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June 17, 2010

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June 17, 2010

I am a nutritionist who specializes in helping women with breast cancer create a "cancer hostile" terrain in their bodies to reduce risk of occurrence or recurrence. In this capacity, I have found the Annie Appleseed Website to be an invaluable source of information for me as I work to support my clients in making informed choices about treatments, trials and alternatives. Annie's comprehensive set of resources also helps me to constantly update my own knowledge and skill set in this ever changing field.Bravo to Ann Fonfa and her team for the contributions they are making to both patients and clinicians!

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The Great!

I've personally experienced the results of this organization in...

The empowerment it brings to my clients and myself!

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 8, 2010

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May 8, 2010

This sirminar was jointly conducted by IOMP and AAMP in the General Hospital in yaounde-Cameroon. This program was initiated by Afric-med USA an Washington DC based NGO. We had participants from three African contries. Cameroon, Congo and Chad.

The Great!

I've personally experienced the results of this organization in...

This Organization had helped increase cancer awareness and has set up a clinic in Bangem- Cameroon to help the poor

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

Ways to make it better...

This organization needs to brach out to other parts of Africa and not Cameroon alone

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

August 25, 2009

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August 25, 2009

I meant to write a much, much longer article, but since I seem to be procrastinating, I'll shorten it. My summary: I am a doctor of optometry and a licensed acupuncturist. This organization is astoundingly impressive, especially since for a relatively small volunteer-run group. The persons involved are generous with their time, driven by a wish to help others, and pretty darned competent. They also seem very, very good at connecting individuals, groups, and information. My first exposure to them was at their January conference, which was superb and extremely useful. Since it was organized by non-professionals and registration fees were minimal, my expectations were low - but it was quite well-done, and the material, information and connections I gained are something I find useful at minimun several times monthly. I learned a lot not only from the speakers, but also from the many knowledgeable and interesting exhibitors. After the conference I had several occasions to email them back and forth, and they provided me with a lot of very useful information - always friendly despite the demand on their time. Their only request was that I use it to be of use to others; simple enough. Since then I have referred several persons recent cancer diagnoses to them, as they are a rare, warm and useful resource when one is searching for information or simply needs someone who understands to talk with or to listen. It is astounding to me that to date so few persons have written about them. I can go on and on about this group and should you wish to contact me by email or otherwise, it would be my great pleasure to do so. I should state also that I am not personally connected with this group or any of the individuals involved - but I do have a markedly positive impression of them and am definite fan of this group. This is what I started to write previously: My first experience with the Annie Appleseed Project was a bit prior to January, 2009, when the PathUSA.org group sent out a notice about the upcoming conference. The speakers looked good, the cost was nominal, and the location was relatively convenient. I also found a very positive review of the group's first (2008) conference in the Townsend Letter, and this stimulated my curiousity. 2. how nice they were on the phone and by email. 3. Helpfulness at the conference. Wonderful info from the speakers. Dr. Block. Mrs. Block. Susan Silberstein. More. 4. The set-up and lunch. 5. The exhibitors. Salvestrols. Medicinal mushroom derivatives. Lots of science; my head swimming. More, more. 6. Speaking with Ann Fonfa, her husband, and some of the other AnnieAppleseed organization. Ann's talk: her experience with being diagnosed with cancer and how she was helped; remembering and wanting to pass it on. (Boy, has she ever succeeded!) 7. The goody bag. Great book enclosed on dying with grace; brought me to tears. 8. Post-conference. Such friendly communication. Willing to send tons of information as long as I use it - and, despite the time demand and some technical difficulties, did so. 9. Have been giving their information to appropriate friends, clients and patients. Really a great resource. 10. Constructive feedback?: I'm not really in a position to say much here, as I don't really know the workings of the organization. I just know that what I've experienced externally has been very positive. Perhaps they could've used one member with A/V experience to troubleshoot projection systems, microphones and the like; maybe someone else to coordinate speaker time and manage audience queries a bit more tightly. And I would've liked to have been able to stay and talk more and more with some of the exhibitors, but I understand that an hour after it's over everyone needs to go home. If this organization is still being evaluated next January, consider sending a "mystery shopper" to the conference. To me this whole group had such a down-to-earth, how-can-we-help, caring, humble-yet-very-competent feel to it; you could see if you find the same.

