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August 11, 2012

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August 11, 2012

Annie Appleseed Project is providing excellent information and a really useful service to those with breast cancer.

When a colleague of mine shared her experience of having cancer, I immediately sent her Annie Appleseed's link. What Ann offers is a life-line to cancer survivors. This
project is a confidence booster, and guaranteed to make anyone feel less isolated and/or depressed.

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

July 10, 2012

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July 10, 2012

Fantastic conference. At Annie Appleseed conferences you will hear from experts and patients, enjoy the company of other survivers and thrivers and you will be well fed....I always have to mention this, as with many conferences, the food is awful and unhealthy. To attend a conference and learn about healthy eating, lifestyle and treatment choices and copious amounts of useful info and then eat garbage is somehow unsettling to me. Never the case with Ann's conferences...I am a survivor, the Executive Director for another NP, and a coach for others with cancer, and I wouldn't miss the Annie Appleseed conference!

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

February 14, 2011

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February 14, 2011

The Annie Appleseed Project is great. They care about the people. I am impressed year after year on all the information that comes forth to educate the general republic. I have also listed them on our new non-profit website.

I have meet Annie as she is part of the National Breast Cancer
Coaltion in which I am a member.

The Great!

I've personally experienced the results of this organization in...

Reading their wealth of information that is always being updated.

Ways to make it better...

If I had to make changes to this organization, I would...

Have more workshops up north.

February 13, 2011

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February 13, 2011

This organization provides one of the better and more complete collections of information on cancer treatment alternatives. Cancer patients have to understand that current cancer practices in the US are far more driven and dominated by medical dogma* and business preferences than they are by therapeutic efficacy and science. Other credible sources of information are needed. The information provided by the Annie Appleseed Project can help to overcome the restricted views that conventional medicine often imposes on cancer patients and their loved ones.
*Dogma: A belief or point-of-view, presented as authoritative, that is not scientifically proven.

The Great!

I've personally experienced the results of this organization in...

I design and develop therapeutic devices that have been proven to be useful in the treatment of cancer and in wound healing.

Ways to make it better...

If I had to make changes to this organization, I would...

The kind of changes that would be the "next step" require more staff and a much higher level of funding. The Annie Appleseed Project does well with what they have.

January 28, 2011

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January 28, 2011

I refer people to this non profit all the time. It is one of the greatest sources of information, accurate information about integrative and alternative therapies for cancer patients. Ann keeps up to date on the most current information, she is a tireless advocate for patients and a voice of reason in a crazy system of disease.

The Great!

I've personally experienced the results of this organization in...

conferences, interviews, using the website as a information and referral source.

Ways to make it better...

If I had to make changes to this organization, I would...

Give her more money so she could do more things and help more people!

September 27, 2010

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September 27, 2010

I have attended an event earlier this year hosted by the Annie Appleseed Project. It was very informative and meeting the needs of those in attendance. -Dr. Michael Haley

The Great!

I've personally experienced the results of this organization in...

Learning of alternative and complimentary treatments for cancer.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 28, 2010

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June 28, 2010

Ann (Annie Appleseed Project) is empowering others by sharing her expertise and allowing us to become more knowledgeable about how to deal with cancer on a day to day basis. Ann has a gift and is very loving in sharing her own journey. Once you attend one of her conferences or even just spend a little time on her web-site(you will be learning so much from her site that you could spend hours there, so relax with a cup of tea and enjoy the experience!) you will be more peaceful about the cancer journey.

The Great!

I've personally experienced the results of this organization in...

During and after the conference, I spoke with attendees and they were much more accepting of their cancer and felt very empowered to no longer be the "victim," but to take control. They were given the hope that is needed to move forward.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 27, 2010

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June 27, 2010

The AnnieAppleSeedProject,through intelligent, scientific inquiry, continues to bear fruit, nourishing the community of people with a cancer diagnosis with information on little known treatment options. The benefits of this knowledge, delivered with compassion and generosity, are life enhancing and life changing. The value produced with every dollar donated is beyond measure. This is an extra-ordinary organization worthy of support.

The Great!

I've personally experienced the results of this organization in...

I met Ann Fonfa in 1998 when we both had chapters in the book "Women Confront Cancer, making medical history by choosing alternative & complimentary therapies" Wooddell& Hess, 1998 NYU Press. We spoke on various panels and I have admired her industriousness ever since. She really gets a lot done- website with extensive information, conferences and traveling to speak at interested venues.

Ways to make it better...

If I had to make changes to this organization, I would...

give them more money for conferences expenses

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

speaking at the 2009 convention

The kinds of staff and volunteers that I met were...

bright, compassionate & generous

Ways to make it better...

we had more time & money

In my opinion, the biggest challenges facing this organization are...

