APFED
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April 10, 2013
APFED’s mission is to embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases. It accomplishes this by focusing on advocacy, research, support of families, and education and awareness.
My son was diagnosed with EoE in 1994, long before this patient advocacy group was created to help deal with this disease. I have volunteered for APFED for many years and joined the board recently in part to thank this organization for all of the work they do to help families like mine deal with this rare condition.
I hope that every family that is dealing with one of these eosinophil-associated diseases will find APFED and take advantage of all of the resources they have to offer, including the annual conference. Even though my son had already been living with EoE for many years when I attended my first EOS Connection conference, it and APFED changed our lives.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2013
April 10, 2013
APFED is an outstanding resource for both patients and physcians!
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How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2013
April 10, 2013
I am a clinical dietitian for an allergist in Charlotte, NC. The APFED website has served as a phenomenal resource for my patients before and after their initial visits. I have been over the moon pleased with the simplicity of the presentation of such a complex disease. I also have to thank APFED for their assistance in promoting community awareness. With their help, I started a local support group.
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How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2013
April 9, 2013
My son was diagnosed with Eosinophilic Esophagitis (and suspected lower EGIDs) when he was 10 months old. I had never even HEARD of Eosinophilic diseases.
So, naturally, the first thing you do when a new diagnosis is thrown at you.... I started googling this strange new disease. Medical sites had some information, but I still felt like I was in a very grey area between mass confusion and total clarity.
I came across the APFED site and immediately it became my go-to for information. The information on the page was what made me realize that our specialist at the time was not well versed in the disease and that we needed to find better help for my son. It also helped me to find my son's current team.
If I EVER have a question about my son's disease, I head on over to the APFED wesbite. They are full of up to date and accurate information, and I greatly appreciate the effort and time that goes into this site. I don't know where we would be without it.
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2013
April 8, 2013
The people at APFED work tirelessly to bring much needed attention to a rare disease. They provide support for those who are affected by this disease, EGID. Many families have been helped by the volunteers at APFED.
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Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Likely
When was your last experience with this nonprofit?
2013
April 8, 2013
APFED has been an exceptional resource - both from the point of view as a parent with a son with an EGID and later an advocate for insurace coverage change. APFED's annual conferences are very informative and help to keep us up to date on current research in the field. In addition their volunteers are extremely helpful through all stages of dealing with EGIDs. Thank you!
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
April 6, 2013
My patients have repeatedly praised the help and guidance they receive from Apfed.
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How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2013
January 10, 2012
2 people found this review helpful
During my lifetime, I have worked with, supported and benefited from numerous non-profit organizations. Few, if any, have taken patient advocacy and disease awareness to the level APFED has done. APFED has addressed the needs of patients, clinicians and researchers. They work on a local, national and even international level to advance the understanding of eosinophilic disorders. This past summer I attended the annual conference and was able to feel the direct impact the organization has on so many patients lives.
More feedback...
How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2012
August 15, 2012
My adorable nephew has been diagnosed with EOE and APFED has been a great resource for his mother as well as the rest of our family. What they are doing to help find a cure is amazing. Hopefully soon there will be a cure for all of the amazing people out there that have been diagnosed.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
August 15, 2012
APFED is an invaluable resource to those of us who are affected by an EOS disorder. Whether you are the one affected, or have a family member who is, there is a wealth of information available on APFED's website. I have used it to help find the right doctors for my son, support from their chat rooms, and for looking up symptoms to see if what my son is going through is normal for an EOS kid. I have also done various fundraising events for APFED, I believe in it that much. Together, we can find a cure!!!!
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
August 12, 2012
Apfed is a priceless asset to the EOS affected community nationwide. Through education, resources, facts, and bringing people together, Apfed strives to help everyone coping with EOS disorders. Apfed is also a great organization to team up with to raise money for the cause. They are easy to work with and very helpful!
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
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