The Great!

I've personally experienced the results of this organization in...

attending their Jan 2009 conference.

Ways to make it better...

If I had to make changes to this organization, I would...

Without more budget? I'd be overwhelmed and unhappy, as I can't imagine I'd enjoy tinkering with something with such a nice spirit that seems to be working pretty well.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The spirit of the individuals involved, including the volunteers, the speakers they scheduled, and the exhibitors.

The kinds of staff and volunteers that I met were...

Friendly, helpful, some VERY knowledgeable, warm.

If this organization had 10 million bucks, it could...

Not sure. Larger website; more info. Conferences in other regions? Phone system with volunteers. Some compensation for certain positions?? - but have to keep the "care first" orientation. Hire someone to coordinate information requests and the like?

Ways to make it better...

I had scheduled more time! The A/V system and computer projection had worked impeccably.

In my opinion, the biggest challenges facing this organization are...

Maintaining the same warm spirit if they grow larger.

One thing I'd also say is that...

My entire experience is that these are really nice persons whose goal is to help others.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2009

June 24, 2010

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1 previous review
July 16, 2009

I participated in the 2008 Annie Appleseed Conference and was impressed, both by the level and array of speakers Ann Fonfa had gathered to present information that is not always readily available thro... more

June 24, 2010

I am in awe of what Ann Fonfa has done to bring complementary and alternative treatments for cancer into the public eye and what she has done to support cancer patients and their families. She is tireless in putting her vision into action and she has paved the way for many to make choices they might not otherwise have known were available, through her comprehensive website and through personal interactions. She also holds a torch for truth and balance by seeking out and drawing attention to new research that may challenge prevailing mainstream perspectives or assumptions about treatment. The beneficial repercussions of her work travel far through her website, and through regional as well as national conferences.

The Great!

I've personally experienced the results of this organization in...

...my personal cancer journey, and as a resource for others currently going through treatment, and as a source of education for mainstream health-care practitioners.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

July 16, 2009

I participated in the 2008 Annie Appleseed Conference and was impressed, both by the level and array of speakers Ann Fonfa had gathered to present information that is not always readily available through mainstream medicine. The popularity of the conference was such that I’m sure a larger venue will be necessary for patients and practitioners hungry for reliable, intelligent presentations. There was a great sense of cooperation and Ann Fonfa took great care to see that the food available at the conference was in tune with the theme (i.e.- delicious organic, healthy meals and snacks). Ann does not pay lip service to health. She acts on her beliefs and knowledge at every level. I am a cancer survivor, health care professional and author. Ann Fonfa was extremely supportive so that I could make my book "After Shock: From Cancer Diagnosis to Healing – A step-by-step guide to help you navigate your way", available to participants. Her staff was also very helpful. I would not hesitate to recommend this conference to professional and patient alike.

The Great!

I've personally experienced the results of this organization in...

patients who have attended from our area.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

Ways to make it better...

there was more space in the lecture rooms.

When was your last experience with this nonprofit?

2009

July 15, 2009

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July 15, 2009

I met Ann Fonfa at her organization's annual conference in Florida, 2 years after completing aggressive breast cancer treatment. As a cancer survivor and patient advocate, I was immediately inspired by her intelligence, fearlessness, and compassion. It was after the conference that two major htings occurred: I became an advocate myself, and, I found the circle of professionals and friends that I had been looking for in my quest to eliminate cancer from my life in ways that were healthy and sensitive to my personal needs. I have continued to eductae myself, and to share my information with those who desire a holistic approach to cancer treatment. Ann's emphasis on the basics; nutrition, exercise, mind-body therapies, and detoxification, offer cancer patients realistic, affordable, and approachable ways to address their post cancer lifestyles. Ann personally connects with her followers, has made herself an enviable presence at nearly every major medical and integrative conference in the US, and still finds the time to fundraise, sponsor, and inspire others to engage in education and advocacy. Her website is exhaustive and comprehensive. This is an organization that intelligently questions traditional therapy and offers education and support for those seeking alternatives.

