ANGELS PEDIATRIC CARDIOLOGY INC
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May 16, 2011
Our first encounter with Dr. Perez was at the birth of our son in 1995. Dr. Perez was able to diagnose his problem as Tetrollogy of Fallot. From that time on not only did we count Dr. Perez as our doctor, but also our friend. When Dr. Perez passed away, we felt a great loss. We were very excited to be invited to the beginning of APHH, a picnic, given in Dr. Perez's honor. What we found in APHH was more than an organization that would have an event here and there, it became a lifeline to connecting with children and families that were experiencing some of the same fears and questions we were facing. We were able to talk to parents who knew about the things we knew about. APHH held a Big Hearts Big Adventures Family Fun Day & Mini Symposium a few weeks ago. There were speakers there that spoke about when our children reach a certain age they are considered legal adults and their medical issues would become a private mattere between them and their doctor. During her portion, I found myself realizing our family was just a few years away from that time. Another speaker spoke of making sure our children know about their condition and being able to tell the doctor themselves. This information was very important to me. The doctor who spoke for Joe DiMaggio Children's Hospital, was excellent and I learned of many of the advancements being made in heart surgeries, a comforting thought since our son has a surgery planned for June of this year. I appreciate APHH because it connects you with families that are currently in the same battle as we are. My husband and I have enjoyed connecting w/ these parents again and again to hear their successes and their sadnesses. We truly are grateful that even through a terrible tragedy, as the loss of Dr. Perez, that something wonderful has come of it and that is Angel's Pediatric Heart House.
The Great!
I've personally experienced the results of this organization in...
attending events and being a part that is impacted by the events and people who help this organization.
Ways to make it better...
If I had to make changes to this organization, I would...
I would not make any changes. The people have been nothing but supportive and kind, both in words and in actually showing up at the hospital when necessary.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
Dr. Angel Perez was our cardiologist
What, if any, change in your life has this group encouraged?
It has helped me to hold on when things have happened that I cannot change
When was your last experience with this nonprofit?
2011
December 28, 2010
My son Nathanial has Ebstein's Anomally. His first open heart surgery was at 18 hours old. His second surgery was 4 months later. Nate's condition is so rare that the doctor's weren't sure what to expect. So, we sat, watched, and waited. Now, he is progressing beautifully. Our family received much warmth and support from many people who we never met until his visit to Miami Childrens. Angel's Pediatric House was one of the first. Ms. Sonia was caring and inderstanding during a confusing and difficult time for our family. Her generousity helped our traveling burdens. The shadow doll helped our 6 year old to understand what was happening to his little brother. We are so grateful for her help.
The Great!
I've personally experienced the results of this organization in...
Angel's Pediatric House was a positive experience. What else can I say??? A friendly smile and gesture helped out most unexpectedly.
Ways to make it better...
If I had to make changes to this organization, I would...
I would change nothing!
December 6, 2010
My daughter was born with 3 holes in heart three years ago. As a first time mother, I really didn't what would happen or how to cope with the situation. One of the hospital that I gave birth asked me if I wanted to go to a meeting that they were having so learn more about my babies born with cingenital heart defects. With no hesitation I decided to attend. To me Angel's Pediatric Heart House is more than an organization to help parents like me, but it is my family, our family. Recently, I was laid off from my job and didn't have any financial assistant from anyone, Ms. Sonia Perez from APHH referred me to a wonder charity that not only assisted me with daycare, but also assisted me with all my bills. Thanks to the good Lord, I was able to find work and bring myself up to date with my finances. Words can not fully describe they way I feel about APHH, it would a lifetime for me to write all the good things this organization does for me and my family. Ever since I became part of Angel's Pediatric Heart House, not only I became a better understanding mother, but also made a lot friends, have faith, believe and understanding of others.
The Great!
I've personally experienced the results of this organization in...
To me APHH is an organization that deserves to be known thoughout the 50 States of America.
Ways to make it better...
If I had to make changes to this organization, I would...
If I had to make any changes and had the resources, I would donate more money to keep this organization last for ever for future paretp come.
December 5, 2010
My daugerter Alexis was born with coarctation of the aorta. By the time she was one years old she had already undergone four heart surgeries. Lexi is now 9 years old and is doing amazing, but unfortunately she will probably need one more surgery, we are just not sure when. Her first year of life was the hardest thing I ever experienced in my life. I felt so alone, even though I had all the support of my family and friends nobody really could understand what I was going through. Finding APHH has been such a blessing in so many ways. My daughter and I love going to all of the events. I get to meet with other families, who unfortunately know exactly how I feel. I can hear their stories and we can all relate to our experiences. My daughter can meet other kids who have a "special heart" just like her! Sonia is one of the most caring peolple I have ever met and we love her dearly. She has given us many fun memories and hopefully many more to come.
The Great!
I've personally experienced the results of this organization in...
Meeting other families that know exactly what I am going through, and not feeling like I am alone anymore.
Ways to make it better...
