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July 10, 2009

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July 10, 2009

this is an stellar non-profit with an excellent annual conference with national and internationally respected speakers. a wonderful resource for men and women dealing with cancer of all types but especially breast cancer. this project focuses on evidenced based complementary medicine not just dreams or ideas. conference was very well run, on time, clean, and truly helpful to patients and professionals alike.

The Great!

I've personally experienced the results of this organization in...

the quality and caliber of the speakers at their annual conference.

More feedback...

The kinds of staff and volunteers that I met were...

kind, professional, experienced, knowledgeable

If this organization had 10 million bucks, it could...

reach out to so many people who could have their lives and health changed.

When was your last experience with this nonprofit?

2009

July 9, 2009

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July 9, 2009

I have known Ann Fonfa for some 8-9 years, first as a breast cancer activist and colleague, and for the last 4+ years as a breast cancer survivor. Throughout this time frame Ann has been an invaluable resource. Her very comprehensive website is one that I have used on innumerable occasions and have referred others to countless times as well. Her Integrative Conference in West Palm Beach, which I attended in 2008, was one of the best I have ever experienced, both for the quality of the presentations and the networking opportunities it presented. I am still making use of the resources that I learned about at the conference. I consider Ann to be one of the foremost and trusted authorities in the field of Integrative Medicine, enhanced by the fact that she is a survivor herself. I am so pleased that she is now dividing her time between Florida and Long Island, NY where I live. She has already organized one impressive and successful conference on Long Island, and is rapidly becoming a presence in the Integrative health community here.

More feedback...

If this organization had 10 million bucks, it could...

Educate women- and health care professionals- all over the world about cancer prevention and integrative treatment for breast and other cancers.

When was your last experience with this nonprofit?

2009

July 5, 2009

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July 5, 2009

Annie site has unlimited information and link on alternatives... but she (Ann) also puts her body out there as well fighting for our health care.

The Great!

I've personally experienced the results of this organization in...

help for young women knowing their options.

Ways to make it better...

If I had to make changes to this organization, I would...

wish that cloning of Ann was possible.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Annie's personal attention to each quest for help.

The kinds of staff and volunteers that I met were...

giving of themselves.

If this organization had 10 million bucks, it could...

become a first choice of information gathering for the prevention of illness, a prime source alternative cures or additions to transitional tx.

Ways to make it better...

if..... I or mine didn't need her!

In my opinion, the biggest challenges facing this organization are...

the traditonal medicine gets all the insurance coverge.

One thing I'd also say is that...

that the treatment of cancer is better for having this organization as a source of information,

When was your last experience with this nonprofit?

2009

July 4, 2009

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July 4, 2009

I am a holistic practitioner, specializing in Detoxification programs using juice fasting and raw foods, yoga, relaxation, meditation and advanced massage therapy. I came to all of these modalities because I had cancer in 1975. I wanted to see if I could heal it without any invasive therapies. I succeeded and became very dedicated to teaching others how to prevent and even heal their own dis-eases. Ann Fonfa, the Director and Founder of The Annie Appleseed Project, gave me an opportunity to present my story at the first conference in January, 2008 as a patient advocate. I have been a volunteer for the organization which is helping people to have their questions answered. Come join us on January 7-9, 2010 in West Palm Beach, FL.

The Great!

I've personally experienced the results of this organization in...

the growth of numbers of people coming to the website and to the conferences that are now happening not only in Florida, but in New York as well.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

how down to earth people who are involved or who come to learn are.

The kinds of staff and volunteers that I met were...

helpful, inspirational and well educated in their particular fields of research.

If this organization had 10 million bucks, it could...

really make a major impact on educating people about all the alternative possibilities that are available to help people who are ill.

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

The Annie Appleseed Project is a stunning example of what motivated people can accomplish, that can act as a beacon of hope and truth. I presented at a seminar entitled Evidence Based Natural Therapies for Breast Cancer sponsored by this group, and look forward to doing the same at upcomin events. The professionalism and heartfelt compassion was palpable, both among the speakers and the totally 'sold out' enthusiastic audience. In addition, specific, scientifically validated information was shared, that allows people to make an educated choice in terms of dealing with illness, or better yet- preventing it!

The Great!

I've personally experienced the results of this organization in...

The audience participation, including sugeons,physicians, nurses and other health care providers along with community members and the general public which indicated the broad level of interest and need for the widespread disemination of this information.

Ways to make it better...

If I had to make changes to this organization, I would...

Closely follow the way it is now run.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

It provides free information to people who find themselves in a crisis situation.

The kinds of staff and volunteers that I met were...

Dedicated and organized

If this organization had 10 million bucks, it could...

Run a widespread education campaign on mainsteam media shouting out the clearly confirmed message that people can drastically reduce their chances of getting cancer by choosing to eat mostly fresh fruits and vegetables.

Ways to make it better...

The auditorium could hold more people.

In my opinion, the biggest challenges facing this organization are...

THEY NEED MORE MONEY to provide the excellent support services they have in place.

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

I am a health care practitioner and have attended the first two conferences held in West Palm Beach. The knowledge I gained about cutting edge integrative cancer therapies has really helped me in my practice. I look forward to attending Jan. 2010 to listen to the top rate international lecturers in the field of oncology & complementary therapies. Dr. Marcelle Miller

The Great!