$

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 21, 2010

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1 previous review
June 21, 2010

The Annie Appleseed Project has been a most impressive and effective force for education and awareness. The 2010 conference did a remarkable job of bringing together health professionals, cancer vict... more

June 21, 2010

The Annie Appleseed Project has been a most impressive and effective force for education and awareness. The 2010 conference did a remarkable job of bringing together health professionals, cancer victims and their families. The entire presentation was a poignant reminder that cancer affects us all. The combination of personal stories with professional guidance created a positive experience out of such a tragic subject. THANK YOU ANN for all that you do and all that you are! I HIGHLY RECOMMEND the conference and continuing support of this endeavor. Beth Ellen DiLuglio, MS, RD, CNSD, CCN NutritionMission.org

The Great!

I've personally experienced the results of this organization in...

that I benefited from the educational and the human experience.

More feedback...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 21, 2010

The Annie Appleseed Project has been a most impressive and effective force for education and awareness. The 2010 conference did a remarkable job of bringing together health professionals, cancer victims and their families. The entire presentation was a poignant reminder that cancer affects us all. The combination of personal stories with professional guidance created a positive experience out of such a tragic subject. THANK YOU ANN for all that you do and all that you are! I HIGHLY RECOMMEND the conference and continuing support of this endeavor. Beth Ellen DiLuglio, MS, RD, CNSD, CCN NutritionMission.org

The Great!

I've personally experienced the results of this organization in...

that I benefited from the educational and the human experience.

More feedback...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

Numbers of studies have shown that social wisdom is worth its weight in gold. Anne's site provides a special kind of social wisdom, developed over years of carefully examining input from cancer patients and resources from all over the world. Its vital that this foundation and web site be recognized, supported, and held up as an example for the right way to make positive impact on our struggling healthcare system, where caregivers struggle with red tape, and have just a few minutes to spend with each patient. Patients, even those with insurance, suffer. My own particular story with Anne's foundation relates to alternative therapies used to improve patient outcomes in stem cell therapies at Stanford Hospital. Stem cell research holds great promise for future cancer treatments. However, what is missing from the research and treatment picture is patient care. Outcomes of stem cell treatment depends a great deal on how well patients can survive the side effects and keep their spirits up while undergoing continued horrendous discomfort and beating the odds. Typical hospital stays are 45 - 53 days post transplant. Most of them, by the time they receive this kind of treatment, have been through chemo/radiation at least once. So its even more important that they receive support for their patient centered challenges, in order that this promising technology is used optimally, now and in the future. The alternative methods we used with patients with autologous stem cell bone marrow transplant at Stanford Hospital enabled our patients not only to recover on average 2 weeks ahead of expected hospital stays, but also to quickly head off fevers, nausea, mucositis, and a number of problems that often lead to failed treatment. In addition, the patients had good spirits. Although we did publish an abstract about our experiences in Psychoneuroimmunology 2003, there is currently not a good vehicle to share the story of these patients with other patients. Anne's site fills this gap. One patient described it as "When you receive a diagnosis of cancer, when they tell you have the big C, its as if you have been hit by a semi truck. The news itself is enough to make your life feel like confetti being tossed up in the air." Its up to the patient to figure out how to pull the confetti back into a new life, with healing. Each person is unique, and our spirit and emotional life are a big part of our healing journey. Anne's site provides a wide range of carefully screen and checked stories to encourage patients and give them control over their healing journey, despite the lack of time our physicians may have for them in their stressed day. More generally, Anne's site provides one stop shopping for anyone with cancer who wants to investigate alternative ways of coping with side effects, treatments, and/or find others who might be emotional or spiritual support. By last count, her site was pointed to by over 5 million people. Its obviously useful. We in the U.S. live in a medical culture where many physicians treat patients only by the books they used in medical school. If you are a thinking individual, and not influenced by politics/money but are rooted in patient centered thinking, Anne's site provides a unique, strategic, and necessary bridge between what our current medical system IS and what it can be. Numbers of studies have shown that social wisdom is worth its weight in gold. Anne's site provides a special kind of social wisdom, developed over years of carefully examining input from cancer patients all over the world. Its vital that this site be recognized, supported, and held up as an example for the right way to make positive impact on our struggling healthcare system. Cindy Mason, CMT, Ph.D. Research Associate, Stanford University Founder, www.21stcenturymed.org Virtual Faculty, Future Health Technology Institute

The Great!

I've personally experienced the results of this organization in...

As founder of the Humans Without Borders Project, a volunteer organization to educate the public and health professionals about the science of healing touch, we benefitted from Anne Fonfa's organization in order to meet some of our organizational hurdles.

Ways to make it better...

If I had to make changes to this organization, I would...

I would increase exposure among funding agents in order to create a steady revenue stream to keep the funding for the web site secure. A 5 year commitment, at this juncture, would support focus on building content.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

quality information and caring at a time when our medical system is a house of cards

The kinds of staff and volunteers that I met were...

exceptional, setting new standards for the future of healthcare.

If this organization had 10 million bucks, it could...

Increase visibility of the website, create web based educational media for public access to health education, create a video series rather like TED but specific to patient centered success stories around cancer, launch a journal, sponsor speakers, etc.

Ways to make it better...

no need to complete this sentence, its been a good experience.

In my opinion, the biggest challenges facing this organization are...

securing funding so there can be a concentration on content

One thing I'd also say is that...

if more healthcare was organized like this, we would all be better off.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

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