ANAPHYLAXIS AND FOOD ALLERGY ASSOCIATION OF MINNESOTA

Rating: 4.95 stars   19 reviews

Issues: Health

Location: 2200 Hendon Ave % Nona Narvaez Saint Paul MN 55108 USA

Mission: Taking the fear out of food allergies.
Geographic areas served: Minnesota
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Community Reviews

Rating: 5 stars  

7 people found this review helpful

I was so impressed with the excitement of all of the walkers. They were involved and appreciated in the work to set up this program to assist themselves and there families affected with food allergies. When I volunteer I always wish that this is a viable cause, and it is and very important to all peoples. Blessings to this program

I've personally experienced the results of this organization in...

there overall feelings to promote all types of allergies.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010-4-01

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Rating: 5 stars  

6 people found this review helpful

I have been involved in helping plan several events for this organization. The passion and care they have for people who are touched by food allergy issues is truly inspiring. AFAA is a caring organization that strives to advocate and support those struggling with life threatening food allergies.

I've personally experienced the results of this organization in...

I have learned much from AFAA and have been able to use the information when I work with caterers to provide more value to clients when they have members with allergies.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

7 people found this review helpful

I became involved with this organization in honor of my sister and nephew who have both suffered from severe food allergies their entire lives. I fell in love with the organization because of their passion, drive, structure, accomplishments and genuine care. Everyone involved with this organization has nothing but good things to say about it and the people involved. Very positive & supportive!

I've personally experienced the results of this organization in...

-

If I had to make changes to this organization, I would...

-

What I've enjoyed the most about my experience with this nonprofit is...

everyone's sincere desire to help others.

The kinds of staff and volunteers that I met were...

cheerful, kind, wonderful!

If this organization had 10 million bucks, it could...

make life a lot easier for those with food allergies & probably find a cure!!!

Ways to make it better...

-

In my opinion, the biggest challenges facing this organization are...

it doesn't get much recognition from people not affected by food allergies.

One thing I'd also say is that...

I have greatly enjoyed all of my experiences with this organization and look forward to many more!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

5 people found this review helpful

I became involved with AFAA and immediately realized the importance to the health of individuals that face this life threatening issue every day. I am fortunate not to. AFAA somehow moves mountains with volunteers--starting with their volunteer unpaid Executive Director. The families that get involved to support this organization are amazing. I have been so impressed by their commitment to the cause while living with the issue every day 24-7. It's truly an honor to help.

I've personally experienced the results of this organization in...

I have learned much in the time I have been involved with AFAA. Trying to have an event or meeting that includes food is truly a monumental task for this group. AFAA is like the little engine that could. I think I can..I think I can. I can!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

6 people found this review helpful

I found out about AFAA through an organization that was seeking board members for AFAA. I was immediately impressed with the legislation that AFAA has helped to pass that directly impacts people with allergies.

I've personally experienced the results of this organization in...

hearing the stories of parents/adults that are so thankful for the education and support they receive from AFAA.

What I've enjoyed the most about my experience with this nonprofit is...

what I have learned about allergies.

The kinds of staff and volunteers that I met were...

Absolutely dedicated to the vision and mission of the organization.

If this organization had 10 million bucks, it could...

hire a lobbyist and impact even more positive legislation, and hire staff to educate the community.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

5 people found this review helpful

When our daughter was a toddler she was diagnosed with nearly 20 food allergies - she's since outgrown half of them so we're only faced with ten. They are life threatening. I cannot explain how overwhelming it is to live with allergies, especially when first diagnosed. Cooking, shopping and eating immediately became an intense puzzle. We found so little information and resources at the time so we were grateful to find AFAA. Through them, we met a number of helpful people who shared recipes, travel and shopping tips, and could truly empathize with the daily fear and frustrations of allergies. Over the years we've discovered that although daily life becomes more managable, each new experience brings incredible challenges. Navigating childhood joys like playdates, birthday parties, school, church or camp is very stressful. Because allergies are a life-long journey for us and our daughter, we deeply appreciate the advocacy, education, support and awareness AFAA does on behalf of all families with living with food allergies. The founders are tireless and continue to offer new, creative opportunities while providing steady support and advocacy.

I've personally experienced the results of this organization in...

a successful Food Allergy Awareness Walk that brought classmates and other supporters together - a great way to show our daughter she's not in this alone!

If I had to make changes to this organization, I would...

make sure they had secure funding to continue their great work, perhaps hire a staff member or two and make some improvements on things like the website.

What I've enjoyed the most about my experience with this nonprofit is...

the support and inspiration of others. I've also enjoyed making it a family experience whether it's at an AFAA event or with a volunteer opportunity.

