to the tribal women to help them to begin to run the conference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

absolutely! I fell in love with the Navajo Nation and can not wait to return. I met wonderful native women with whom I connected and exchanged contact information.

How did this volunteer experience make you feel?

I felt like we made a real difference in te lives of the people. If just one person learned about early detection of cancer, recognizing symptoms or gained an awareness that was a catalyst to lifestyle change - then I was able to have an impact.

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

1 person found this review helpful

Arizona Myeloma Network was brought to my attention in January of 2008 when my husband was diagnosed with multiple myeloma, a blood cancer with which we were totally unfamiliar. We didn’t know where to turn locally for up to date information. Barbara and Jack Kavangh have been a blessing to us on so many levels. They have provided us with the resources that we required to make informed decisions about my husband’s care. We were so impressed with the organization that we soon became volunteers with AzMN. Their annual Living with Myeloma Conference brings to the Phoenix area top physicians and researchers who share the newest information available. Sadly, my husband passed away from the disease in April, 2011. I am so proud of the work that AzMN has done for us personally and in our community that I continue to give my time and efforts so that AzMN is able to make resources and advocacy available to others who will be walking the same path.

I've personally experienced the results of this organization in...

Being a caregiver myself, I consulted with AzMN in the development of a Caregiver Program. I saw firsthand the difference that information made in my life. Because I was able to implement those lessons, I feel that I did an infinitely better job in caring for my husband and myself in the process.

If I had to make changes to this organization, I would...

like to see more funds available to afford AzMN the ability to continue their important work.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

In the past 3+ years, I have learned that in caring for a loved one with cancer, you cannot stop in the pursuit of new information. I have met incredible physicans from around the country that I would not have had the opportunity to meet within my community. I have been inspired by meeting myeloma survivors who share the story of their journey and courage.

How did this volunteer experience make you feel?

I am proud and grateful that I am able to be a part of an organization that is so keenly aware of the issues involved in dealing with this dreadful disease.

When was your last experience with this nonprofit?

2011

 
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