The Great!

I've personally experienced the results of this organization in...

The recognition Ann receives at virtually every conference on CAM, either by her direct presence, or referenced by another speaker.

Ways to make it better...

If I had to make changes to this organization, I would...

Create a montlhy e newsletter from her client data base.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

My personal friendship with Ann.

The kinds of staff and volunteers that I met were...

Intelligent, independent thinking, and supportive.

If this organization had 10 million bucks, it could...

Change the course of cancer care.

Ways to make it better...

Her speakers had more time to answer the many questions that her participants generate from her programs.

In my opinion, the biggest challenges facing this organization are...

Ann;s time, finances, and technical support.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

this is an stellar non-profit with an excellent annual conference with national and internationally respected speakers. a wonderful resource for men and women dealing with cancer of all types but especially breast cancer. this project focuses on evidenced based complementary medicine not just dreams or ideas. conference was very well run, on time, clean, and truly helpful to patients and professionals alike.

The Great!

I've personally experienced the results of this organization in...

the quality and caliber of the speakers at their annual conference.

More feedback...

The kinds of staff and volunteers that I met were...

kind, professional, experienced, knowledgeable

If this organization had 10 million bucks, it could...

reach out to so many people who could have their lives and health changed.

When was your last experience with this nonprofit?

2009

July 9, 2009

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July 9, 2009

I have known Ann Fonfa for some 8-9 years, first as a breast cancer activist and colleague, and for the last 4+ years as a breast cancer survivor. Throughout this time frame Ann has been an invaluable resource. Her very comprehensive website is one that I have used on innumerable occasions and have referred others to countless times as well. Her Integrative Conference in West Palm Beach, which I attended in 2008, was one of the best I have ever experienced, both for the quality of the presentations and the networking opportunities it presented. I am still making use of the resources that I learned about at the conference. I consider Ann to be one of the foremost and trusted authorities in the field of Integrative Medicine, enhanced by the fact that she is a survivor herself. I am so pleased that she is now dividing her time between Florida and Long Island, NY where I live. She has already organized one impressive and successful conference on Long Island, and is rapidly becoming a presence in the Integrative health community here.

More feedback...

If this organization had 10 million bucks, it could...

Educate women- and health care professionals- all over the world about cancer prevention and integrative treatment for breast and other cancers.

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

The Annie Appleseed Project is a stunning example of what motivated people can accomplish, that can act as a beacon of hope and truth. I presented at a seminar entitled Evidence Based Natural Therapies for Breast Cancer sponsored by this group, and look forward to doing the same at upcomin events. The professionalism and heartfelt compassion was palpable, both among the speakers and the totally 'sold out' enthusiastic audience. In addition, specific, scientifically validated information was shared, that allows people to make an educated choice in terms of dealing with illness, or better yet- preventing it!

The Great!

I've personally experienced the results of this organization in...

The audience participation, including sugeons,physicians, nurses and other health care providers along with community members and the general public which indicated the broad level of interest and need for the widespread disemination of this information.

Ways to make it better...

If I had to make changes to this organization, I would...

Closely follow the way it is now run.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

It provides free information to people who find themselves in a crisis situation.

The kinds of staff and volunteers that I met were...

Dedicated and organized

If this organization had 10 million bucks, it could...

Run a widespread education campaign on mainsteam media shouting out the clearly confirmed message that people can drastically reduce their chances of getting cancer by choosing to eat mostly fresh fruits and vegetables.

Ways to make it better...

The auditorium could hold more people.

In my opinion, the biggest challenges facing this organization are...

THEY NEED MORE MONEY to provide the excellent support services they have in place.