If I had to make changes to this organization, I would...
nothing,
December 4, 2010
By surprise, our daughter was born 17 years ago with a Congenital Heart Defect. She had open heart surgery when she was ten months old at a hospital out of town. I remember how lonely, scared, overwhelmed with all kinds of emotions my husband and I felt hoping and praying that God would protect our beautiful baby girl. When we came back home, we felt somehow alone because none of our friends and family knew how this traumatic experience had changed us, even though they all meant well. That is the reason my daughter and I are voluntering and helping APHH. We really felt that we were contributing in a positive way with all the families that, at the moment, are dealing with this unfortunate event in their lives. We helped Mrs. Sonia Perez at the picnic, and we also helped her deliver packages full of goodies like baby bottles, clothing, strollers, and car seats at Miami Children's Hospital to all the newborn and older babies that were there waiting or just few days after surgery. Then she would let their parents know about her wonderful non profit organization and how to belong to this special group of friends with beautiful kids with congenital heart defects. We feel very fortunate to have meet Sonia Perez and be able to help and make a difference in the life of this special group of parents who are, at the moment, in search of hope and somehow help them believe that their children will have a healthier and regular chilhood like any other kid. I just wish I had known of an organization, like hers, when my husband and I were going through those tense months waiting for our daughter's surgery and hoping for the best outcome for her. At least now I know that I can help.
The Great!
I've personally experienced the results of this organization in...
the hospital visits I've made.
Ways to make it better...
If I had to make changes to this organization, I would...
nothing.
November 30, 2010
I found APHH at a very down time in my life.My angle was born with heart disease. He was 4 weeks old when he had his frist surgery, then he was 5 years when he had his second.he is now awaiting his third. After his second surgery, he start having attacks where he could hardly breath. The attack would come on early morning and would scare him so bad he would not go to sleep. I went to the hair with a friend and found a article in a Riverwalk magazine about APHH. I was desperate and need somebody to talk. APHH has help my angle to meet and mingle with other children who have the same or wrost condition. he realize he is not alone It is a blessing to be part of the APHH family. my family got to go on a disney cruise that Sonia Perez did the application to make a wish foundation, the picnics and events my family get to attend, that we could not afford. The gift cards we recieve that help us with food is such a great blessing. All this we have to say thank you to APHH for there love, the support and kindness
The Great!
I've personally experienced the results of this organization in...
Helping my son find other kids who are just like him.Just talking to other familys in the same situation,the love and support of APHH
Ways to make it better...
If I had to make changes to this organization, I would...
i would make it bigger so sonia could help more angles with broken hearts
November 29, 2010
My wife and I found out our 1 of our twin girls would be born with a heart defect. We were very scared that we would loose her. But thank god she responded great to the surgury. Then came the good people of APHH. They left us some gifts that were a great help for our family, including a double stroller for our twins. It felt good that someone was there, holding our hand through this dificult time. And then there was the shadow buddy. He was the one who kept my baby company while she was in the hospital. And though she is only 3 mnths, she loves her doll, holds her doll and talks to it all day long. By having APHH by our side, we got to meet other families with the same issues and how they are handling it. This gave us a little more hope. Thanks Sonia for all your help and for making such a beautiful organization that cares for little babies broken hearts and there families.
The Great!
I've personally experienced the results of this organization in...
When my baby was born and when she had a catherisation
Ways to make it better...
If I had to make changes to this organization, I would...
make it bigger and get sonia some more help.
November 28, 2010
My daughter was in and out of the hospital her first two years. She had many heart caths and two open heart surgeries. APHH became very special to us as Madison grew and became more stable. When you have a medically fragile child there isn't always money for fun things. You struggle just to meet the needs. APHH has a way of putting the fun back into the lives of these little ones. We have had such wonderful times through picnics, ice shows, bowling, and even shopping through their "store". My little one is still wearing some of the donated Disney dresses that she received from our friends. My girls love APHH and those who represent it. I know that when the time comes for our little girl to have more heart surgery they will be there to help in anyway they can. APHH is an organization that lends a hand, helps us smile and connect us with others in our same situation. We all love APHH!
The Great!
I've personally experienced the results of this organization in...
our lives dealing with a baby with a congenital heart defect. It is a scary road and great to have someone there to listen.
Ways to make it better...
If I had to make changes to this organization, I would...
want APHH to be able to help any and all heart families without the organization worrying about financial issues.
November 28, 2010
Our son had heart surgery 2 years ago this month. We had known he would need surgery around age four, but he started having problems at 28 months. He had his surgery within a few weeks, and we got invited to a Heart party at the park. This was where we met Sonia, and she told us about Angels Pediatric Heart House. It was so amazing to me that she set up this foundation after her husband passed. He was a Pediatric Cardiologist. Sadly enough, our sons surgeon passed just 3 months after his surgery. Sonia answered so many questions, and was sure to introduce us to many other families. We have attended many events with APHH, including a show in a big tent, farm rides, and numerous parties with many other families with kids that also have heart disease. They also include face painting, great food, bounce houses, and bowling. We are able to attend the Christmas parties the last two years as well. To our surprise, they gave both our son and daughter a Christmas present. It seems like Sonia really is just concerned for the kids. I know she would help us whenever possible. look forward to the day we finish schooling, and can start giving back to APHH. The money gets used very wisely.
The Great!
I've personally experienced the results of this organization in...
All events that have been thrown since early 2009. Our son loves his heart buddy. It looks just like him!
Ways to make it better...
If I had to make changes to this organization, I would...
Make it larger. Sonia is such a selfless person.
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