APFED

Rating: 4.95 stars   73 reviews

Issues: Health

Location: PO Box 29545 Atlanta GA 30359 USA

Mission: American Partnership For Eosinophilic Disorders (APFED) is a non-profit organization dedicated to the patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
Results: Over this past decade, APFED has made a huge impact in all areas of its mission: education, awareness, support, and research. - Educated patients, families, healthcare providers, and the public about eosinophilic disorders and how to manage them. - Initiated groundbreaking advocacy efforts on the state and federal levels to help families secure insurance coverage for medical foods, and encouraged our governments to direct more funds to eosinophilic research. - Played a critical role in encouraging the development of comprehensive guidelines for the diagnosis and treatment of eosinophilic esophagitis. - Led the effort to develop ICD-9 codes for eosinophilic gastrointestinal disorders, which are crucial for insurance coverage of therapy and for ongoing research. - Authored the bill for National Eosinophil Awareness Week (third week of May) and worked with the community to get it passed. - Participated in the NIH working group that was assembled to define unmet research needs for eosinophilic disorders, and we were instrumental in publishing a report on these findings, charting the course for scientific breakthroughs. - Thanks to the generosity of our supporters, APFED’s Hope on the Horizon Research Fund has granted nearly $1 million in support studies that are leading us to a better understanding of eosinophilic disorders, less-invasive diagnostics, and improved therapies. We have teamed up this year with the Allergy, Asthma & Immunology Education and Research Organization, Inc. (a supporting organization to the American Academy of Allergy, Asthma & Immunology, Inc.) to offer a APFED/ARTrust™ Pilot Grant Award. This collaborative award will allow investigators from a variety of disciplines to initiate new projects relevant to eosinophilic disorders, focusing on the development of ideas which are likely to lead to future external funding.
Target demographics: fund research for Eosinophilic Disorders
Geographic areas served: Global
Programs: HOPE Research Grants Trainee Grants Education Programs Advocacy Programs
2014 Top-Rated Nonprofit
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EIN 76-0700153
713-493-7749
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Community Reviews

Rating: 5 stars  

APFED is an outstanding resource for both patients and physcians!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

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Role: Professional with expertise in this field
Rating: 5 stars  

I am a clinical dietitian for an allergist in Charlotte, NC. The APFED website has served as a phenomenal resource for my patients before and after their initial visits. I have been over the moon pleased with the simplicity of the presentation of such a complex disease. I also have to thank APFED for their assistance in promoting community awareness. With their help, I started a local support group.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Role: Professional with expertise in this field
Rating: 5 stars  

My patients have repeatedly praised the help and guidance they receive from Apfed.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

2 people found this review helpful

During my lifetime, I have worked with, supported and benefited from numerous non-profit organizations. Few, if any, have taken patient advocacy and disease awareness to the level APFED has done. APFED has addressed the needs of patients, clinicians and researchers. They work on a local, national and even international level to advance the understanding of eosinophilic disorders. This past summer I attended the annual conference and was able to feel the direct impact the organization has on so many patients lives.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

16 people found this review helpful

APFED provides outstanding educational, advocacy and research support to a growing community of families and patients with eosinophilic diseases. Their generous support and tireless efforts have resulted in the approval of diagnostic codes for the eosinophilic gastrointestinal diseases, publication of diagnostic guidelines, national awareness days, research grants and annual patient education symposia. These efforts have broad reach and scope that touch hundreds of families across the world. While the infrastructure may be small, the passion and dedication of APFED is enormous!

I've personally experienced the results of this organization in...

their ongoing research, education and adovacy missions.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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