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

I am a health care practitioner and have attended the first two conferences held in West Palm Beach. The knowledge I gained about cutting edge integrative cancer therapies has really helped me in my practice. I look forward to attending Jan. 2010 to listen to the top rate international lecturers in the field of oncology & complementary therapies. Dr. Marcelle Miller

The Great!

I've personally experienced the results of this organization in...

educating the public of alternative and/or integrative therapies available.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the sharing that goes on with most of the participants.

The kinds of staff and volunteers that I met were...

Top notch, efficient and caring.

If this organization had 10 million bucks, it could...

CHANGE THE WORLD.....

Ways to make it better...

The seminars could be longer

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

If you are diagnosed with cancer[as I was in 1994 with advanced lymphoma] you're entering a foreign country. You start out looking for the best doctors and best treatments, but it may be tragically much later that you realize that the menu of treatments was incomplete. Annie Appleseed is an extraordinary resource for cancer patients in providing a comprehensive map of Complementary and Alternative Medicine (CAM) Treatments for cancer in the US and throughout the world. Their knowledge base is derived from leading integrative physicians and other health care practitioners(Traditional Chinese Medicine and Ayurvedic practitioners,nutritionists,etc.) as well as actual patients sharing their experiences with specific treatments, doctors and clinics-like a Zagat's guide written by cancer patients. Patients have access to this invaluable data plus personal support through Annie Appleseed's "education seminars", "workshops",Conferences,and the most extensive website database available of CAM treatments for cancer. Patients coming to Annie Appleseed feel EMPOWERED by the information they obtain, NURTURED by the camaraderie of other patients and their families and more HOPEFUL about the future. The vision and energy driving Annie Appleseed is it's founder Ann Fonfa, who has also traveled the cancer path. OK,I admit it, I have a bias: I adore Ann Fonfa- for her championing the right of patients to pursue alternative and novel cancer therapies; for her generosity and compassion; for her tireless commitment to patient education & empowerment; for her heroic efforts in pursuing changes in health policy; for her gift in networking and building partnerships with other advocacy organizations; and for her tenacity in the face of all challenges (including conventional medicine). Also, almost every dollar coming into Annie Appleseed goes towards programming. Annie Appleseed is like a hidden treasure- when patients discover it they often realize, "oh my God,I had no idea how much valuable information was here". Because of my own cancer experience I became a Cancer Patient Advocate. I know there are times when surgery is the best option for a localized cancer.But for metastatic cancer we're learning that there are multiple cell cycle signaling mechanisms driving tumor growth, including growth factors (VEGF, EGFR, PDGFR,etc.), hormone receptors, proteins, signal transduction molecules, angiogenesis-related molecules, transcription factors, oncogene products,etc. Annie Appleseed is an invaluable resource of evidence-based research on non-toxic approaches (e.g., nutraceuticals, botanicals,etc)to inhibit many of these signaling cascades. I speak at various cancer disease advocacy group meetings, and they provide a wonderful service. But when it comes to a complete map of all novel treatment options, every cancer patient should include Annie Appleseed Project on their map. Wishing you all a healing journey, H.Kenneth Schueler Director HKS PATIENT ADVOCATES “Championing Your Health Through Research, Advocacy, Education & Support" 49 Park Avenue - Suite 2A New York, NY 10016 Phone: (212) 725-5800 Fax: (212) 725-2260 Email: Ken@HKSchueler.com Website: www.HKSchueler.com

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The Great!

I've personally experienced the results of this organization in...

the empowerment which cancer patients have conveyed after attending an Annie Appleseed Conference.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

it is totally patient-centered

The kinds of staff and volunteers that I met were...

staff and volunteers have all had experience with cancer, either themselves or a family member, and they are very compassionate.

If this organization had 10 million bucks, it could...

fund alternative cancer treatment research on non-patentable drugs(i.e., bigPharma will not fund); fund international meetings of researchers on the cutting edge of alternative cancer treatments;run educational workshops in more cities in the US

When was your last experience with this nonprofit?

2009

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