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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, General Science, Health, Health (General & Financing), Technology

Mission: Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy and support for individuals with Angelman Syndrome, their families, and other concerned parties.

Target demographics: Individuals with AS and their families. We educate. We support. We help our families navigate through the complexities that AS brings.

Geographic areas served: The Angelman Syndrome Foundation (ASF) is a national non-profit organization dedicated to advancing the awareness and treatment of Angelman syndrome through education, information, research, and family support.

Programs: We are here to advance the awareness and treatment of Angelman syndrome. The ASF is the largest non-governmental provider of research grants and fellowships. More than $8 million has been awarded since 1996. The ASF provides information, support services & programs to more than 300,000 individuals with AS and their families annually. We currently have 3 medical clinics in operation. These are invaluable to our families, as they provide them with comprehensive medical care for their loved one. The ASF is on track to open 3 more medical clinics in 2016 with a total goal of 17 across the country. The ASF hosts an annual, National Walk in over 40 locations across the country and in Canada & Mexico. This event draws more than 10,000 participants and is our largest fundraising event annually. Our Walks are a fun way to volunteer and get involved with some great people for a great cause!

Community Stories

1 Story from Volunteers, Donors & Supporters

1

Professional with expertise in this field

Rating: 5

They Rock! They have given Millions of Dollars in research money to finding a cure and enhancing the lives of Individuals with AS. Whenever I have a problem I can call them and find support. I've been participating in their walks and they are a blast, plus they do lots of good for the entire AS Community!