I've personally experienced the results of this organization in...

educating the public of alternative and/or integrative therapies available.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the sharing that goes on with most of the participants.

The kinds of staff and volunteers that I met were...

Top notch, efficient and caring.

If this organization had 10 million bucks, it could...

CHANGE THE WORLD.....

Ways to make it better...

The seminars could be longer

When was your last experience with this nonprofit?

2009

July 3, 2009

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July 3, 2009

I commend Ann and the Annie Appleseed Project on the dedication to patient rights and the continued effort each year to bring the C.A.M. conference to South Florida. We are so fortunate to have your non-profit working on our behalf, THANK YOU! P. Shaw, Fort Lauderdale

The Great!

I've personally experienced the results of this organization in...

The annual C.A.M. Conference

Ways to make it better...

If I had to make changes to this organization, I would...

follow Ann's exemplary leadership and dedication

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

my heightened awareness

The kinds of staff and volunteers that I met were...

were all dedicated and supportive

If this organization had 10 million bucks, it could...

lower the cancer statistics and save lives

Ways to make it better...

nothing

In my opinion, the biggest challenges facing this organization are...

monetary limitations

One thing I'd also say is that...

I hope to see the nonprofit grow for the sake of our people's health and survival

When was your last experience with this nonprofit?

2007

July 3, 2009

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July 3, 2009

If you are diagnosed with cancer[as I was in 1994 with advanced lymphoma] you're entering a foreign country. You start out looking for the best doctors and best treatments, but it may be tragically much later that you realize that the menu of treatments was incomplete. Annie Appleseed is an extraordinary resource for cancer patients in providing a comprehensive map of Complementary and Alternative Medicine (CAM) Treatments for cancer in the US and throughout the world. Their knowledge base is derived from leading integrative physicians and other health care practitioners(Traditional Chinese Medicine and Ayurvedic practitioners,nutritionists,etc.) as well as actual patients sharing their experiences with specific treatments, doctors and clinics-like a Zagat's guide written by cancer patients. Patients have access to this invaluable data plus personal support through Annie Appleseed's "education seminars", "workshops",Conferences,and the most extensive website database available of CAM treatments for cancer. Patients coming to Annie Appleseed feel EMPOWERED by the information they obtain, NURTURED by the camaraderie of other patients and their families and more HOPEFUL about the future. The vision and energy driving Annie Appleseed is it's founder Ann Fonfa, who has also traveled the cancer path. OK,I admit it, I have a bias: I adore Ann Fonfa- for her championing the right of patients to pursue alternative and novel cancer therapies; for her generosity and compassion; for her tireless commitment to patient education & empowerment; for her heroic efforts in pursuing changes in health policy; for her gift in networking and building partnerships with other advocacy organizations; and for her tenacity in the face of all challenges (including conventional medicine). Also, almost every dollar coming into Annie Appleseed goes towards programming. Annie Appleseed is like a hidden treasure- when patients discover it they often realize, "oh my God,I had no idea how much valuable information was here". Because of my own cancer experience I became a Cancer Patient Advocate. I know there are times when surgery is the best option for a localized cancer.But for metastatic cancer we're learning that there are multiple cell cycle signaling mechanisms driving tumor growth, including growth factors (VEGF, EGFR, PDGFR,etc.), hormone receptors, proteins, signal transduction molecules, angiogenesis-related molecules, transcription factors, oncogene products,etc. Annie Appleseed is an invaluable resource of evidence-based research on non-toxic approaches (e.g., nutraceuticals, botanicals,etc)to inhibit many of these signaling cascades. I speak at various cancer disease advocacy group meetings, and they provide a wonderful service. But when it comes to a complete map of all novel treatment options, every cancer patient should include Annie Appleseed Project on their map. Wishing you all a healing journey, H.Kenneth Schueler Director HKS PATIENT ADVOCATES “Championing Your Health Through Research, Advocacy, Education & Support" 49 Park Avenue - Suite 2A New York, NY 10016 Phone: (212) 725-5800 Fax: (212) 725-2260 Email: Ken@HKSchueler.com Website: www.HKSchueler.com

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The Great!

I've personally experienced the results of this organization in...

the empowerment which cancer patients have conveyed after attending an Annie Appleseed Conference.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

it is totally patient-centered

The kinds of staff and volunteers that I met were...

staff and volunteers have all had experience with cancer, either themselves or a family member, and they are very compassionate.

If this organization had 10 million bucks, it could...

fund alternative cancer treatment research on non-patentable drugs(i.e., bigPharma will not fund); fund international meetings of researchers on the cutting edge of alternative cancer treatments;run educational workshops in more cities in the US

When was your last experience with this nonprofit?

2009

July 3, 2009

more

July 3, 2009

The annie appleseed project has been a wonderful resource for people that want a non judgmental and un bias place to find information on any number of alternative cancer therapies. I have not met a more passionate and knowledgeable advocate for Cancer patients than Ann

The Great!

I've personally experienced the results of this organization in...

The faces of the people who have had any interaction with the Annie Appleseed Project, It's like someone had turned the lights on for them.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I can without concern refer people to Ann and her website knowing that they will get the best information available.

If this organization had 10 million bucks, it could...

Raise peoples awareness 10 fold

When was your last experience with this nonprofit?

2009

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