The kinds of staff and volunteers that I met were...

dedicated, intelligent and empathetic.

If this organization had 10 million bucks, it could...

help raise awareness about food allergies with a major campaign and fund research so we can get closer to a cure.

Ways to make it better...

I had more time to volunteer. Seems there is so much to do and too few resources, including time.

In my opinion, the biggest challenges facing this organization are...

funding and finding enough volunteers.

One thing I'd also say is that...

the founders are an inspiration!

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

4 people found this review helpful

There are defining moments in everyone's lives and our son's food allergy diagnosis was one of them. Our son has a life-threatening food allergy to peanuts and tree nuts. It has changed the way we look at food, live our lives, and interact with the world around us. AFAA has been our lifeline as we navigate through this food allergy journey. It has provided needed food allergy education to families, schools, and communities. The organization's advocacy work has provided our son with safeguards at school and in emergency situations (i.e. anaphylaxis) that ensures our son will receive epinephrine treatment. Thank you AFAA for taking the fear out of food allergies and for being a leader as a MN non-profit food allergy organization!

I've personally experienced the results of this organization in...

The food allergy advocacy and community awareness this organization has done is outstanding!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009-1-01

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Rating: 4 stars  

5 people found this review helpful

AFAA has helped our family deal with the very difficult task of living with a child with a life threatening food allergy. We received so much support and help - both concrete and emotional - from AFAA that I volunteered to take on the huge task of chairing the first ever AFAA Walk at the Mall of America. I was more than happy to do the work - as AFAA's director came to our school to talk about training the staff on Epi-PEns. I have attended the AFAA conference for years and received loads of information from the medical professionals and other families living with food allergies. My family has volunteered for years at the AFAA booth at the State fair - it is so important to educate other people about how scary and life threatening a food allergy is - all it takes is one bite! And we see thousands of people every day at the State Fair booth so this is a perfect way to get out the message. Living with a food allergy is a daily challenge and AFAA has helped our family in countless ways - their help is prioeless!

I've personally experienced the results of this organization in...

see above response

If I had to make changes to this organization, I would...

only that they could have a constant source of funding

What I've enjoyed the most about my experience with this nonprofit is...

getting to know other families living with food allergies.

The kinds of staff and volunteers that I met were...

exceptional! over the top! extraordinary!

If this organization had 10 million bucks, it could...

really advocate and educate which would thus greatly improve / change / support the lives of people living with food allergies.

Ways to make it better...

the organization had more money to provide more opportunities.

In my opinion, the biggest challenges facing this organization are...

having funds! and finding enough volunteers.

One thing I'd also say is that...

if any organization is deserving this is it! Everyone has to eat 3 meals a day and when you have an allergy - you are thinking about your food all the time and this adds so much stress and changes the quality of life for everyone in the family.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-3-01

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Rating: 5 stars  

7 people found this review helpful

All my life (of 40+ years) I enjoyed eating what I enjoyed, skipping what I didn't, and not worrying about how my food habits affected other people. That all changed when I met three people and got involved with the Anaphylaxis and Food Allergy Association of Minnesota. First, I met my sister-in-law who has a severe reaction to onions; the second person was a coworker whose lips would grow to the size of circus clowns when she ate certain fruits; the third was a young neighbor boy who has severe allergies to nuts. As a former hotel kitchen worker, I realize now how serious food allergies can be and that everything I touch may result in life or death for persons with severe food allergies. Since a cure is not available for my friends and family, education is key. I volunteer for AFAA to raise the conscience of those who were oblivious like me and don't realize the importance of food safety. AFAA does that through several outreach events, such as a state fair booth, benefit concert and walk, kids and family daycamp, peanut-free MLB ballgame suites and more. I've seen the smile come across a stressed mother's face when she realizes that she is not alone in her struggle to raise a baby with recently discovered severe food allergies to milk. She can get help through AFAA of MN and talk to other parents who have learned with the help of AFAA, to take the fear out of food.

I've personally experienced the results of this organization in...

making sure that I don't contaminate public places with severe food allergens such as peanut butter.

What I've enjoyed the most about my experience with this nonprofit is...

the positive attitude of its members and the dedication of it's founders.

The kinds of staff and volunteers that I met were...

so positive and giving of their time and talents.

If this organization had 10 million bucks, it could...

hire staff people to take the burden of running a non-profit off the backs of volunteers. They might also: hire a lobbyist to help change guidelines/laws regarding food safety, establish daycamp scholarships for kids, publish a magazine.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-3-01

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